Pediatric Palliative Care Coalition
pedpalcc.bsky.social
Pediatric Palliative Care Coalition
@pedpalcc.bsky.social
PPCC is a nonprofit coalition that provides education and resources to families and medical professionals caring for children with life limiting illness
Here are 3 different ways you can help:

🧡Make a donation today. ow.ly/Z7xJ50UamOx

💙💙Host your own virtual fundraiser through our donation platform, Give Lively. secure.givelively.org/donate/pedia...

💜💜💜Subscribe to the PPC Webinar Series. www.ppcwebinars.org

We are thankful for all you do!
November 25, 2025 at 3:40 PM
Registration for the 2026 PPC Webinar Series Opens December 1!

This series is designed to raise the visibility of pediatric palliative care to help families & caregivers & to build clinicians’ competencies & confidence in providing care to children.

mailchi.mp/ppcc-pa/2024...
November 10, 2025 at 3:19 PM
Register for the Nov 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System.

Dr. Chrissy Salley, from @CourageousCPN will facilitate a panel discussion among a group of fathers.

mailchi.mp/ppcc-pa/regi...

#pedpc #pedspc #hapc #hpm
November 3, 2025 at 9:28 PM
Register for today's PPC Webinar - Using Photo-Narratives to Enhance Humanistic Care.

In this webinar, presenters will explore what photo-narratives are and how they have been used in serious illness care for children and families.

mailchi.mp/ppcc-pa/regi...
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#pedpc #pedspc #hapc #hpm
October 21, 2025 at 1:35 PM
October 10 Webinar: Navigating Periviable Birth

Explore survival, outcomes, and NICU care for infants at the edge of viability. Learn about ethical challenges, emerging treatments, and the role of palliative care in supporting families and care teams.

www.ppcwebinars.org/deeper-dive
October 6, 2025 at 8:30 PM
Join us for a 3-part Deeper Dive into Ethics in Perinatal and Neonatal Care with presenters, Dr. Brian Carter, Dr. Christopher Collura and Dr. Robert Macauley.

October 3rd, 10th and 17th, 12pm ET.

www.tfaforms.com/5164780

#pedpc #pedspc #hapc #hpm #medicine #neonatal #perinatal
September 24, 2025 at 5:25 PM
PPCC is excited to announce the launch of the LANTERN Initiative, providing peer support to PA families of children with medical complexity and intellectual/developmental disabilities as part of the new Resource Matching Program.

Learn more and get involved today!

www.ppcc-pa.org/resource-mat...
September 22, 2025 at 3:48 PM
There is still time to register for the Sept PPC Webinar - Living in the Gray: A Case Series of "Everything But" for the Chronically, Critically Ill Child and Their Families.

This webinar will discuss compassionate strategies for aligning with families and overcoming barriers.

www.ppcwebinars.org
September 12, 2025 at 1:36 PM
Betsy Hawley was featured on the Remembering a Life podcast.

This caring conversation focused on how to help ensure families have the resources and support they need while caring for a child at end of life and honoring that child in meaningful ways.

www.rememberingalife.com/blogs/podcas...
August 26, 2025 at 9:09 PM
Our next PPCC Firefly Chat, Managing Pediatric Complex Care, will highlight the importance of communication, collaboration and strategies to support patients and families.

Firefly Chats are FREE, but registration is required.

Learn more and register at www.ppcc-pa.org/firefly-chat
August 5, 2025 at 5:14 PM
We're excited and honored to be part of this quarter’s Register Round-Up at the East End Food Co-op!

Betsy had a great time today connecting with Co-op patrons, sharing the heart behind our mission and the impact of our programs.
July 18, 2025 at 8:58 PM
There is STILL TIME to register for the June 2025 PPC Webinar - Addressing Health Equity and Racism in Pediatric Serious Illness.

Presenters will discuss ways health inequalities impact children facing serious illness.

mailchi.mp/ppcc-pa/regi...
June 16, 2025 at 6:30 PM
PPCC is excited to announce the launch of the Resource Matching Program!

We are looking for Pennsylvania-based participants for our pilot program which will connect families with reliable resources, aiming to reduce the burdens on caregivers.

To sign up, visit docs.google.com/forms/d/e/1F...
May 20, 2025 at 2:23 PM
The March 2025 PPCC Newsletter is now available!

This edition focuses on pediatric palliative care, hospitalizations and music therapy and features an article by Nicole Steele, MS, MT-BC, NICU-MT.

We hope you will take a few minutes to check it out!

mailchi.mp/ppcc-pa/ppcc...
March 24, 2025 at 9:09 PM
*NEW* PPC Webinar Series Presents - Deeper Dive

Join us for a 3-part series which will take a Deeper Dive into pediatric pain and symptom management with presenter Melissa Hunt, PharmD, BCPPS.

This program will take place over 3 consecutive weeks in April. Noon-1:00pm ET

www.tfaforms.com/5164780
March 11, 2025 at 8:33 PM
Register now for the March 2025 PPC Webinar - Medical Cannabis Therapy in Pediatric Palliative Care presented by Sarah Friebert, MD.

In this presentation, Dr. Friebert will outline the use and monitoring of medical cannabis therapy in a pediatric palliative care clinic.

mailchi.mp/chpcc.org/re...
March 3, 2025 at 5:08 PM
The February 2025 PPCC Newsletter is now available!

This edition focuses on the role of social work in pediatric palliative care and features an article by Stacy S. Remke, MSW, LICSW, APHSW-C.

We hope you will take a few minutes to check it out!

mailchi.mp/ppcc-pa/ppcc...
February 24, 2025 at 11:30 PM
Join us for our upcoming PPCC Firefly Chat on Tuesday, February 12th - A Discussion on POLST Forms for the Pediatric Patient in the Home Setting.

Firefly Chats are free, but registration is required.

For more information and to register, visit mailchi.mp/ppcc-pa/ppcc...
January 31, 2025 at 1:08 AM
The January 2025 PPCC Newsletter is now available!

This edition focuses on Communicating with Adolescents and features an article on motivational interviewing by Rachel Kentor, Ph.D.

We hope you will take a few minutes to check it out!

You can find it here: mailchi.mp/ppcc-pa/ppcc...
January 24, 2025 at 4:54 PM