Scary times indeed

All I want for Christmas is one day without suffering. Just one day where I feel like a living human and not a dying one 😪🙏

Today a home care nurse told me the lack of care I have received since I left the hospital was criminal. I told her I was afraid I was going to die before I got proper treatment #internationaldisabilityday

I rarely got out of bed this year and spent 9 weeks in hospital. But I also taught over 40 students and directed 2 shows and won a big grant to produce a piece about my profound disability and it’s affect on my marriage. But mainly? I survived.