Susan Griffiths
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otsusangriffiths.bsky.social
Susan Griffiths
@otsusangriffiths.bsky.social
Deaf Paediatric Occupational Therapist / Team Lead working with ND children and young people. Passionate about delivering ND neuroaffirming healthcare.

FYI: All posts prior to 7/11/24 are my old tweets from Twitter.

#OccupationalTherapy
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#OccupationalTherapists:

If you are new to BlueSky and you are looking to connect with other OTs, the best way to find and follow them is by clicking on ‘starter packs’ (you will then follow everyone listed in the pack). Each starter pack has up to 150 people.
New Forest 😍
July 19, 2025 at 9:20 AM
Any OTs that have done a MSc in Autism in the UK? I work for the NHS supporting Autistic children & young people and I am really keen to take this further and do a research project. Trying to find a suitable master. Need to be part time and long distance. #OccupationalTherapy
June 1, 2025 at 5:58 AM
Rant incoming….
Can we please stop telling ND children to ‘cope’. I am seeing so many children who’re experiencing burnout out because all that time where they’ve been trying to cope have caught up with them. Stop using ‘cope’ in goals & start using ‘comfortable’ or ‘thrive’. #OccupationalTherapy
May 23, 2025 at 6:53 PM
Please have your say on the use of restraints in schools. Closing date is the 29th April 2025. SEND children are more likely to be restrained and this is not acceptable.

consult.education.gov.uk/behaviour-un...
Revised use of reasonable force and other restrictive interventions in schools guidance - Department for Education - Citizen Space
Find and participate in consultations run by the Department for Education
consult.education.gov.uk
April 26, 2025 at 7:09 PM
Another sunny day, perfect for a long dog walk #nature #dogwalk
February 2, 2025 at 1:57 PM
Please contact @ot-expert.bsky.social if you can help 👇🏽👇🏽👇🏽
✨Looking for OTs experienced in these interventions..✨

..for a very special project to support children with traumatic injuries:

✨Play, Language & Friendship (PLF)

✨Cognitive–Functional (Cog-Fun)

Pls DM if you've experience in either/both

Pls share widely to reach further

#OccupationalTherapy
February 2, 2025 at 8:51 AM
The clouds has broken up and look at that vibrant blue sky 😍

#nature #NewForest #dogswalks
January 31, 2025 at 1:08 PM
Even on a cold, cloudy day, you can’t hide the beauty of the New Forest 🌳
January 31, 2025 at 12:59 PM
For a change, we went for a brisk walk by the sea 😍
#dogs #nature #beach
January 31, 2025 at 9:11 AM
#OccupationalTherapists:

If you are new to BlueSky and you are looking to connect with other OTs, the best way to find and follow them is by clicking on ‘starter packs’ (you will then follow everyone listed in the pack). Each starter pack has up to 150 people.
January 30, 2025 at 3:52 PM
Icy cold walk in the New Forest but what a beautiful day 😍😍😍
#LoveNature
January 3, 2025 at 7:26 PM
Leaping into year 2025!
January 1, 2025 at 2:12 PM
A cold but sunny walk in the New Forest! Love views like this 😍

#dogs #nature #walks
December 14, 2024 at 2:42 PM
Reposted by Susan Griffiths
Stigma along with the professional's assuredness that their training was complete and accurate when in fact training omits a massive % of autistic experience, refutes or negates, is based on observation rather than lived experience, etc. It's a HUGE misalignment in care.
December 4, 2024 at 9:06 PM
Reposted by Susan Griffiths
I think its similar to the reason women are not believed by men because we have different experiences that the person that needs to do the believing. In the case of doctors we also have atypical responses to meds, and they privilege their theory over our practical experience.
December 4, 2024 at 9:03 PM
Reposted by Susan Griffiths
...access needs we may have. Ask every time as life is different on different days.

I don't speak for all of us. The above very likely doesn't represent a great % of us so ask. None of this touches on actual treatment but if we can't make and get to the appt, we can't access treatment.
December 4, 2024 at 8:58 PM
Reposted by Susan Griffiths
...clear written pre-appointment checklists to allow us to gather info in advance, set up appointment systems that allow us to email, text, or use an app (you likely already have some of those methods in place but not for appts), offer to dim the lights, turn off music, ask if there are other...
December 4, 2024 at 8:58 PM
Reposted by Susan Griffiths
...pinpoint what's going on in our bodies, identify the sensation, translate it so you'll understand, etc. All while you're under time pressure to get a response and move forward. That pain scale btw? Toss that thing in the trash. Our bodies don't work like that.

Suggestions? Establish simple...
December 4, 2024 at 8:58 PM
Reposted by Susan Griffiths
... energy, we don't engage fully in the medical appt itself. Like, how can I tell you if I feel a thing when my brain is busy trying to get you to hear me?

Then there's alexithymia which means you can ask questions but we need time and space to be able to translate what you mean then to...
December 4, 2024 at 8:58 PM
Reposted by Susan Griffiths
Then we have the communication gaps that are invisible to allistics but painfully clear to us. We over prepare, researching so we have knowledge to know what you're asking, prepping responses in ways we'll be heard, speaking/masking in ways to keep you from getting annoyed and expending so much...
December 4, 2024 at 8:58 PM
Reposted by Susan Griffiths
Where do we begin? There are barriers to making appointments. Phone call can be a nightmare of pacing, turn taking, unclear questions, misinterpreted responses, assumptions, hold muzak, and on and on. When online options are offered, it seems most are a means to tell you to call the office.
December 4, 2024 at 8:58 PM
Thank you for all your contributions. Please do keep the chat going.

If you interested in finding out more about autistic experiences of accessing healthcare and what all healthcare professionals can do to improve health outcomes, below are two must read articles:
December 4, 2024 at 9:00 PM
Our final question:
What can we do as Occupational Therapists to reduce these barriers and improve health outcomes for autistic people? #OTChat
December 4, 2024 at 8:51 PM
Our second question:

What are the adverse outcomes for autistic people when trying to access healthcare? #OTChat
December 4, 2024 at 8:41 PM
Good evening! I hope everyone is well.

Let’s dive in and start with our first question:

What barriers do autistic people experience when accessing healthcare? #OTChat
December 4, 2024 at 8:30 PM