Patrick Tsui
@patricktsui-uk.threads.net.ap.brid.gy
I wish I was clever enough to have my own views but I'm sharing them here anyway...
🌉 bridged from https://threads.net/@patricktsui_uk/ on the fediverse by https://fed.brid.gy/
🌉 bridged from https://threads.net/@patricktsui_uk/ on the fediverse by https://fed.brid.gy/
I saw it in the lobby of a cinema I was at
December 27, 2025 at 5:04 PM
I saw it in the lobby of a cinema I was at
I was unsuccessful in getting our local authority social services to do a meaningful reassessment of my mum's care needs in time before she died. They didn't see the urgency.
July 16, 2025 at 8:10 PM
I was unsuccessful in getting our local authority social services to do a meaningful reassessment of my mum's care needs in time before she died. They didn't see the urgency.
The sad thing for me is that my understanding is that the film and the book show CBD as a slow progression with the ability to do a range of activities after a long time frame.
July 16, 2025 at 8:09 PM
The sad thing for me is that my understanding is that the film and the book show CBD as a slow progression with the ability to do a range of activities after a long time frame.
When people asked me what PSP was I described it as Parkinson's on steroids. Be interested to hear your views on how these illnesses are depicted in films and books. And how accurate they should be to real life experiences
July 16, 2025 at 8:09 PM
When people asked me what PSP was I described it as Parkinson's on steroids. Be interested to hear your views on how these illnesses are depicted in films and books. And how accurate they should be to real life experiences
I am hopeful that over the next few days and weeks that @teampspa can explain to a wider audience what people diagnosed with severe CBD and PSP have to face
July 9, 2025 at 7:27 PM
I am hopeful that over the next few days and weeks that @teampspa can explain to a wider audience what people diagnosed with severe CBD and PSP have to face
The key paragraph from the 2013 letter is here with the last sentence explaining why my experience is very different to the author's husband
July 9, 2025 at 7:11 PM
The key paragraph from the 2013 letter is here with the last sentence explaining why my experience is very different to the author's husband
I didn't realise that The Observer article isn't behind a pay wall
https://observer.co.uk/news/national/article/the-real-salt-path-how-the-couple-behind-a-bestseller-left-a-trail-of-debt-and-deceit
https://observer.co.uk/news/national/article/the-real-salt-path-how-the-couple-behind-a-bestseller-left-a-trail-of-debt-and-deceit
The real Salt Path: how a blockbuster book and film were ...
Penniless and homeless, the Winns found fame and fortune with the story of their 630-mile walk to salvation. We can reveal that the truth behind it is ve...
observer.co.uk
July 9, 2025 at 5:46 AM
I didn't realise that The Observer article isn't behind a pay wall
https://observer.co.uk/news/national/article/the-real-salt-path-how-the-couple-behind-a-bestseller-left-a-trail-of-debt-and-deceit
https://observer.co.uk/news/national/article/the-real-salt-path-how-the-couple-behind-a-bestseller-left-a-trail-of-debt-and-deceit
I am glad @teampspa have distanced themselves from The Salt Path story
https://www.pspassociation.org.uk/news/pspas-response-to-the-observer-article/
https://www.pspassociation.org.uk/news/pspas-response-to-the-observer-article/
PSPA’s response to The Observer article
www.pspassociation.org.uk
July 8, 2025 at 8:09 PM
I am glad @teampspa have distanced themselves from The Salt Path story
https://www.pspassociation.org.uk/news/pspas-response-to-the-observer-article/
https://www.pspassociation.org.uk/news/pspas-response-to-the-observer-article/
We needed help from our social services quickly not slowly.
July 8, 2025 at 8:08 PM
We needed help from our social services quickly not slowly.
I have heard PSP being called Parkinson's on steroids. It is a very rapid degenerative condition. If this book / film suggests that the condition can be slowed is really upsetting to me.
July 8, 2025 at 8:08 PM
I have heard PSP being called Parkinson's on steroids. It is a very rapid degenerative condition. If this book / film suggests that the condition can be slowed is really upsetting to me.
When my mum was told by her neurologist that in his opinion it was most likely PSP was the condition (there is no definitive way to confirm PSP) it was really difficult to make our local authority understand the serious of her situation
July 8, 2025 at 8:08 PM
When my mum was told by her neurologist that in his opinion it was most likely PSP was the condition (there is no definitive way to confirm PSP) it was really difficult to make our local authority understand the serious of her situation
Seeing that @teampspa were taking part in the launch of the film gave me hope that something positive would come out of this.
July 8, 2025 at 8:08 PM
Seeing that @teampspa were taking part in the launch of the film gave me hope that something positive would come out of this.
Both are rare conditions which aren't really well known in the care and health community. I was hoping that the film of the book would raise awareness.
July 8, 2025 at 8:07 PM
Both are rare conditions which aren't really well known in the care and health community. I was hoping that the film of the book would raise awareness.
I had never heard about The Salt Palt until recently when the film came out. CBD, as I understand it, is in the same family of neurological conditions as PSP which my mum was diagnosed with.
July 8, 2025 at 8:07 PM
I had never heard about The Salt Palt until recently when the film came out. CBD, as I understand it, is in the same family of neurological conditions as PSP which my mum was diagnosed with.
