@pnhsupport.bsky.social
We are a patient led charity (1161518) supporting those with paroxysmal nocturnal haemaglobinuria (PNH) in England, Wales and Northern Ireland. www.pnhuk.org or contact@pnhuk.org
Have you heard episode one of the podcast yet? Listen to Naomi, Jovi and Shah share what they wish people knew about living with an ultra rare bone marrow related condition.
Search for Rare Voices Podcast or go to super-rare.org/podcast/
Search for Rare Voices Podcast or go to super-rare.org/podcast/
June 6, 2025 at 8:00 AM
Have you heard episode one of the podcast yet? Listen to Naomi, Jovi and Shah share what they wish people knew about living with an ultra rare bone marrow related condition.
Search for Rare Voices Podcast or go to super-rare.org/podcast/
Search for Rare Voices Podcast or go to super-rare.org/podcast/