Carla
ms45s.bsky.social
Carla
@ms45s.bsky.social
My dad is watching Major Payne and that makes me happy. Finch app goal achieved.
February 8, 2025 at 7:12 AM
All of these years, I’ve thought Peaky Blinders was a BBC comedy.
February 3, 2025 at 6:22 AM
What’s high in protein, low in sugar, has other nutrients, and is something my mom can make herself eat? Working on it. Taking ideas. My nephew is another long story that I probably won’t tell here, but it’s hard. Reading The Explosive Child. I keep staying up way too late, like now.
January 30, 2025 at 11:23 AM
She’s tired and barely eating. The majority of her protein is coming from Ensure Plus butter pecan. Sometimes eggs. Protein water with electrolytes. Whatawings. Bacon. Lots of sugar and processed meat, but, it’s what she’ll eat. Oatmeal. The oatmeal of my childhood, sugar, sugar, and canned milk. 6/
January 30, 2025 at 11:14 AM
She started immunotherapy treatment last week, nivolumab + ipilimumab. Every 21 days. I asked about other combos. But this one seems good. I made an appointment at MD Anderson, but it’s March 17th. Not sure if I should ask to move it back, closer to the end of this first round of treatment. (6/?)
January 30, 2025 at 11:08 AM
We’re told it’s a slow-growing cancer. No one will tell us if they can see anything in retrospect in the many, many images taken between Feb 2024 and Dec 2024 that could help determine the actual rate of growth. The only measurement number given is the 4.3 cm tumor, later measured as 3.5 cm. (5/?)
January 30, 2025 at 11:02 AM
Until her pain was so intense that her PCP ordered an X-ray (nothing) and, when we asked, an MRI. Which showed metastatic cancer in her L2 vertebrae and a 4.2 cm tumor on her right sacrum alar. Biopsy, CCRC. PET scan, it’s also in L3, expanding into her inferior vena cava. And on left sacrum (4/?)
January 30, 2025 at 10:56 AM
She had CTs every 3 months to surveil for the the kidney cancer and was told a few months ago that there were no signs of cancer so they’d shift to every six months. Then the back pain, already there from degenerative bone disease, got worse. And worse. More imaging, doctors found nothing. (3/?)
January 30, 2025 at 10:46 AM
Clear cell renal cell carcinoma. She had a partial nephrectomy in 2023, and the urologist declared her cancer-free and told us there was no need for adjuvant therapy or to ever see him again. We were relieved. She already had an oncologist monitoring her breast cancer remission. (2/?)
January 30, 2025 at 10:40 AM
My mom (84) has recently-diagnosed metastatic cancer. I’m back in my hometown taking care of her, helping my dad (79), and trying but failing to get my nephew (14, raised by my mom) to stop smoking pot, take his meds, and finish the 8th grade. And now I’m here, talking about it. Maybe it will help.
January 30, 2025 at 10:30 AM