Annika Roll
@onarolll.bsky.social
Product designer & co-founder of Cure MAPT FTD
Reposted by Annika Roll
FTD Genes cause different symptoms:
MAPT → Changes personality first. Loss of social skills, repetitive behaviors.
GRN → Often causes depression/anxiety first, plus movement problems. May affect speech.
C9orf72 → Often overlaps with ALS, causing apathy and memory impairment.
MAPT → Changes personality first. Loss of social skills, repetitive behaviors.
GRN → Often causes depression/anxiety first, plus movement problems. May affect speech.
C9orf72 → Often overlaps with ALS, causing apathy and memory impairment.
September 23, 2025 at 1:44 PM
FTD Genes cause different symptoms:
MAPT → Changes personality first. Loss of social skills, repetitive behaviors.
GRN → Often causes depression/anxiety first, plus movement problems. May affect speech.
C9orf72 → Often overlaps with ALS, causing apathy and memory impairment.
MAPT → Changes personality first. Loss of social skills, repetitive behaviors.
GRN → Often causes depression/anxiety first, plus movement problems. May affect speech.
C9orf72 → Often overlaps with ALS, causing apathy and memory impairment.
Reposted by Annika Roll
#NKGN NKGen Biotech Announces Administration of First Dose of Troculeucel to Frontotemporal Dementia Patient Under FDA-Cleared Compassionate Use Program
https://www.stocktitan.net/news/NKGN/nk-gen-biotech-announces-administration-of-first-dose-of-troculeucel-52a43m3fn7t5.html
https://www.stocktitan.net/news/NKGN/nk-gen-biotech-announces-administration-of-first-dose-of-troculeucel-52a43m3fn7t5.html
Groundbreaking Brain Barrier-Crossing Treatment Starts in Frontotemporal Dementia Patient - Will NK Cells Change Neurology?
First administration of NK cell therapy shows promise for 60,000 FTD patients. Building on success in Alzheimer's, troculeucel targets neuroinflammation in landmark treatment.
www.stocktitan.net
February 21, 2025 at 1:00 PM
#NKGN NKGen Biotech Announces Administration of First Dose of Troculeucel to Frontotemporal Dementia Patient Under FDA-Cleared Compassionate Use Program
https://www.stocktitan.net/news/NKGN/nk-gen-biotech-announces-administration-of-first-dose-of-troculeucel-52a43m3fn7t5.html
https://www.stocktitan.net/news/NKGN/nk-gen-biotech-announces-administration-of-first-dose-of-troculeucel-52a43m3fn7t5.html
This Wendy Williams situation is proving a lack of public understanding about FTD.
While her conservatorship does sound quite extreme, keep in mind that those with FTD often do not know or believe their diagnosis, and can seem normal at times. We don't know what's going on behind closed doors.
While her conservatorship does sound quite extreme, keep in mind that those with FTD often do not know or believe their diagnosis, and can seem normal at times. We don't know what's going on behind closed doors.
January 16, 2025 at 6:50 PM
This Wendy Williams situation is proving a lack of public understanding about FTD.
While her conservatorship does sound quite extreme, keep in mind that those with FTD often do not know or believe their diagnosis, and can seem normal at times. We don't know what's going on behind closed doors.
While her conservatorship does sound quite extreme, keep in mind that those with FTD often do not know or believe their diagnosis, and can seem normal at times. We don't know what's going on behind closed doors.
Reposted by Annika Roll
Front page on @nytimes.com on Christmas Day❤️ Fighting for all those afflicted with FTD and hoping for a world with more understanding, grace and patience towards those who seem “different”. #endftd
December 25, 2024 at 2:34 PM
Front page on @nytimes.com on Christmas Day❤️ Fighting for all those afflicted with FTD and hoping for a world with more understanding, grace and patience towards those who seem “different”. #endftd
Reposted by Annika Roll
Moving article with important messages. FTD crystallizes facts about all of health research: time matters - delays in research mean more people fall ill; it's not only patients, but also families and loved ones; fear & grief make people strong and also vulnerable.
www.nytimes.com/2024/12/22/h...
www.nytimes.com/2024/12/22/h...
A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s Fate (Gift Article)
A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?
www.nytimes.com
December 22, 2024 at 4:01 PM
Moving article with important messages. FTD crystallizes facts about all of health research: time matters - delays in research mean more people fall ill; it's not only patients, but also families and loved ones; fear & grief make people strong and also vulnerable.
www.nytimes.com/2024/12/22/h...
www.nytimes.com/2024/12/22/h...
Reposted by Annika Roll
I have a story out today about a remarkable woman named Linde Jacobs. Three years ago, at 33 years old, Linde found out that she carried a genetic mutation for a devastating brain disease, frontotemporal dementia, which begins in middle age. (Thread)
December 22, 2024 at 1:45 PM
I have a story out today about a remarkable woman named Linde Jacobs. Three years ago, at 33 years old, Linde found out that she carried a genetic mutation for a devastating brain disease, frontotemporal dementia, which begins in middle age. (Thread)
Linde is one of the incredible women I'm honored to work with at Cure MAPT FTD. Linde has brought strength to the MAPT community by telling her story honestly & openly, spreading light on what it's truly like to live with this disease. She inspires hope that there will one day be a cure
Hello BlueSky. One of our cofounders, Linde Jacobs, is profiled in The New York Times today. It’s a moving snapshot of what an FTD family goes through. Help us fight for therapies that can cure dementia for under 60s. #ftd #aftd #dementia #tau #alzheimers #mapt
www.nytimes.com/2024/12/22/h...
A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s Fate (Gift Article)
A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?
www.nytimes.com
December 22, 2024 at 9:02 PM
Linde is one of the incredible women I'm honored to work with at Cure MAPT FTD. Linde has brought strength to the MAPT community by telling her story honestly & openly, spreading light on what it's truly like to live with this disease. She inspires hope that there will one day be a cure