Hugo
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mxworldwide.bsky.social
Hugo
@mxworldwide.bsky.social
They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis

Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸

In "Australia" on Wurundjeri Country
Haven't been able to listen to music in a few years but when I could, this album for me was Double Nickels on the Dime by Minutemen
November 25, 2024 at 7:52 AM
Please never forget to consider those who are most severe when thinking or speaking about the ME community
November 24, 2024 at 7:18 AM
I think for some who are very severe making the switch is not that easy unfortunately. I've only just barely had the capacity to do it
November 24, 2024 at 7:12 AM
(posting again as a quote post to make it more obvious what I'm referring to)
November 23, 2024 at 11:58 AM
And yes there's still a long way to go sadly. Solidarity 🫂
November 23, 2024 at 11:36 AM
Oh sorry, do you mean the acronyms I used? Graded Exercise Therapy and Cognitive Behavioural Therapy
November 23, 2024 at 11:35 AM
Some doctors who are a bit better exist but they're the exception rather than the norm
November 23, 2024 at 11:33 AM
Sorry to hear, and sadly no, it's not much better here in Australia. It's still pretty psychologised and GET and CBT are the official treatments
November 23, 2024 at 11:32 AM
🇵🇸
November 23, 2024 at 4:11 AM
Hi! I would appreciate that thank you :)
November 21, 2024 at 3:01 PM