PaPaCarl
@papaherz.bsky.social
I’m a Grandpa who loves his kids and grandkids and enjoys living life in Southern California.
#autism #advocacy
https://cureclcn6.org
#autism #advocacy
https://cureclcn6.org
This is my grandson Paxton’s special ed class. This is the sublime work done by special ed teachers paid for by the federal funding the Trump Administration is cutting. Please watch.
October 16, 2025 at 6:39 AM
This is my grandson Paxton’s special ed class. This is the sublime work done by special ed teachers paid for by the federal funding the Trump Administration is cutting. Please watch.
Reposted by PaPaCarl
Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry!
www.cbsnews.com/losangeles/n...
www.cbsnews.com/losangeles/n...
Family raises money for son's gene therapy and clinical trial to treat rare genetic mutation
Paxton Purdy's parents said he has an ultra-rare neurodegenerative genetic mutation. They hope they can raise enough money to cure it and help children in similar situations.
www.cbsnews.com
August 8, 2025 at 4:31 PM
Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry!
www.cbsnews.com/losangeles/n...
www.cbsnews.com/losangeles/n...
Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry!
www.cbsnews.com/losangeles/n...
www.cbsnews.com/losangeles/n...
Family raises money for son's gene therapy and clinical trial to treat rare genetic mutation
Paxton Purdy's parents said he has an ultra-rare neurodegenerative genetic mutation. They hope they can raise enough money to cure it and help children in similar situations.
www.cbsnews.com
August 8, 2025 at 4:31 PM
Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry!
www.cbsnews.com/losangeles/n...
www.cbsnews.com/losangeles/n...
Reposted by PaPaCarl
Reposted by PaPaCarl
Reposted by PaPaCarl
Watching my grandson, Paxton, win his race in the Special Olympics helps too!
March 22, 2025 at 5:18 AM
Watching my grandson, Paxton, win his race in the Special Olympics helps too!
Reposted by PaPaCarl
Reposted by PaPaCarl
Dropkick Murphys
Warped Tour Long Beach
Warped Tour Long Beach
July 28, 2025 at 11:46 PM
Dropkick Murphys
Warped Tour Long Beach
Warped Tour Long Beach
Reposted by PaPaCarl
What if MAGA types weren’t allowed to vote unless they passed a civics test similar to one immigrants have to pass to become citizens. We’d have a healthcare system that could save my beautiful grandson!
July 14, 2025 at 8:07 AM
What if MAGA types weren’t allowed to vote unless they passed a civics test similar to one immigrants have to pass to become citizens. We’d have a healthcare system that could save my beautiful grandson!
Reposted by PaPaCarl
Hugs from Paxton’s little friends at a CureCLCN6.org fundraiser.
July 13, 2025 at 4:55 PM
Hugs from Paxton’s little friends at a CureCLCN6.org fundraiser.
Reposted by PaPaCarl
Great story about my grandson Paxton on a very prominent neuroscience website! Please read and share! Thanks!
www.neurologyadvisor.com/features/rar...
www.neurologyadvisor.com/features/rar...
Child’s Rare Neurodegenerative Disease Fuels Therapy Innovation: Paxton’s Story
The Purdy family shares their insights on navigating their child’s rare neurodegenerative disease and their direct involvement in therapy research.
www.neurologyadvisor.com
July 22, 2025 at 3:04 AM
Great story about my grandson Paxton on a very prominent neuroscience website! Please read and share! Thanks!
www.neurologyadvisor.com/features/rar...
www.neurologyadvisor.com/features/rar...
Reposted by PaPaCarl
The idiot in chief strikes again!! 🤣🤣
July 25, 2025 at 8:01 PM
The idiot in chief strikes again!! 🤣🤣
Reposted by PaPaCarl
Hey Scotland keep a close eye on your kids!
July 26, 2025 at 1:55 AM
Hey Scotland keep a close eye on your kids!
Reposted by PaPaCarl
I’m still trying to figure out what bible MAGA evangelicals are reading…you know stuff about a rich man, camel and a needle eye. Maybe conservative justices, Elon Musk, Donald Trump, or Peter Thiel know.
July 22, 2025 at 1:52 PM
I’m still trying to figure out what bible MAGA evangelicals are reading…you know stuff about a rich man, camel and a needle eye. Maybe conservative justices, Elon Musk, Donald Trump, or Peter Thiel know.