Patients for Patient Safety US
LightNews LightNews
banner
pfps-us.bsky.social
Patients for Patient Safety US
@pfps-us.bsky.social
260 followers 130 following 170 posts
PFPS US is a network of people and organizations aligned with the WHO and focused on making healthcare safe in the United States. Led by people who have experienced medical error, we are activated to advance the Global Patient Safety Action Plan 2021-2030
Posts Replies Media Videos
pfps-us.bsky.social
"The most powerful force comes from the patient and caregiver community." —Patricia McGaffigan, @ihi.org, on World Patient Safety Day 2025.
slide from the world patient safety day presentation from today, Sept. 17. Patricia McGaffigan and Jafet Arrieta talked about IHI's project with St Jude Global to achieve at least a 60% survival rate among children with cancer by 2030. The slide is titled Patients are the North Star.
September 17, 2025 at 5:54 PM
pfps-us.bsky.social
Join PFPS US co-founder Carole Hemmelgarn and Evan Benjamin of UW Medicine for a conversation about how language matters in responding to patients after harm on July 22 at 1:00 EST: washington.zoom.us/webinar/regi...
The Power and Pain of Words: How Language Matters in Responding to Patients after Harm. Photos of speakers Carole Hemmelgarn and Evan Benajmin
July 15, 2025 at 6:54 PM
pfps-us.bsky.social
Earlier this month, Sue Sheridan was on a plenary panel with colleagues Albert Wu and Laura Zwann for the 7th Global Ministerial Summit on Patient Safety in Manila, Philippines. She addressed the steps we need to take to leverage the promise of how patients can use AI.
Photo of Sue Sheridan with colleagues Albert Wu and Laura Zwann Image from slide: how can we leverage the promise of patients using AI? 1. Help patients, the largest workforce out there, to help themselves responsibly. 2. Ensure that clinicians are trained to communicate more effectively with patients about their use of AI 3. Change to a culture that celebrates informed patients 4. Encourage health systems to adopt strategies to meet evolving patient use of AI. 5. Build AI systems with patient rights, privacy preferences, and interests by engaging them in co-development and governance to ensure that safety is number one.
April 28, 2025 at 7:27 PM
pfps-us.bsky.social
The Emergency Care Research Institute (ECRI) published their 2025 top 10 of patient safety concerns: Number 1 on the list: Dismissing patient, family, and caregiver concerns.
Top 10 pressing patient safety challenges in 2025 1. Dismissing patient, family, and caregiver concerns 2. Insufficient governance of AI 3. Spread of medical misinformation 4. Cybersecurity breaches 5. Caring for veterans in non-military health settings 6. Substandard and falsified drugs 7. Diagnostic errors in cancers, vascular events, and infections 8. Healthcare associated infections in long-term care facilities 9. Inadequate coordination during patient discharge 10. Deteriorating working conditions in community pharmacies
March 11, 2025 at 6:33 PM
pfps-us.bsky.social
Available now! AI and Me: How Technology Led to the Right Diagnosis. Sue Sheridan shares her experience in how AI assisted her after her first trip to the emergency department didn't result in getting the help she needed for Bell's palsy: www.pfps.us/activities
A graph showing Sue's experience in trying to get help in the hospital: going to the ER, being told to use "benign neglect" regarding her symptoms, and being told "we don't diagnose in the ER," and how the outcome was continued pain and worsening symptoms
February 27, 2025 at 7:32 PM
pfps-us.bsky.social
The goal of Project PIVOT is to integrate new survey questions related to patient safety, diagnostic safety & discrimination/bias that have been identified and prioritized by patients into standard national surveys to improve care. Visit us to add your input to our form:
www.pfps.us/project-pivot
Funnel graph showing the process for Project PIVOT: Phase 1-build community and learn from patients about what matters to them; Phase 2: propose survey questions for inclusion, Phase 3: prioritize with stakeholders such as advocacy organizations, publishers, research, payers, and health systems
November 19, 2024 at 8:54 PM
pfps-us.bsky.social
Healthcare professionals: Have you ever wondered how best to talk with patients on topics related to radiation in imaging or therapy, or how to balance between patient agency and provider expertise? Take the Let’s Talk Radiation Risk Professional Survey: www.aapm.org/patientsurvey/
photo of x-ray image showing torso and head
October 4, 2024 at 4:29 PM
pfps-us.bsky.social
Do you want to honor a loved one who is no longer with us due to unsafe care? If you can’t join us for the World Patient Safety Day Summit from Sept. 15-17, you can request a flag with the person’s name on it to be posted when we meet in DC. Learn more and request a flag here: www.pfps.us/wpsd-2024
Image of the Capitol building in DC with the words WPSD 2024 Request a Flag over it. The lawn is covered in hundreds of small orange flags with the names of those being honored.
August 13, 2024 at 5:00 PM
pfps-us.bsky.social
Why is patient safety important? According to Johns Hopkins, up to 800,000 people die or are disabled each year due to missed or delayed diagnosis. Join us today to learn more and come to our summit in DC if you can! www.pfps.us/wpsd-2024
Graph text: experts from Johns hopkins estimate that up to 800,000 people die or are disabled annually from missed or delayed diagnosis. More than half of the US population will suffer at least one wrong or delayed diagnosis during their lifetime
August 12, 2024 at 10:15 PM
pfps-us.bsky.social
The World Patient Safety Day Summit is just 57 days away! There's still time to join us in Washington DC to meet with legislators to advocate for safer care and attend a remembrance ceremony for those impacted by unsafe care. Check out the details: www.pfps.us/wpsd-2024
Don't miss this opportunity to be a difference maker ACT NOW DC Rally and Summit, Sept 15-17. Join Patients for Patient Safety US to push for patient safety, health equity, and diagnostic excellence
July 20, 2024 at 8:21 PM
pfps-us.bsky.social
More than half of people in the US will suffer at least one wrong or delayed diagnosis, and 84% of docs have observed colleagues taking dangerous shortcuts: learn more about the issues we're addressing: www.pfps.us/wpsd-2024
Experts at Johns Hopkins estimate that up to 800,000 people die or become disabled from missed or delayed diagnosis. The Office of Inspector General revealed that between 25 and 30% of Medicare recipients are harmed by unsafe care, and adverse outcomes disproportionately affect people experiencing social marginalization.
July 3, 2024 at 7:28 PM
pfps-us.bsky.social
The WHO launched a Patient Safety Rights Charter at the Global Ministerial Summit on Patient Safety in Santiago, Chile, and PFPS US co-founder Sue Sheridan was there to discuss diagnostic safety in a plenary session! Read more about the initiative here: www.who.int/frenchpolyne...
Sue Sheridan on the stage at the Global Ministerial Summit on Patient Safety
April 23, 2024 at 3:21 PM
pfps-us.bsky.social
Despite years of "patient safety improvement" initiatives, ~134 million adverse events occur globally each year. Project PIVOT will collect patient reported experiences and will engage healthcare system leaders to prioritize patient safety. www.pfps.us/project-pivot
Project PIVOT activity: form an advisory committee to review existing patient reported experiences, collect input from diverse patient organizations and individuals, analyze results, and host a series of planning discussions to make recommendations to improve patient outcomes.
April 16, 2024 at 9:03 PM