Niamh
nynaeve88.bsky.social
Niamh
@nynaeve88.bsky.social
RN
Travel enthusiast with @liitrism
Animal lover - especially elephants
WLS Oct 22 down 74 pounds
POI Warrior
Chronic migraine
Fibromyalgia & psoriasis with psoriatic arthritis
Goal 200K reached for September to raise awareness for POI! I was diagnosed with POI in 2016 at age 26, symptoms since age 22. I’m currently 37 and raising funds for the Daisy Network who have been a great support and resource all these years.
September 26, 2025 at 2:45 PM
September 26, 2025 at 2:43 PM
Day 15 #warriorwalk2025 #daisynetwork #poi #prematureovarianinsufficency #DOR‬ #poiawareness #womenshealth 
‪https://gofund.me/c651bfa76‬
September 16, 2025 at 11:35 PM
September 14, 2025 at 10:08 PM
September 11, 2025 at 11:10 PM
Day 10 of 200,000 steps in 30 day challenge for @thedaisynetwork #warriorwalk2025
September 10, 2025 at 9:12 PM
Got a call Friday evening, that my prescription for AJOVY has been sent to my pharmacy. Rang pharmacy straight away to order it in. Today the day for the first injection. I’ve had 7 migraine attacks since we agreed to start medication and just waiting on approval from HSE.
September 7, 2025 at 8:35 PM
Injection 1 done now hoping works more than tablet did!
May 27, 2025 at 12:14 PM
Today I collected my sub cut injection form of methotrexate and cytotoxic sharp bin also arrived. Got my letter from GP to travel with my injections for future holidays. GP updated on recent events, once receives report from ultrasound sending on referral to Coombe for further investigations. #poi
May 22, 2025 at 9:34 PM
Nursing Stats 📈
⏰ How Long: 14 years 👩🏻‍⚕️
📚 Degrees: BSN, Pgdip healthcare informatics/dementia, cert psych oncology
👩🏻‍⚕️ First nursing job: #NOF over 70
👩🏻‍⚕️ Current nurse job: registered nurse
🚑 Areas/specialties worked:, med-surg,endoscopy

Happy International Nurse’s week to all the nurses out there!
May 11, 2025 at 6:14 PM
Pot luck from different countries, good food, good company, games, ceili dancing and ukulele band. Free Teddy’s ice cream and music from @radionova100
Enjoyed the Korean facial
Most importantly celebrating nursing as a profession #InternationalNursesDay2025 #SJH #SJHIND25
May 9, 2025 at 4:45 PM
Now got my date and time for my MRI thoracic spine with contrast, least doing that part of repeat but prob need cervical done done too proves surgeon didn’t read all the info sent him, only name and looked at his previous notes and ordered the repeat and not wat neuro suggested. #fibro #poi
May 2, 2025 at 7:54 PM
Invisible disabilities/ chronic illnesses
You so may not know what someone else going through, we learn to deal with pain on a regular basis, that only when gets so bad than unable to function that people may know what going on. #fibro #psoriaticarthritis #methrexate #migraine #poi
April 10, 2025 at 1:46 AM
Snorlax joining pikachu #japan #pokemon #snorlax
April 1, 2025 at 12:51 PM
Japan We have arrived! 🇯🇵 #japan #siblingtravel #travel #teavelgoals
April 1, 2025 at 12:43 PM
March 30, 2025 at 1:23 PM
March 27, 2025 at 11:13 AM
Countdown is on for departure to Japan @liirtrism.bsky.social #japan #travel #siblingstravel
March 23, 2025 at 12:48 PM
Methrexate week 1 of increase to 10mg and bruising soo easily, this from bro squeezing hand hard but not that hard only felt hard to me due to Fibromyalgia #chronicillness #methrexate #poi #Fibromyalgia
March 21, 2025 at 2:21 PM
Last week & today been spent following up on treatment advice. Between email ANP rheumatology, ringing CNS rheumatology to get bloods ordered, and contacting complex menopause clinic for follow up. Really makes u wonder if we not proactive in our own healthcare. Are we just lost to follow up?
March 11, 2025 at 9:05 PM
Started treatment last week after getting my collecting my info booklet. 24hrs post first dose ended up in Emergency department after collapse #psoriaticarthritis #poi #fibro
February 11, 2025 at 12:41 PM
Joys of chronic illness arthritis using weighted blanket recently for relief, anxiety koala to aid sleep and anxiety part of Fibro & POI. As well as using my regular magnetic bracelet, earrings and necklace. Life is constant pain. #hiddendisabilty #poi #psoroasis #fibromyalgia #chronicpain
January 30, 2025 at 8:33 PM
November 28, 2024 at 10:18 AM
November 25, 2024 at 12:39 PM
Fibromyalgia what is it? As someone said in fibro class it’s like arthritis for the autonomic nervous system
November 10, 2024 at 1:36 PM