Epilepsywarrior (she/her)
nicepilepsywarrior.bsky.social
Epilepsywarrior (she/her)
@nicepilepsywarrior.bsky.social
#Epilepsy #Autistic
Sadly retired from #NHS due to health, enjoy walking, gardening or just watching the wildlife
**No DMs from new followers please**
Any news on your scan and possible LIIT?
December 21, 2024 at 12:24 PM
Thanks MR with contrast next weekend, preop and meet surgeon 30Jan then sEEG on 6March.
December 21, 2024 at 11:49 AM
That’s very sweet of you but a bit too far for me 💜
December 1, 2024 at 9:52 PM
Sorry you had to put up with that, I’ve blocked them and suggest everyone else does the same x
December 1, 2024 at 2:01 PM
I feel sorry for you that your life has made you so bitter and twisted. If you don’t know what you are commenting on then please don’t. Try and learn to see the good in people, especially the angels like Oliver and his mum - it really isn’t hard.
December 1, 2024 at 1:59 PM
Thanks, everything feels a bit surreal from cocktail of meds but no seizures overnight so that’s a bonus
November 30, 2024 at 9:30 AM
Frightened. Not sure how people will be safeguarded
November 29, 2024 at 2:58 PM
You’ve probably already done, but try citizens advice and Epilepsy Action helpline
November 29, 2024 at 1:15 PM
I’m vegetarian but appreciate the effort going in to create this image of a turkey with brain body in purple!
November 29, 2024 at 8:54 AM
I hadn’t got a clue before working with kids epilepsy services and still didn’t realise I was having seizures. You can’t see what’s going on inside someone’s brain. It was a steep learning curve for sure. Likewise I only recently realised I’m autistic and got diagnosed - then everything made sense!
November 26, 2024 at 9:55 PM
PS I forgot to say ‘you too’ take care and sleep well 💜
November 26, 2024 at 9:46 PM