C. V.
phoenixskywind.bsky.social
C. V.
@phoenixskywind.bsky.social
CRPS Warrior. Healthcare advocate. Animal lover. Artist. Writer. Diabetic. Ambulatory Wheelchair User. She/her.
I had to stop doing that, myself. The depression hit way too hard on me.
March 13, 2025 at 12:37 PM
Far too many. Way too many of us.
March 12, 2025 at 12:43 PM
I was going every 6 weeks for mine when the clinic was still open. I hope they continue to help you.
February 16, 2025 at 3:32 PM
Ket is awesome for CRPS. At least it was for me. I just no longer have access to that. I was able to get IVIG because of Small Fiber Neuropathy, not CRPS. I've had CRPS for 26 years. I hope it helps you. You are not alone in this fight
February 16, 2025 at 11:14 AM
Intravenous Immunoglobulin is a treatment that involves administering purified antibodies (immunoglobulins) directly into the bloodstream through an intravenous infusion. It is used to boost the immune system and treat various conditions, including:
Autoimmune disorders, and
Immune deficiencies.
February 16, 2025 at 2:35 AM
I'm hoping so. This fall or next. Not sure yet.
February 7, 2025 at 11:12 PM
Love you too.
February 7, 2025 at 10:02 PM
I didn't post it on FB. IVIG helps with autoimmune disorders, CRPS, Neuropathy and Small Fiber Neuropathy. All of which I have. So far I can walk better than before. Its incredible.
February 7, 2025 at 9:48 PM
It's ok Twinnie. It's helping
February 7, 2025 at 9:38 PM