Same. But my PT who works with eds patients says it definitely is. So we are focusing more on getting my body more stable for now. There's not an eds specialist here that will take insurance yet. Just out of pocket which I don't have 😭 But I will definitely show you everything the teach me

Honestly I've known it was Hypermobile ehlers Danfoss since I was 14 but couldn't prove it til now. And I'm in physical therapy and going to hand therapy next. I can show you the exercises they give me. They are not body intensive so much as just getting my body to move right. Also get body braces!

Yep. I'm two steps ahead of my disabilities

🤣 Been here all along. Just had no idea what was wrong with my body. I am also taking L methylfolate which has helped a little. I have to get genetic testing but I could have up to 2 mthfr mutations. But us Zebras gotta stick together. See I always knew I wasn't a horse 🤣🦓

2: I have already started physical therapy and soon hand therapy. I have neck and shoulder already and now have to get ankle and finger braces.

Me too! She just wanted a model but I said no Ma'am I'm gonna give you everything!