Same, same, but (quite) different.
1st comparison of #PubMed vs #EuropePMC for #PatientAuthor pubs.
Same = can search both
Same = rapid increase clear
Different = 2x difference in output
We need research on research methods to advance patient authorship!
@ismpp.bsky.social @bmj.com @jama.com

May reporting guideline updates for #PPI continue! Well done to #CONSORT & #SPIRIT (2025) #CHEERS (2022). Why not other main study types? Is #PRISMA next re, evidence of PPI value in systematic reviews (Zhou Q J Clin Epid 2024) @equatornetwork.bsky.social @ismpp.bsky.social

Great to see SPIRIT 2025 update w #PPI reporting. Hoping to see update of websites on/referring to SPIRIT - 2013 is out of date now. @equatornetwork.bsky.social

International #ClinicalTrialsDay 2025 - will 2026 see a better way for #patients to find trials they (& other patients) trust? Our 'call-to-action' publication identifies a gap in registries that should be fixed. #CTD2025 #PPI

What if the flip happens? A patriarchal dismissal of #Patient involvement in #publications might be dismissed sooner than (some) people think. Ready to adapt processes, practices & attitudes? #PatientAuthor #PlainLanguageSummary
@ismpp.bsky.social

A patient-authored publication a day keeps tokenism (& paternalism) away.
It's so hard to change medical #publications - until we do. Kudos #PatientAuthor pioneers & allies! #PPI @ismpp.bsky.social @envisionpharma.bsky.social
@amicascientific.com @bmj.com @amyprice.bsky.social

First post. I think it's worthy.
Beyond excited, beyond grateful...THANK YOU
@rockefellerfdn.bsky.social for selecting me as a Bellagio Center Resident in 2025. Honoured & humbled (!) to follow Ruth Bader Ginsburg, Maya Angelou, Mary Robinson et al! Re-read those names! #RFBellagioResident