PANS PANDAS UK
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panspandasuk.bsky.social
PANS PANDAS UK
@panspandasuk.bsky.social
UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.
Help your family to reconnect following a flare of PANS or PANDAS symptoms.

Vicky Queralt, Clinical Psychologist, suggests a variety of strategies to support everyone affected: panspandasuk.org/wp-content/uploads/2025/05/Reconnecting-2.pdf
June 5, 2025 at 10:15 AM
Calling all paediatric dentistry professionals!

PANS PANDAS UK are speaking at the @bspduk summer event, June 6th.

events.teams.microsoft.com/event/129271...
June 3, 2025 at 8:17 AM
Did you know that PANS and PANDAS are medical conditions that affect children or young people in school?

A summary guide for health professionals is available to download: panspandasuk.org/wp-content/uploads/2024/05/A-guide-for-Health-Professionals-Education-and-PANS-PANDAS-DIGITAL-VERSION.pdf
June 2, 2025 at 2:39 PM
Join our informative webinar for parents and carers to learn what to expect during the EHC assessment process in the context of PANS or PANDAS

Led by experienced SEN Solicitor Eleanor Wright, in collaboration with SOS!SEN

🔗 Register: panspandasuk.org/wp-content/uploads/2025/05/webinar-guide-1.pdf
May 29, 2025 at 12:41 PM
Our next teacher training session is on the 11th of June.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation
May 28, 2025 at 7:58 AM
If you are a paediatric dentist and are unaware of how dental concerns can exacerbate symptoms in young people with PANS or PANDAS, join this @bspdofficial.bsky.social event:  events.teams.microsoft.com/event/129271...
May 28, 2025 at 7:54 AM
Join the @nicecomms.bsky.social Prioritisation board to share your crucial perspective on topics that affect parents, carers and families affected by ill health: www.nice.org.uk/get-involved...
May 28, 2025 at 7:41 AM
Current Education reforms could negatively impact children and young people with PANS and PANDAS.

Find out what PANS PANDAS UK are doing to ensure our voices are heard: panspandasuk.org/post/protecting-vulnerable-voices
May 22, 2025 at 10:27 AM
Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education.

PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat
May 19, 2025 at 1:42 PM
Our next teacher training session is TONIGHT.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation
May 19, 2025 at 11:42 AM
If you've ever felt this way, our Youth Advisory Board is the space for you.

Speak out and be heard today: panspandasuk.org/youth-adviso...
May 12, 2025 at 8:39 AM
Two weeks until the next teacher training session on 19th May

See all our upcoming events here: panspandasuk.org/events
May 5, 2025 at 4:13 PM
The absence of UK clinical guidelines for PANS and PANDAS hinders access to prompt, accurate assessment, diagnosis and treatment and creates a postcode lottery for patients: panspandasuk.org/post/work-continues-apace-on-development-of-clinical-guidelines
May 2, 2025 at 1:52 PM
Our PANS PANDAS APPG met again this year to discuss securing prompt and accurate assessment, diagnosis and treatment on the NHS for everyone affected by PANS and PANDAS.

Find out more, and discover how to get your MP involved: panspandasuk.org/post/pans-pa...
May 1, 2025 at 2:17 PM
Calling all MPs! Join us on Wednesday to hear from leading experts about PANS and PANDAS, the misunderstood neuropychiatric conditions affecting children in your constituency.
Find out more: panspandasuk.org/post/pans-pa...
April 28, 2025 at 3:27 PM
Don't miss out; the next edition of our community newsletter will be sent soon!

Sign up today for the latest health, education, and community news, as well as important updates about PANS and PANDAS - panspandasuk.org/support-resources/sign-up-to-our-newsletter/
April 3, 2025 at 7:38 AM
Thank you to everyone who joined us at the RCPCH conference.

Clinical and patient experts came together to advocate for improved care for everyone affected by PANS and PANDAS. #RCPCH2025

Find out more: panspandasuk.org/post/perspectives-on-pans-and-pandas-at-rcpch-2025
April 3, 2025 at 7:36 AM
PANS PANDAS UK in partnership with SOSSEN is delighted to be hosting an upcoming education webinar about #PANS and #PANDAS, for both families and professionals wanting to learn more.

Please share with any relevant networks.

#SEND #Teachers #SENDParents #EducationMatters #TeacherTraining
March 27, 2025 at 11:10 AM
PANS PANDAS UK in partnership with SOSSEN is delighted to be hosting an upcoming education webinar about #PANS and #PANDAS, for both families and professionals wanting to learn more.

Please share with any relevant networks.

#SEND #Teachers #SENDParents  #EducationMatters #TeacherTraining
March 21, 2025 at 8:40 AM
Our next teacher training session is on 19 March.

📅 Date: 19 March
🎟 Register now: panspandasuk.org/events/

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education.

#TeacherTraining #PANS #PANDAS #SEN #InclusiveEducation
March 18, 2025 at 3:21 PM
Still time to register! Upcoming free #PANS and #PANDAS training for Educational psychologists in conjunction with Reed on Tuesday March 18th, 12.00-13.30pm.

events.teams.microsoft.com/event/49d16a...
 
#EdPsych
#Psychology
#Education
#EdChat
#EdTech
#Learning
#TeacherTraining
March 14, 2025 at 1:12 PM
UK parents/carers of children with OCD – we need your input!

We’re working with the COrUS team University of Manchester on vital research (funded by NIHR) to improve support for families.

Take this short, anonymous survey (10 mins):
www.qualtrics.manchester.ac.uk/jfe/form/SV_...
March 7, 2025 at 9:38 AM
Upcoming Teacher Training: Supporting Children with PANS & PANDAS in Education Settings

Join us on 19th March 2025, from 16:00 - 17:15

📅 Save the date & register now: panspandasuk.org/events/

#PANS #PANDAS #TeacherTraining #InclusiveEducation #SEND #EducationMatters #SupportingStudents
March 5, 2025 at 11:43 AM
Today we are introducing Friends of PANS PANDAS UK; a new way to support our charity on a regular basis.

For more information about our Friends programme, click the link below.

Thank you.

panspandasuk.org/friends-of-p...
March 3, 2025 at 10:46 AM
Disordered eating can affect anyone.

Experiencing PANS or PANDAS can include episodes of restrictive eating.

Support is available @beatedsupport.bsky.social

#EDAW2025 #AnyoneAnytime
February 27, 2025 at 11:19 AM