Ceara (she/her)
mendingmybusiness.bsky.social
Ceara (she/her)
@mendingmybusiness.bsky.social
Mender, sewist, crafter, spoonie
Ystrdy I went to a yarn shop, spoke with the person there face-to-face (ok mask-to-face) about things unrelated to #ChronicIllness, and stopped at a nearby bakery before going home. I felt like a real person!! It felt SO GOOD, and I lived in the joy of that all day. Today I will be at home. #grief
August 30, 2025 at 12:30 PM
I finally mended something! I think the rip is pretty well disguised, and the owner (who also chose the colours) is thrilled. Win! (except for the spoons - spoons were willingly sacrificed, and account for the half-hearted placement of the flowers)

#VisibleMending #embroidery #ChronicIllness
May 9, 2025 at 4:07 PM
Any #ChronicIllness folks willing to share what they do to fend off (deeper) depression during flares? I typically spend a LOT of time resting, but a minor cold has caused a major flare so I've been resting even more.

#POTS #MECFS
April 15, 2025 at 1:52 AM
When I was in school and didn't want to do homework, eventually I would remind myself "it's not going to get any easier by putting it off until later."

Now I say that to myself about getting out of bed in the morning.

#POTS #MECFS #ChronicIllness
April 13, 2025 at 12:38 PM
I wonder how many nights I comfort myself with sentences that start with "maybe tomorrow..." I think it might be a lot.

#ChronicIllness #POTS #Disability
March 28, 2025 at 1:42 AM
I've been doing HRV training with biofeedback for 28 days. One thing I've learned is that my body thinks that angst is home. I blame 90s music, frankly.

#ChronicIllness #POTS #dysautonomia #HRV
March 17, 2025 at 9:57 PM
It's nice that at the end of a day where I prioritized mental health over physical health, I have evidence of the impact on my body.

Reader, today's stress levels WILL interfere with my sleep tonight. Haywire engaged.

#POTS #ChronicIllness #InvisibleDisability
March 16, 2025 at 2:42 AM
Any #potsies out there care to talk about dizziness? I'm used to dizziness when I move, but I'm having my second bout in a couple months of severe dizziness just lying down (it gets much worse when I move, so that's fun). This doesn't seem like #POTS? No other new symptoms, though.
February 20, 2025 at 3:06 PM
As someone with disabling #ChronicIllness I frequently find myself struggling with internalized #ableism. I recently read an essay (marypezzulo.substack.com/p/the-right-...) arguing that "[society owes] the disabled accommodation."

/1
The Right Wants the Disabled to Disappear
...or, what the Twitter tantrum about sign language tells us about the Republican agenda
marypezzulo.substack.com
February 17, 2025 at 10:29 PM