Pharos & Thread - Lighting Healthcare Mazes
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pharosthread.bsky.social
Pharos & Thread - Lighting Healthcare Mazes
@pharosthread.bsky.social
Illuminating pathways through healthcare's labyrinth. Strategic navigation meets unwavering advocacy. East Bay-based, transforming medical bureaucracy into navigable terrain. #PatientAdvocacy #HealthcareNavigation #SystemsThinking #LightingTheWay
Healthcare navigation shouldn't be a privilege. Let's change that together!

#LightingTheWay #LaunchWeek
April 15, 2025 at 10:18 PM
If you'd like to support this launch:

- Venmo any amount to @PharosAndThread
- Check out our $50 Neurodivergent Navigation Package (with resources customized to YOUR location)
- Reach out about equity investment if you're interested in deeper involvement
April 15, 2025 at 10:18 PM
Today's mission: Raise $850 by midnight to secure our foundation.

The honest truth: Building this from scratch hasn't been easy, especially these last six months. But those challenges have only clarified the importance of creating navigation systems for others facing their own complex situations.
April 15, 2025 at 10:18 PM
And if you like the science...

We're also on:

Substack: substack.com/@pharosthrea...

Both articles are live today 4/9/25 by 12pm PST!!!

Join the conversation here and tell us YOUR stories about chasing your own records 👇
Home | Substack
Discover and discuss great writing with the world’s smartest readers on Substack.
substack.com
April 9, 2025 at 9:55 AM
These aren't just academic differences. They're real barriers affecting real people!!

Read our work at:

Medium: medium.com/the-lighthou...
The Lighthouse: Healthcare Navigation Insights
Illuminating the path through healthcare’s complexity. Here you’ll find expert guidance, practical tools, and essential insights to help patients and caregivers navigate medical systems with confidenc...
medium.com
April 9, 2025 at 9:55 AM
Yet on Substack today, our "50-State Record Access Analysis" reveals how dramatically these rights vary in practice. California patients can get records in 15 days with costs capped at $250, while identical requests in other states might take twice as long and cost 4x more.
April 9, 2025 at 9:55 AM
The most powerful insight? HIPAA isn't just about restricting information—it's about giving YOU control over your health data. You have the right to access, correct, and direct how your information is shared.
April 9, 2025 at 9:55 AM
After guiding hundreds of patients through healthcare bureaucracy, I've distilled what HIPAA actually means for your everyday healthcare decisions.
April 9, 2025 at 9:55 AM