Michael Wilson
@michaelwheelson.bsky.social
Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. Oklahoma Blue Dot. ALS'ing since Feb. 2017.
More like "conservative guys over 40"
September 29, 2025 at 8:32 PM
More like "conservative guys over 40"
Social media data can be informative, but extremely limited.
September 18, 2025 at 6:32 PM
Social media data can be informative, but extremely limited.
FDA Patient-Focused Drug Development: Workshop
COI - Concepts of Interest
MAH - Meaningful Aspects of Health
COA - Clinical Outcome Assessment
Takeaway is FDA very interested in including patient experience data, but is very challenging. These should be part of trial design.
COI - Concepts of Interest
MAH - Meaningful Aspects of Health
COA - Clinical Outcome Assessment
Takeaway is FDA very interested in including patient experience data, but is very challenging. These should be part of trial design.
September 18, 2025 at 6:25 PM
FDA Patient-Focused Drug Development: Workshop
COI - Concepts of Interest
MAH - Meaningful Aspects of Health
COA - Clinical Outcome Assessment
Takeaway is FDA very interested in including patient experience data, but is very challenging. These should be part of trial design.
COI - Concepts of Interest
MAH - Meaningful Aspects of Health
COA - Clinical Outcome Assessment
Takeaway is FDA very interested in including patient experience data, but is very challenging. These should be part of trial design.
So there blaming the Citizen's Petition on lack of trial funding and falling off the NASDAQ?
August 15, 2025 at 12:06 AM
So there blaming the Citizen's Petition on lack of trial funding and falling off the NASDAQ?
Cassidy was the deciding vote to confirm RFK Jr. based on a promise not to fire the panel. Maybe confirmation promises aren’t enough when there is ZERO accountability!
June 24, 2025 at 12:35 AM
Cassidy was the deciding vote to confirm RFK Jr. based on a promise not to fire the panel. Maybe confirmation promises aren’t enough when there is ZERO accountability!
Swearing in with one hand, pulling the rug with the other.
June 11, 2025 at 9:48 PM
Swearing in with one hand, pulling the rug with the other.
Nothing says 'defender of democracy' like wielding the weapon of a Sith Lord. So...no Star Wars nerds on his staff?
May 4, 2025 at 11:06 PM
Nothing says 'defender of democracy' like wielding the weapon of a Sith Lord. So...no Star Wars nerds on his staff?
May the 4th be with you my fellow #ALSWarriors!
May 4, 2025 at 6:05 PM
May the 4th be with you my fellow #ALSWarriors!
ChatGPT, give us a Muppet Makeover!
April 25, 2025 at 2:12 AM
ChatGPT, give us a Muppet Makeover!
While this is definitely a step in the right direction, many #ALS caregivers have to quit working entirely to care for us. Which also does not allow them to put earnings towards Social Security & Medicare for when they will need it.
April 14, 2025 at 8:33 PM
While this is definitely a step in the right direction, many #ALS caregivers have to quit working entirely to care for us. Which also does not allow them to put earnings towards Social Security & Medicare for when they will need it.
Yep, and given the article is from TrialSite News, that's not a surprise.
April 8, 2025 at 4:56 PM
Yep, and given the article is from TrialSite News, that's not a surprise.
Yes, the hips turning out sucks. We now put a small pillow outside each knee and tuck them tight with a face towel. Helps quite a bit. Can sort of see in photo.
March 22, 2025 at 7:57 PM
Yes, the hips turning out sucks. We now put a small pillow outside each knee and tuck them tight with a face towel. Helps quite a bit. Can sort of see in photo.
Oh, DOGE! This grant is to study alternative feminine hygiene products using natural fibers instead of synthetic ones. There was one line that used trans and intersex people in their description of the population menstruating.
You can read for yourself here:
www.usaspending.gov/.../ASST_NON...
You can read for yourself here:
www.usaspending.gov/.../ASST_NON...
March 11, 2025 at 1:33 AM
Oh, DOGE! This grant is to study alternative feminine hygiene products using natural fibers instead of synthetic ones. There was one line that used trans and intersex people in their description of the population menstruating.
You can read for yourself here:
www.usaspending.gov/.../ASST_NON...
You can read for yourself here:
www.usaspending.gov/.../ASST_NON...
Got an email from a hacker claiming they have video of me jerking off to porn and will send it to my contacts unless I pay up. Dude, I have ALS. If I could do that, I’d send the video out myself as a damn miracle! Nice try, though. 🤣
January 12, 2025 at 12:17 AM
Got an email from a hacker claiming they have video of me jerking off to porn and will send it to my contacts unless I pay up. Dude, I have ALS. If I could do that, I’d send the video out myself as a damn miracle! Nice try, though. 🤣
How about rolls instead of steps? 😂
December 18, 2024 at 11:00 PM
How about rolls instead of steps? 😂
I think so. In years past, Radicava for me was ~$12K that had to be paid (via Healthwell Foundation). With the 2024 changes, this year was just $3,800.
December 6, 2024 at 6:36 PM
I think so. In years past, Radicava for me was ~$12K that had to be paid (via Healthwell Foundation). With the 2024 changes, this year was just $3,800.
