Liz Nevra A.
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nlizaki.bsky.social
Liz Nevra A.
@nlizaki.bsky.social
850 followers 580 following 370 posts
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
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nlizaki.bsky.social
#MyalgicEncephalomyelitis #MEAction
#HealthEquity
#PremenstrualDysphoricDisorder
#MastCellActivationSyndrome
#hEDS
#Nightingales
#UnexplainedWeightLoss #SaveLizNevra #MillionsMissing #TimeForUnrest #Dysautonomia #autonomicdysfunction
November 20, 2025 at 2:19 AM
nlizaki.bsky.social
Thank you for your generosity!

#spoonie #spoonielife
#spooniesupport #wheelchairlife♿ #wheelchairgirl #SevereME
#SevereMEAwareness
#PMDD
#WomensHealth
#DisabilityTwitter
#MutualAidRequest
#DisabilityCrowdFund
#NEISvoid
#pwME #MyalgicE
#MECFS
November 20, 2025 at 2:19 AM
nlizaki.bsky.social
❤️

July 2025 (all past expenditure is on the blog that Nevra has maintained since 2020)
We are so grateful that your donations keep our Nevra safe and alive, and the will to hang in there.
November 20, 2025 at 2:18 AM
nlizaki.bsky.social
It is also her request that every loan be returned and any additional funds be sent to other members of the community/her trusted friends who are also in need of mutual a.i.d.

❤️

July ....
November 20, 2025 at 2:17 AM
nlizaki.bsky.social
TEAM NEVRA POSTING ON BEHALF OF NEVRA- it may confuse you as to why we are posting this during a sensitive time but Nevra's request for us has been to be transparent about how your donations have helped keep her alive. This would not be possible without you, specially not in Pakistan.
November 20, 2025 at 2:16 AM
nlizaki.bsky.social
#mecfs #verysevereme #cfs #mouldexposure #DV #Karachi #KarachiPakistan #PEM #postexertionalmalaise
November 18, 2025 at 7:42 PM
nlizaki.bsky.social
🚨Open to US-based folks only (Folks elsewhere can donate & nominate a friend to receive the prizes!)
🚨For legal purposes this raffle should be considered a prize draw with 1 free entry available per entrant. Contact @Helen_Melon__ on Instagram for more info (www.instagram.com/helen_melon__/ )
November 18, 2025 at 7:42 PM
nlizaki.bsky.social
🚨To enter:
🚨Step 1: Donate a minimum of $6.50 to Nevra via her GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
🚨Step 2: DM a screenshot of the donation to @Helen_Melon__ on Instagram by midnight 30th November PST (www.instagram.com/helen_melon__/ )
GoFundMe.com
November 18, 2025 at 7:42 PM
nlizaki.bsky.social
3/
This isn’t just about one person — it’s about ending the silence around disabled MENA women who are erased, tokenised, and left behind.
#SaveNevra #SevereME #EDS #MECFS #DisabilityJustice #EndAbleism #BelieveWomen #DVSurvivor #ChronicIllness #TeamNevra #IWeigh
November 17, 2025 at 3:51 AM
nlizaki.bsky.social
2/
Nevra is a MENA woman with severe ME and EDS — one of the only visible advocates for her region. Her work has raised global awareness even while she’s been fighting for her life and surviving long-term abuse.
Her story has been overlooked by many, but it deserves to be heard.
November 17, 2025 at 3:51 AM
nlizaki.bsky.social
^ spam
November 14, 2025 at 8:48 AM
nlizaki.bsky.social
Local ERs won’t treat her and shelters can’t house her due to the complexity of her illnesses. She escaped DV and must stay safely housed with international support. Please share, comment, and donate if you can.

#SaveLizNevra #MECFS #SevereME #CCI #MoldIllness #POTS #MillionsMissing
November 14, 2025 at 7:21 AM
nlizaki.bsky.social
This month’s needs:
• £1010 / $1316 – rent
• $700 / £532 – EDS specialist
• £202 / $263 – care support

🔗 PayPal: PayPal.me/SaveLizNevra
🔗 GoFundMe: GoFundMe.com/f/save-nevra
Pay Adrian Bamforth using PayPal.Me
Go to paypal.me/SaveLizNevra and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.
PayPal.me
November 14, 2025 at 7:21 AM
nlizaki.bsky.social
‼️Last slide contains citations to studies ‼️

#SevereMECFS #MECFS #NeuroImmune #ParalysisAwareness #InvisibleIllness #ChronicIllness #DisabilityAwareness #Neuroinflammation #MyalgicEncephalomyelitis #EndTheNeglect
November 10, 2025 at 7:53 PM
nlizaki.bsky.social
This isn’t psychological — it’s biological.

Understanding this difference matters.
It means recognising that what looks like stillness may actually be neurological shutdown, not choice or fatigue.

💙 Awareness saves lives.
Slide 6 reads: "evidence map: Naviaux 2016 (Nature), Fluge 2016 (JAMA), Loebel 2016 (PLOS One), Scheibengogen 2018 (Brain, Behavior...), Nakatomi 2014 (J Nucl Med), Nelson 2021 (Front Neurol), Van Campen 2021 (Front Neurol), 25% ME group, Whitney Dafoe's case" Slide 7 reads: "References: - Naviaux et al. 2016: hypometabolic state - Fluge et al. 2016: impaired nerve signalling - Nakatomi et al. 2014: neuroinflammation - van Campen et al 2021: reduced blood flow - 25% ME group: severe patient surveys" Slide 8 reads: "References: - Loebel et al. 2016: autoantibodies - Scheibenbogen et al. 2018: immunoadsorption - Nelson et al. 2021: symptom classification - Patient surveys: 25% ME group - Documented case: Whitney Dafoe" Slide 9 reads: - Naviaux, R. K. (2016). Metabolic features of chronic fatigue syndrome. Nature 553, 115-121. - Fluge, O. et al (2016). Metabolic profiling indicates impaired pyruvate dehydrogenase function in myalgic encephalomyelitis/chronic fatigue syndrome. JAMA 315, 229-238. - Loebel, M. et al. (2016). Antibodies to B adrenergic and muscarinic receptors in patients with chronic fatigue syndrome. PLOS One, 11, e0151161. - Scheibenbogen, C. et al. (2018). Immunoadsorption to remove B2 adrenergic receptor antibodies in chronic fatigue syndrome. Brain, Behavior, and Immunity, 67. - Nakatomi, Y. et al. (2014). Neuroinflammation in patients with chronic fatigue syndrome as assessed by positron emission tomography with (11)C-(R)-PK11195. Journal of Nuclear Medicine, 56, 945-950. - Nelson, M. J. et al. (2021) Symptom profiles among people with myalgic encephalomyelitis/chronic fatigue syndrome, fibromyalgia, and their co-occurrance. Frontiers in Neurology, 4, 700759. - van Campen, C. L. H. et al. (2021). Cerebral blood flow remains reduced after tilt in ME/CFS. Frontiers in Neurology, 4, 700759.
November 10, 2025 at 7:53 PM
nlizaki.bsky.social
3/3
Nevra is critically ill with Very Severe ME & urgently needs safe housing, carers, & IV care to survive. Every donation or share helps. 💜

#SaveNevra #MutualAid #ChronicIllness #VerySevereME
November 6, 2025 at 6:24 AM
nlizaki.bsky.social
2/3
🎟️ How to enter:
🍄 1 entry = $6.50 donation
🍄 3 entries = $15.50 donation
➡️ Donate to GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
➡️ DM proof to @Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/ )
Deadline: Nov 30 (midnight PST)
Image 5: Purple background with illustrations of tickets at the borders. In the middle, there is a piece of plain white paper with a title “1st prize bundle you could win”. It shows pictures and captions of 4 prizes, including a soft toy, 3 romance books, decorative stone owls, and hair sticks. Image 6: Purple background with illustrations of tickets at the borders. In the middle, there is a piece of plain white paper with a title “2nd prize bundle you could win”. It shows pictures and captions of 4 prizes, including a soft toy, 2 signed books, crystals, and hair sticks. Image 7: Purple background with illustrations of tickets at the borders. In the middle, there is a piece of plain white paper with a title “3rd prize bundle you could win”. It shows pictures and captions of 4 prizes, including a mini backpack, a stainless steel necklace, an audiobook voucher, and hair sticks. Image 8: Purple background with illustrations of tickets at the borders. In the middle, there is a piece of plain white paper with a title “4th prize bundle you could win”. It shows pictures and captions of 4 prizes, including a mini backpack, an amber necklace, an audiobook voucher, and hair sticks.
November 6, 2025 at 6:24 AM
nlizaki.bsky.social
Spam ^
November 1, 2025 at 3:07 PM