Philip Palermo
@palermo.bsky.social
Father of a child with CLN1 Batten Disease (searching for funding for research into first-ever cures)
Open to work. I used to make videos at TV Guide, GameSpot, Fandom, Cord Cutters News
GoFundMe for Amelia’s medical expenses: https://gofund.me/e02c7708
Open to work. I used to make videos at TV Guide, GameSpot, Fandom, Cord Cutters News
GoFundMe for Amelia’s medical expenses: https://gofund.me/e02c7708
Amelia’s been more agitated lately, partly due to an ear infection. Last night, she dealt with a vicious cycle of agitation, high heart rate, and rapid breathing that led to congestion and lower oxygen levels.
In other words, it was a long night.
In other, other words, Batten Disease sucks.
In other words, it was a long night.
In other, other words, Batten Disease sucks.
November 15, 2025 at 12:22 AM
Amelia’s been more agitated lately, partly due to an ear infection. Last night, she dealt with a vicious cycle of agitation, high heart rate, and rapid breathing that led to congestion and lower oxygen levels.
In other words, it was a long night.
In other, other words, Batten Disease sucks.
In other words, it was a long night.
In other, other words, Batten Disease sucks.