My Name Is Fibromyalgia
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mynameisfibro.bsky.social
My Name Is Fibromyalgia
@mynameisfibro.bsky.social
Our official account. Raising awareness and helping fibromyalgia warriors find the help, support, guidance and advice they need 24 hrs a day worldwide
We know we have days where our moods change. It's very easy to do when you are in pain all the time.

We care about you and send gentle hugs 🤗🫂🤗🫂 your way!

#mynameisfibromyalgia #fibromysupport
#Spoonie
#fibrolife
#invisibleillnesses
#pain
#fibro
#Fibromyalgia
#fibrosupport
March 4, 2025 at 9:52 AM
Do you ever wonder how you got where you are today?

Because of the strength you hold inside.

We are stronger than we know. We are amazing people and we have a warriors mentality and strength within.

Gentle hugs 🤗🫂🤗🫂

#mynamisfibromyalgia
#fibromyalgiawarrior
February 2, 2025 at 2:37 AM
Fibromyalgia fog is a horrible symptom of fibromyalgia that unfortunately we all have to deal with at some point in our fibromyalgia journey.

Have you ever felt like this before, I know I have.

#mynameisfibromyalgia
#fibromyalgialife
#spooniewarrior
#fibromyalgia
#spoonie
January 23, 2025 at 10:58 PM
Looking for answers about fibromyalgia?

Looking for help and advice about managing your fibromyalgia ?

Then check out our website.

mynameisfibromyalgia.com
January 12, 2025 at 2:31 PM
January 1, 2025 at 10:07 AM
What is your most favourite meal of the day,week, or even year.

I must say I do love a good roast with all the trimmings. Whether that’s on a Sunday, special occasion or even Christmas Day. I love it!!!

#fibro
#pain
#spoonie
#fibromyalgia
#fibrowarrior
#chronicpain
November 30, 2024 at 10:09 PM
Are you wanting to raise awareness of what fibromyalgia really is and what it does to the people who have it?

We are now looking for additional volunteers to be on our awareness team and panel if that interests you in any way.
November 29, 2024 at 7:09 PM
Time to check in on all our fantastic Fibro Warriors.

Let us know how you’re getting on by posting your coloured heart below.

For me today is a 💜
So,what is yours?

#mynameisfibromyalgia
#actuallydisabled
#fibromyalgialife
November 29, 2024 at 2:49 PM
Ok here is our first question of the week.

What is your most favourite meal of the day,week, or even year.

I must say I do love a good roast with all the trimmings. Whether that’s on a Sunday, special occasion or even Christmas Day. I love it!!!

#mynameisfibromyalgia
#Spoonie
#fibrolife
November 25, 2024 at 12:49 PM
Reposted by My Name Is Fibromyalgia
The CBS report that opioid overdoses are down for the 12th month makes no distinction between Rx + illicit opioids.

They should. The cutbacks in Rx availability has been causing great suffering for the pain community.

Becominglikewater.com
Welcome to Becoming Like Water. -
Hello. I’m Dr. Emmett Smith. My team and I would like to personally welcome you to Becoming Like Water, a website dedicated to helping you learn how to hurt less, and to manage your pain better. There...
Becominglikewater.com
November 24, 2024 at 8:01 PM
Hi warriors. Hoping your weekend is going well thus far.

So, tell me something good in your life?

Finding positives are great for your mental wellbeing which in turn helps when you are in chronic pain.

Practice finding the positive as much as you can.

#mynameisfibromyalgia
#pain
#fibro
November 23, 2024 at 5:39 AM
Hi warriors

Fibromyalgia warriors often have a low level of serotonin which is supposedly a factor in Dreaming.

So, my question to you is how often do you dream?
And how vivid are those dreams?

I seem to get extremely vivid dreams that wake me up repeatedly.

#Fibromyalgia
#spoonie
November 20, 2024 at 7:56 AM
Hello I’m Dr Emmett Smith. This is our first weekly video. We want to welcome you all and let you learn a bit about us. We are wanting to introduce ourselves and give you an insight into who I am and what the “Becoming Like Water Program” is all about.

zoom.us/clips/share/...

#pain
#BLWprogram
Introduction by Becoming Like Water
zoom.us
November 18, 2024 at 6:35 PM
Reposted by My Name Is Fibromyalgia
All that matters is today. You can't change yesterday, only today. What you do today can change tomorrow.

#BecomingLikeWater
#cpp
#pain
#BLWprogram
#Fibromyalgiaisreal
#fibrolife
#pain
#chronicfatigue
#fibro
#Fibromyalgia
#fibrosupport
#spoonies
#chronicillness
November 18, 2024 at 3:08 AM
Self care is so important for our daily care.

Caring for ourselves body, mind and spirit is the only way we will live a well rounded life for us and our families and friends.

What kind of self care to you practice?

For me it's meditating.

#chronicpain #chronicillness #fibromyalgia
November 17, 2024 at 4:15 AM
I'd love to go back to the time before my life changed because of fibromyalgia. It's not easy living with fibromyalgia.

We at My Name is Fibromyalgia care about you. We all deal with fibro in our own personal lives.

All the volunteers here want you to know that we are here for you.

#fibromyalgia
November 16, 2024 at 12:46 AM
Time to check in on all our fantastic Fibro Warriors.

Let us know how you’re getting on by posting your coloured heart below.

For me today is a 💜
So,what is yours?

#mynameisfibromyalgia
#actuallydisabled
#fibromyalgialife
#theultimateguidetofibromyalgia
#spooniewarrior
#fibromyalgia
November 15, 2024 at 3:53 AM
We try so hard to get through our days while others can do things with ease.

We still make it through even if it takes us longer. We do things at our own pace & that’s ok. We are the gladiators of our world fighting a life long battle.

But what makes us warriors is we always get back up.
#fibro
November 14, 2024 at 10:15 PM
Hey everyone. It's good for us to find the good in our lives.

It's healthy for our mental and emotional wellbeing. So tell us... What's something that's good in your world?

For me it's my 2 twin cats. They bring me a lot of joy through the pain.

#spoonie
#spoonies
#fibromyalgia
#chronicpain
November 14, 2024 at 9:45 PM