The eternal cycle of balancing being woowoo and sicky at the same time

I don't know what to do and I am so so so scared #Ehlers-Danlos #smas #actuallyautistic #aneurysm #noresources #malnutrition #mutualaid #wheredoiturn #whatdoido 🤷‍♀️

I am terrified I am going to die while I sit around trying to fight to figure out how to live. I am on waiting lists with geneticist etc.

I get iv fluids. I see a nutritionist. I am still dying from this stuff. Everything i do is just a bandaid on a stabwound. I need real treatment. Surgery. Help.

To further complicate it, I was disowned by my family for being liberal & lgbtq and I have noone to rely on for help. Its just me and my husband. My son is autistic and on ssi so he can't assist me. I am truly without resources yet my community is deadly to me.

What do I do?

Not as flattering lol

I can't drink water to fix my problems but if you can hydrate yourself adequately the way nature intended trust me you don't wanna suffer w severe electrolyte issues. I've been hospitalized more than once. You can have heart problems or seizures etc bc of electrolytes. Take that shiz serious y'all!

I can stand long enough to cook and shop. And other tasks I took for granted before I became so chronically dehydrated that I need 4 bags of fluids plus medicine to help me retain sodium.

If you have ever heard the expression "hydrate or diedrate" take that dumbass meme seriously lol

My electrolytes have been bad for a long time but the past few years I've been horribly dehydrated & it has wrecked havoc on my health. Standing in the kitchen to cook meals w/out passing out is a BIG WIN!

It can be hard having health woes all the time so all wins are worth celebrating!