ME RESPITE
@merespite.bsky.social
ME RESPITE is a registered New Zealand Charity providing practical support to those with Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS) and related illnesses.
Patient estimates doubled, political and medical attention in #NZ? Non existent. Why??? #ME/CFS #LongCOVID #CFS #ChronicFatigueSyndrome
ME/CFS patient estimates have doubled – but the disease is still ignored
Tens of thousands of New Zealanders are thought to have myalgic encephalomyelitis (ME), formerly known as “chronic fatigue syndrome”.
thespinoff.co.nz
June 3, 2025 at 8:12 AM
Patient estimates doubled, political and medical attention in #NZ? Non existent. Why??? #ME/CFS #LongCOVID #CFS #ChronicFatigueSyndrome
Latest edition of #ME Matters is out! Highlights #ME/CFS and #LongCOVID #research and includes findings from an internal project. With the economic climate threatening funding, it's even more important to support initiatives that further our understanding these illnesses. #ChronicFatigueSyndrome
mcusercontent.com
April 9, 2025 at 7:41 AM
Latest edition of #ME Matters is out! Highlights #ME/CFS and #LongCOVID #research and includes findings from an internal project. With the economic climate threatening funding, it's even more important to support initiatives that further our understanding these illnesses. #ChronicFatigueSyndrome
It's not the first and very sadly won't be the last... #ME/CFS #MECFS #CFS #Research #Trump #StatNews #ColumbiaUniversity #Chronicillness #LongCOVID #FM
ME/CFS research program shuts down at Columbia after Trump cuts
ME/CFS, which affects millions of Americans, has few dedicated research centers. Now the one at Columbia has been shut down over Trump funding cuts.
www.statnews.com
March 20, 2025 at 10:14 PM
It's not the first and very sadly won't be the last... #ME/CFS #MECFS #CFS #Research #Trump #StatNews #ColumbiaUniversity #Chronicillness #LongCOVID #FM
Findings from #GeorgetownUniversity study centred on exercise could help to "define more objective diagnostic markers for #ME/CFS, allowing for the implementation of targeted and effective therapeutic interventions". #ME #CFS #MECFS #CFSME #ChronicIllness #ChronicFatigueSyndrome #research
Metabolic Disruptions Found In Myalgic Encephalomyelitis Patients
A groundbreaking study examining the cerebrospinal fluid of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has revealed significant metabolic…
evrimagaci.org
March 5, 2025 at 8:11 AM
Findings from #GeorgetownUniversity study centred on exercise could help to "define more objective diagnostic markers for #ME/CFS, allowing for the implementation of targeted and effective therapeutic interventions". #ME #CFS #MECFS #CFSME #ChronicIllness #ChronicFatigueSyndrome #research
Finally this is getting picked up by more mainstream channels, a great summary #SciShow thank you for the well researched and accurate, palatable video on #ME/CFS. Like, comment and share it gang, keep getting it out there! #MECFS #CFS #ME #ChronicIllness #ChronicFatigueSyndrome #YouTube
Exercise Actually Makes Chronic Fatigue Syndrome Worse
YouTube video by SciShow
youtu.be
February 21, 2025 at 7:13 AM
Finally this is getting picked up by more mainstream channels, a great summary #SciShow thank you for the well researched and accurate, palatable video on #ME/CFS. Like, comment and share it gang, keep getting it out there! #MECFS #CFS #ME #ChronicIllness #ChronicFatigueSyndrome #YouTube
Pleased to see this reported by Radio NZ today #ME/CFS #LongCovid #ME #CFS #ChronicIllness #MECFS #CFSME #LongCovidResearch
Long Covid: Patients show brain swelling linked to memory, concentration problems
The swelling is in an area of the brain also linked to poor concentration, and has similarities with people myaligic encephalomyelitis/chronic fatigue syndrome, a study has found.
www.rnz.co.nz
February 11, 2025 at 8:14 AM
Pleased to see this reported by Radio NZ today #ME/CFS #LongCovid #ME #CFS #ChronicIllness #MECFS #CFSME #LongCovidResearch
Our fourth edition of #ME Matters has just been published, grab a cuppa and have a read. In this edition we feature an inspiring story from one of our younger members with #ME/CFS, an interview with a longstanding #volunteer, research updates, event updates and more. #CFS #chronicillness #longcovid
mcusercontent.com
February 6, 2025 at 8:27 AM
Our fourth edition of #ME Matters has just been published, grab a cuppa and have a read. In this edition we feature an inspiring story from one of our younger members with #ME/CFS, an interview with a longstanding #volunteer, research updates, event updates and more. #CFS #chronicillness #longcovid
Still today #ME/CFS sufferers fight for visibility and understanding. Help us to combat outdated ideas and misinformation, please share our latest myth debunking video. #mecfs #ME #CFS #chronicillness #myalgicencephalomyelitis #fibromyalgia #chronicfatiguesyndrome #longcovid #pots #millionsmissing
Top 5 ME/CFS Myths Debunked
YouTube video by ME RESPITE
www.youtube.com
January 19, 2025 at 12:11 AM
Still today #ME/CFS sufferers fight for visibility and understanding. Help us to combat outdated ideas and misinformation, please share our latest myth debunking video. #mecfs #ME #CFS #chronicillness #myalgicencephalomyelitis #fibromyalgia #chronicfatiguesyndrome #longcovid #pots #millionsmissing
New RECOVER study: SARS-CoV-2 infection raises the risk of developing ME/CFS nearly fivefold compared to uninfected individuals. 4.5% of COVID patients met ME/CFS criteria after 6+ months, with PEM the most common symptom. #MECFS #LongCOVID #ME #CFS #ChronicFatigueSyndrome #ChronicIllness
link.springer.com
January 15, 2025 at 8:54 PM
New RECOVER study: SARS-CoV-2 infection raises the risk of developing ME/CFS nearly fivefold compared to uninfected individuals. 4.5% of COVID patients met ME/CFS criteria after 6+ months, with PEM the most common symptom. #MECFS #LongCOVID #ME #CFS #ChronicFatigueSyndrome #ChronicIllness
This a vulnerable and honest interview, at times sobering but well worth a listen. Please share to help people understand the impacts on individuals and their families who live with #ME/CFS. #ME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #LongCovid #Fibromyalgia
Interview on Helping Heroes Podcast, with Phil and Wendy
YouTube video by ME RESPITE
youtu.be
January 13, 2025 at 1:09 AM
This a vulnerable and honest interview, at times sobering but well worth a listen. Please share to help people understand the impacts on individuals and their families who live with #ME/CFS. #ME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #LongCovid #Fibromyalgia
The recent UK Gov ME/CFS consultation outcome revealed key needs: more funding for research, better healthcare training, and improved support for patients and carers. Final plan due in March 2025. #ME/CFS #ME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness
Improving the experiences of people with ME/CFS: consultation outcome
www.gov.uk
December 20, 2024 at 9:13 PM
The recent UK Gov ME/CFS consultation outcome revealed key needs: more funding for research, better healthcare training, and improved support for patients and carers. Final plan due in March 2025. #ME/CFS #ME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness
Please share this video for anyone wanting to be educated and to increase for #ME/CFS awareness:
youtu.be/rxDPFSgfYus?...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #ME #CFS
youtu.be/rxDPFSgfYus?...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #ME #CFS
What is ME/CFS?
YouTube video by ME RESPITE
youtu.be
December 16, 2024 at 4:17 AM
Please share this video for anyone wanting to be educated and to increase for #ME/CFS awareness:
youtu.be/rxDPFSgfYus?...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #ME #CFS
youtu.be/rxDPFSgfYus?...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #ME #CFS