Amy Cufflin
@particlequeen.bsky.social
Thank you for giving your best in this most traumatic of advent endeavours. Merry Christmas!
December 24, 2025 at 5:55 PM
Thank you for giving your best in this most traumatic of advent endeavours. Merry Christmas!
I'd have given you the point for any repeated animal in a teacup! Alas!!
December 18, 2025 at 12:26 PM
I'd have given you the point for any repeated animal in a teacup! Alas!!
There's still time to pull it back from the brink of oblivion! I believe in you!!
December 10, 2025 at 9:27 PM
There's still time to pull it back from the brink of oblivion! I believe in you!!
At least its scarf is blue! Some consistency there...
December 9, 2025 at 7:01 PM
At least its scarf is blue! Some consistency there...
This just made me giggle a lot.
November 30, 2025 at 12:00 AM
This just made me giggle a lot.
We get by better a lot of others in this situation. Long Covid comes in many forms with over 200 known symptoms, there won't be a single cure. I hope that some form of treatments can be found before too long that will help.
#LongCovid #longcovidawarenessday
#longcovidawareness
#LongCovid #longcovidawarenessday
#longcovidawareness
March 15, 2025 at 5:01 PM
We get by better a lot of others in this situation. Long Covid comes in many forms with over 200 known symptoms, there won't be a single cure. I hope that some form of treatments can be found before too long that will help.
#LongCovid #longcovidawarenessday
#longcovidawareness
#LongCovid #longcovidawarenessday
#longcovidawareness
He forces himself to go for a 10-15 minute walk every day for his mental wellbeing, even if that too causes him to crash afterwards (this is called PEM - post-exertional malaise). Getting used to this being our new way of life - for now - is really hard for both of us.
March 15, 2025 at 5:00 PM
He forces himself to go for a 10-15 minute walk every day for his mental wellbeing, even if that too causes him to crash afterwards (this is called PEM - post-exertional malaise). Getting used to this being our new way of life - for now - is really hard for both of us.
He hasn't driven in over a year. Just having a phone conversation with a close friend or even me can leave him "crashing" for a couple of hours after.
March 15, 2025 at 5:00 PM
He hasn't driven in over a year. Just having a phone conversation with a close friend or even me can leave him "crashing" for a couple of hours after.
We still go to gigs, but mostly stick to seated venues, as standing for long periods is out. (His favourite venue reserves a seat for him every time he goes.)
March 15, 2025 at 5:00 PM
We still go to gigs, but mostly stick to seated venues, as standing for long periods is out. (His favourite venue reserves a seat for him every time he goes.)
Now Alex is barely managing to work (from home) a few hours a week. Brain fog and neurological issues mean that simple things suddenly take way longer due to the cognitive load.
March 15, 2025 at 4:59 PM
Now Alex is barely managing to work (from home) a few hours a week. Brain fog and neurological issues mean that simple things suddenly take way longer due to the cognitive load.
There is no cure or treatment. Currently, government budget cuts are seeing Long Covid clinics and research being defunded because "the pandemic is over".
March 15, 2025 at 4:58 PM
There is no cure or treatment. Currently, government budget cuts are seeing Long Covid clinics and research being defunded because "the pandemic is over".
Eventually, he was diagnosed with Long Covid and referred to UCH (University College Hospital, London) where there are various studies going on to understand this illness and what to do about it.
March 15, 2025 at 4:58 PM
Eventually, he was diagnosed with Long Covid and referred to UCH (University College Hospital, London) where there are various studies going on to understand this illness and what to do about it.
It was only after the second time we both got Covid a year later that we started to wonder if this was Long Covid. The periods of complete exhaustion got longer and longer. His daily walks got shorter and shorter.
March 15, 2025 at 4:56 PM
It was only after the second time we both got Covid a year later that we started to wonder if this was Long Covid. The periods of complete exhaustion got longer and longer. His daily walks got shorter and shorter.
But various symptoms kept popping up for him over the following months, like his existing IBS flaring up, or being really tired so that he'd spend a week or two feeling exhausted, then be OK again for a while.
March 15, 2025 at 4:56 PM
But various symptoms kept popping up for him over the following months, like his existing IBS flaring up, or being really tired so that he'd spend a week or two feeling exhausted, then be OK again for a while.
Funding cuts mean people with LC across the country are being left with no support at all, as LC clinics are shut down. People are often surprised to hear that LC is more than just feeling a bit tired and breathless now and then. For millions of people, #Covid is not over.
March 9, 2025 at 6:02 PM
Funding cuts mean people with LC across the country are being left with no support at all, as LC clinics are shut down. People are often surprised to hear that LC is more than just feeling a bit tired and breathless now and then. For millions of people, #Covid is not over.
Thank you for your fearless leadership through this most difficult of advent times!
December 24, 2024 at 3:43 PM
Thank you for your fearless leadership through this most difficult of advent times!
Can we be sure you weren't right to start with and this is just Santa's last-ditch attempt to free himself from the evil tots' clutches???
December 21, 2024 at 6:00 PM
Can we be sure you weren't right to start with and this is just Santa's last-ditch attempt to free himself from the evil tots' clutches???
But that's definitely an angel!
December 14, 2024 at 9:09 PM
But that's definitely an angel!