Ellie
@pdmama.bsky.social
From the mighty North East, living in Surrey. Mother of 2. Dx #yopd 2013 aged 29. DBS Jan 2024, removal June 2024. Re-implantation imminent...
Yes, it is real. I used it as a rescue remedy of sorts when my dyskinesia was particularly bad. It's not a cure or permanent relief, but it worked for me. I've just had DBS...
December 6, 2024 at 3:48 PM
Yes, it is real. I used it as a rescue remedy of sorts when my dyskinesia was particularly bad. It's not a cure or permanent relief, but it worked for me. I've just had DBS...
40 here, dx at 29. 👋
2 kids post-dx. Had DBS in Jan, had it removed in June (infection, open head wound), having it again soon. Let's hope 3rd brain surgery this year is the last for a while!
2 kids post-dx. Had DBS in Jan, had it removed in June (infection, open head wound), having it again soon. Let's hope 3rd brain surgery this year is the last for a while!
November 16, 2024 at 11:16 PM
40 here, dx at 29. 👋
2 kids post-dx. Had DBS in Jan, had it removed in June (infection, open head wound), having it again soon. Let's hope 3rd brain surgery this year is the last for a while!
2 kids post-dx. Had DBS in Jan, had it removed in June (infection, open head wound), having it again soon. Let's hope 3rd brain surgery this year is the last for a while!