In particular, I would like to know whether the authors support encouraging patients to maintain or increase their activity through flare-ups. If so, based on my own negative experience and that of many others I've heard from, I think it risks harm. #MECFS

the Leeds facility (which costs £3.5k per patient, per week) isn’t nearly detailed enough given the harm done through some implementations of GET/generalised exercise programmes and the resulting lack of trust between patients and clinicians.

I lost count long ago of how many I’ve come across. It seems risky, not to mention very dismissive of patients' experiences, to promote it in this way. Talking vaguely of ‘bespoke’ programmes overseen by ‘experts’ (of which there are currently very few) and

Thanks Karen 😊

Thanks Carole 🙂

Hi @georgemonbiot.bsky.social, on 17 Feb minister for public health Ashley Dalton said there are no plans to grant additional funding to the cross-gov't ME/CFS Delivery Plan, due to be published next month.

Your support in encouraging them to reverse this decision would be greatly appreciated. 🙂

Thanks Binita! X