So no immediate avenue to continue working towards a better future for people living with Rheumatoid Arthritis. Disappointing of course but this is the game we play in academia, and I will just have to try again on a different path. This is too important to give up on!

... they were comfortable sharing gave me the the clearest justification as to why this research has to continue. This all follows on from the previous post: bsky.app/profile/pick...

I also found my first experience of using qualitative research methods (having spent 13.5 years employed as a statistician to the point of starting the interviews) was thoroughly enjoyable and entirely eye-opening. Whilst taking to the interviewees about a very niche topic, the stories ...

I found:
- There were no items or concepts missing that should be covered.
- There was some initial evidence of content validity for these items.
- General health and fatigue are separate to the construct of RA disease activity.

This is just the start. There is more refinement to come and more research I need to do.

Thank you to my excellent supervisors, clinical colleagues and PPI contributors Mike Horton, Karl Bang Christensen, Rhiannon Phillips, David Gillespie, Neil Mo, Janice Davies, Susan Campbell and Ernest Choy. And thank you to my colleagues at @ctrcardiffuni.bsky.social

- Adding to the result from my systematic review doi.org/10.1136/rmdo... no legacy RA DA PROMs have evidence of good measurement properties.

I found:
- the construct of RA Disease Activity can be measured using items from the Pain, Tenderness and swelling, Physical functioning, Disease Activity and Stiffness domains;
- General health and Disease activity items are not interchangeable within the Patient Global Assessment domain;