That’s good you have them under control! After how sick I was, I’m trying the new attitude of live life to the fullest. It's easier said than done sometimes!!

I had a stroke. I have partial vision, facial palsy, mobility problems, and weakness in my left side. Due to the weakness my left arm is pretty useless! The hardest thing for me has been psychological. Anxiety, anger and depression are all a big part of my life. ❤️

Thank you. Finding people who understand is hard. Hope you’re doing ok. ❤️

I sound whiny and self-absorbed, but this is one place where I can be truthful, as no one I know follows me. I will always be grateful for my family and friends, but I hate being constantly physically and mentally drained, and the permanent struggle to accept my life changes
#braininjury #disability

I know I have limitations, and I need to learn to accept that I have no choice but to do things differently. I don't want to come across as ungrateful for the help, either. I also know I can't expect someone to understand how draining it is to be walked to the loo or have shoelaces tied for you.

and it was extremely crowded. With mobility problems and roughly 30% vision in one eye, situations like this really scare me. I hate being escorted to the look, walking around the crowds, etc. It’s people who care about me, but it is still so incredibly humiliating.

As well as self-absorbed. Anything I’ve done to rebuild my life means f-all. I don't want to cut ties with her as it makes other stuff difficult, but I don't know how to deal with it. My head is all over the place. I am permanently exhausted. Anyway, today’s diary entry is over! 🫶

Omg the similarities are endless!!! 😂😂

Yes! I get… “Why are you tired? It’s not like you do anything.” or “You’re fine now; other people have it way worse.” You do feel unheard and invalidated . 😔

Thank you. ♥️

Thank you. ❤️

I know that you shouldn't let politics come between you. What upsets me the most is that my opinion/values aren't even considered, and I’m entirely dismissed, turning the whole conversation into a huge fight. It’s so draining.

Every day is a struggle, and my already present neuro fatigue is only exacerbated by the daily emotional struggles. I’ve got a couple of other medical conditions, and at the risk of sounding selfish, there's a lot of time when I think, “Why me? What did I do in a past life?”

#braininjury

I’ve finally found a local brain injury support group that runs various activities weekly via Zoom and occasional in-person meet-ups. I can come across as quiet and a bit awkward when I first meet people, but I’m hoping that after a few sessions, I can feel more like I belong.

This is some of many! I try to remind myself that no matter how upsetting or hard it may be, people don't understand it. They aren't trying to be hurtful and can struggle; it will inevitably change things for them. Social media has helped me so much, as by talking with others, you’re not alone. 2/

Peer-to-peer support, especially for younger survivors, is so desperately needed!