PKD Foundation
@pkdfoundation.bsky.social
Dedicated to finding treatments and a cure for polycystic kidney disease (PKD). www.pkdcure.org
Genetic testing is transforming how we understand and manage PKD. In our latest episode of PKD Chronicles, we’re talking with certified genetic counselor, Kayla Kolbert, about the science and significance of genetic testing for PKD patients.
🎧 Listen now go.pkdcure.org/Podcast7Social
🎧 Listen now go.pkdcure.org/Podcast7Social
November 13, 2025 at 6:48 PM
Genetic testing is transforming how we understand and manage PKD. In our latest episode of PKD Chronicles, we’re talking with certified genetic counselor, Kayla Kolbert, about the science and significance of genetic testing for PKD patients.
🎧 Listen now go.pkdcure.org/Podcast7Social
🎧 Listen now go.pkdcure.org/Podcast7Social
Earlier this year, the FDA approved the first clinical trials using genetically modified pig kidneys for people with kidney failure. Tim Andrews recently became the longest patient to live with a pig kidney, reaching 271 days.
November 3, 2025 at 3:38 PM
Earlier this year, the FDA approved the first clinical trials using genetically modified pig kidneys for people with kidney failure. Tim Andrews recently became the longest patient to live with a pig kidney, reaching 271 days.
Wherever you are, specialized PKD care is closer than you think.📍
Our Centers of Excellence are leading the way in delivering expert care, advancing PKD research, and supporting patients and families.
Find a PKD Foundation Center of Excellence near you
👉pkdcure.org/carecenters
Our Centers of Excellence are leading the way in delivering expert care, advancing PKD research, and supporting patients and families.
Find a PKD Foundation Center of Excellence near you
👉pkdcure.org/carecenters
October 29, 2025 at 4:15 PM
Wherever you are, specialized PKD care is closer than you think.📍
Our Centers of Excellence are leading the way in delivering expert care, advancing PKD research, and supporting patients and families.
Find a PKD Foundation Center of Excellence near you
👉pkdcure.org/carecenters
Our Centers of Excellence are leading the way in delivering expert care, advancing PKD research, and supporting patients and families.
Find a PKD Foundation Center of Excellence near you
👉pkdcure.org/carecenters
Join us for episode six of PKD Chronicles as we unravel the story behind tolvaptan, a medication revolutionizing the treatment landscape for polycystic kidney disease.
🎧 Listen now: go.pkdcure.org/Podcast6Social
🎧 Listen now: go.pkdcure.org/Podcast6Social
October 10, 2025 at 3:44 PM
Join us for episode six of PKD Chronicles as we unravel the story behind tolvaptan, a medication revolutionizing the treatment landscape for polycystic kidney disease.
🎧 Listen now: go.pkdcure.org/Podcast6Social
🎧 Listen now: go.pkdcure.org/Podcast6Social
In our upcoming webinar, learn about the unique challenges ADPKD presents for women, pregnant individuals, and children.
Register today ⬇️
pkdcure-org.zoom.us/webinar/regi...
Register today ⬇️
pkdcure-org.zoom.us/webinar/regi...
September 22, 2025 at 2:49 PM
In our upcoming webinar, learn about the unique challenges ADPKD presents for women, pregnant individuals, and children.
Register today ⬇️
pkdcure-org.zoom.us/webinar/regi...
Register today ⬇️
pkdcure-org.zoom.us/webinar/regi...
Congratulations to the PKD Foundation’s 2024 Congressional Champions of the Year! We’re proud to honor Rep. Emanuel Cleaver (D-MO) and Rep. Carol Miller (R-WV) for their leadership and ongoing support of legislation that benefits the PKD community.
September 17, 2025 at 2:03 PM
Congratulations to the PKD Foundation’s 2024 Congressional Champions of the Year! We’re proud to honor Rep. Emanuel Cleaver (D-MO) and Rep. Carol Miller (R-WV) for their leadership and ongoing support of legislation that benefits the PKD community.
In Episode 5 of PKD Chronicles, we sat down with nephrologist and PKD researcher Neera Dahl, M.D., to discuss how clinical trials and patient registries fuel progress in research and treatment development.
🎧 Listen now: go.pkdcure.org/Podcast5Social
🎧 Listen now: go.pkdcure.org/Podcast5Social
September 12, 2025 at 3:57 PM
In Episode 5 of PKD Chronicles, we sat down with nephrologist and PKD researcher Neera Dahl, M.D., to discuss how clinical trials and patient registries fuel progress in research and treatment development.
🎧 Listen now: go.pkdcure.org/Podcast5Social
🎧 Listen now: go.pkdcure.org/Podcast5Social
Join us on Tuesday, September 30 for the final part of our four-part webinar series, “Confidently Navigating ADPKD: Understanding the New KDIGO Guidelines.”
Register today at pkdcure-org.zoom.us/webinar/regi...
Register today at pkdcure-org.zoom.us/webinar/regi...
September 9, 2025 at 1:35 PM
Join us on Tuesday, September 30 for the final part of our four-part webinar series, “Confidently Navigating ADPKD: Understanding the New KDIGO Guidelines.”
Register today at pkdcure-org.zoom.us/webinar/regi...
Register today at pkdcure-org.zoom.us/webinar/regi...
Let’s get the facts straight.
The more we talk about PKD, the more informed our communities become.
Get involved with #PKDAwarenessDay at pkdcure.org/awarenessday
The more we talk about PKD, the more informed our communities become.
Get involved with #PKDAwarenessDay at pkdcure.org/awarenessday
September 4, 2025 at 12:59 PM
Let’s get the facts straight.
The more we talk about PKD, the more informed our communities become.
Get involved with #PKDAwarenessDay at pkdcure.org/awarenessday
The more we talk about PKD, the more informed our communities become.
Get involved with #PKDAwarenessDay at pkdcure.org/awarenessday
PKD Awareness Day is right around the corner. Here are four ways you can get involved on September 4th 🧵⬇️
August 28, 2025 at 7:21 PM
PKD Awareness Day is right around the corner. Here are four ways you can get involved on September 4th 🧵⬇️
Congratulations to Dr. Melina Messing, for winning the Jared J. Grantham Research Fellowship Award; the PKD specific Fellowship from the Ben J. Lipps Research Fellowship Program.
August 27, 2025 at 5:22 PM
Congratulations to Dr. Melina Messing, for winning the Jared J. Grantham Research Fellowship Award; the PKD specific Fellowship from the Ben J. Lipps Research Fellowship Program.
Our Advocacy Champions Network (ACN) brings together members of the community to advocate for federal funding for PKD research and legislation benefiting those with PKD.
Join the ACN to help advance critical policies that shape the future of PKD care ⬇️
go.pkdcure.org/l/886163/202...
Join the ACN to help advance critical policies that shape the future of PKD care ⬇️
go.pkdcure.org/l/886163/202...
August 18, 2025 at 5:26 PM
Our Advocacy Champions Network (ACN) brings together members of the community to advocate for federal funding for PKD research and legislation benefiting those with PKD.
Join the ACN to help advance critical policies that shape the future of PKD care ⬇️
go.pkdcure.org/l/886163/202...
Join the ACN to help advance critical policies that shape the future of PKD care ⬇️
go.pkdcure.org/l/886163/202...
PKD Foundation Center of Excellence, Columbia University Medical Center, is hosting an educational event on PKD Awareness Day! Join on Thursday, September 4 for a free virtual event designed to educate, empower, and connect the PKD community.
Learn more: eventleaf.com/e/ADPKD-9-2025
Learn more: eventleaf.com/e/ADPKD-9-2025
August 18, 2025 at 2:44 PM
PKD Foundation Center of Excellence, Columbia University Medical Center, is hosting an educational event on PKD Awareness Day! Join on Thursday, September 4 for a free virtual event designed to educate, empower, and connect the PKD community.
Learn more: eventleaf.com/e/ADPKD-9-2025
Learn more: eventleaf.com/e/ADPKD-9-2025
New developments are underway in the science of xenotransplantation! 🧵⬇️
August 6, 2025 at 2:20 PM
New developments are underway in the science of xenotransplantation! 🧵⬇️
Don’t miss our webinar, “Beyond the Kidneys – The Whole Body Impact of ADPKD,” happening tomorrow night! Gain expert insights into the latest KDIGO recommendations for ADPKD management.
Let us know you’re coming! pkdcure-org.zoom.us/webinar/regi...
Let us know you’re coming! pkdcure-org.zoom.us/webinar/regi...
August 5, 2025 at 2:26 PM
Don’t miss our webinar, “Beyond the Kidneys – The Whole Body Impact of ADPKD,” happening tomorrow night! Gain expert insights into the latest KDIGO recommendations for ADPKD management.
Let us know you’re coming! pkdcure-org.zoom.us/webinar/regi...
Let us know you’re coming! pkdcure-org.zoom.us/webinar/regi...
We are now accepting applications for PKD Foundation Research and Fellowship Grants! The deadline to apply is August 11, 2025. Learn more about the research areas we are soliciting for and how to apply 👇
pkdcure.org/research/gra...
pkdcure.org/research/gra...
July 9, 2025 at 2:41 PM
We are now accepting applications for PKD Foundation Research and Fellowship Grants! The deadline to apply is August 11, 2025. Learn more about the research areas we are soliciting for and how to apply 👇
pkdcure.org/research/gra...
pkdcure.org/research/gra...
Congratulations to our 2025 PKD Foundation research grant and fellowship recipients!
This year, we're proud to invest $2 million in ten research projects and three fellowships.
Explore this important research and it's impact at go.pkdcure.org/Social25Grants
This year, we're proud to invest $2 million in ten research projects and three fellowships.
Explore this important research and it's impact at go.pkdcure.org/Social25Grants
June 27, 2025 at 2:27 PM
Congratulations to our 2025 PKD Foundation research grant and fellowship recipients!
This year, we're proud to invest $2 million in ten research projects and three fellowships.
Explore this important research and it's impact at go.pkdcure.org/Social25Grants
This year, we're proud to invest $2 million in ten research projects and three fellowships.
Explore this important research and it's impact at go.pkdcure.org/Social25Grants
Did you know some of your other health issues may be caused by PKD? Outside of the kidneys, PKD can affect and cause damage to many other parts of the body. Learn more about the potential related health complications of PKD at pkdcure.org/about-the-di...
June 17, 2025 at 11:01 PM
Did you know some of your other health issues may be caused by PKD? Outside of the kidneys, PKD can affect and cause damage to many other parts of the body. Learn more about the potential related health complications of PKD at pkdcure.org/about-the-di...
Register for our upcoming webinar, to learn about...
➡️ Tolvaptan and other treatment options
➡️ Lifestyle and dietary changes that support kidney health
➡️ Strategies for pain management and mental well-being
➡️ The importance of a multidisciplinary care team
go.pkdcure.org/KDIGO2Social
➡️ Tolvaptan and other treatment options
➡️ Lifestyle and dietary changes that support kidney health
➡️ Strategies for pain management and mental well-being
➡️ The importance of a multidisciplinary care team
go.pkdcure.org/KDIGO2Social
June 16, 2025 at 3:26 PM
Register for our upcoming webinar, to learn about...
➡️ Tolvaptan and other treatment options
➡️ Lifestyle and dietary changes that support kidney health
➡️ Strategies for pain management and mental well-being
➡️ The importance of a multidisciplinary care team
go.pkdcure.org/KDIGO2Social
➡️ Tolvaptan and other treatment options
➡️ Lifestyle and dietary changes that support kidney health
➡️ Strategies for pain management and mental well-being
➡️ The importance of a multidisciplinary care team
go.pkdcure.org/KDIGO2Social
In Episode 2 of PKD Chronicles, we sit down with Lisa Smallwood Belk and Alix Piccirilli. They explore how the power of community, open communication, and self-advocacy can help people with PKD and their loved ones.
🎧 Listen now: go.pkdcure.org/Podcast2Social
🎧 Listen now: go.pkdcure.org/Podcast2Social
June 12, 2025 at 3:13 PM
In Episode 2 of PKD Chronicles, we sit down with Lisa Smallwood Belk and Alix Piccirilli. They explore how the power of community, open communication, and self-advocacy can help people with PKD and their loved ones.
🎧 Listen now: go.pkdcure.org/Podcast2Social
🎧 Listen now: go.pkdcure.org/Podcast2Social
Two bipartisan bills being considered in the 119th Congress would remove barriers to living organ donation and help reduce the kidney transplant waitlist.
Use the PKD Foundation’s pre-drafted message to contact your legislators today: p2a.co/uVBmkzi
Use the PKD Foundation’s pre-drafted message to contact your legislators today: p2a.co/uVBmkzi
June 10, 2025 at 8:45 PM
Two bipartisan bills being considered in the 119th Congress would remove barriers to living organ donation and help reduce the kidney transplant waitlist.
Use the PKD Foundation’s pre-drafted message to contact your legislators today: p2a.co/uVBmkzi
Use the PKD Foundation’s pre-drafted message to contact your legislators today: p2a.co/uVBmkzi
Part two of our four-part webinar series airs Tuesday, June 24.
Led by two PKD Foundation Centers of Excellence clinic directors, session two will focus on treatment options, lifestyle modifications, and mental well-being in PKD patients.
Register today at go.pkdcure.org/KDIGO2Social
Led by two PKD Foundation Centers of Excellence clinic directors, session two will focus on treatment options, lifestyle modifications, and mental well-being in PKD patients.
Register today at go.pkdcure.org/KDIGO2Social
June 9, 2025 at 2:15 PM
Part two of our four-part webinar series airs Tuesday, June 24.
Led by two PKD Foundation Centers of Excellence clinic directors, session two will focus on treatment options, lifestyle modifications, and mental well-being in PKD patients.
Register today at go.pkdcure.org/KDIGO2Social
Led by two PKD Foundation Centers of Excellence clinic directors, session two will focus on treatment options, lifestyle modifications, and mental well-being in PKD patients.
Register today at go.pkdcure.org/KDIGO2Social
Introducing our first-ever podcast series! Each episode of PKD Chronicles: Navigating Life with Polycystic Kidney Disease will explore stories, science, support, and resources for families impacted by PKD.
We can’t wait to share our new resource with you this Thursday, May 15!
We can’t wait to share our new resource with you this Thursday, May 15!
May 13, 2025 at 1:44 PM
Introducing our first-ever podcast series! Each episode of PKD Chronicles: Navigating Life with Polycystic Kidney Disease will explore stories, science, support, and resources for families impacted by PKD.
We can’t wait to share our new resource with you this Thursday, May 15!
We can’t wait to share our new resource with you this Thursday, May 15!
In our upcoming webinar, you’ll learn...
➡️ How ADPKD is diagnosed and what to monitor
➡️ Factors that impact disease severity
➡️ The genetics of ADPKD and when genetic testing is recommended
➡️ Ethical considerations and family planning
Register today at bit.ly/3XHwsuS
➡️ How ADPKD is diagnosed and what to monitor
➡️ Factors that impact disease severity
➡️ The genetics of ADPKD and when genetic testing is recommended
➡️ Ethical considerations and family planning
Register today at bit.ly/3XHwsuS
April 18, 2025 at 4:15 PM
In our upcoming webinar, you’ll learn...
➡️ How ADPKD is diagnosed and what to monitor
➡️ Factors that impact disease severity
➡️ The genetics of ADPKD and when genetic testing is recommended
➡️ Ethical considerations and family planning
Register today at bit.ly/3XHwsuS
➡️ How ADPKD is diagnosed and what to monitor
➡️ Factors that impact disease severity
➡️ The genetics of ADPKD and when genetic testing is recommended
➡️ Ethical considerations and family planning
Register today at bit.ly/3XHwsuS
Thank you, @nkf-professionals.bsky.social, for an awesome Spring Clinical Meetings in Boston! See you next year in NOLA👋🏼 #NKFClinicals
April 12, 2025 at 1:19 PM
Thank you, @nkf-professionals.bsky.social, for an awesome Spring Clinical Meetings in Boston! See you next year in NOLA👋🏼 #NKFClinicals