@melmadds.bsky.social
From Xitter (GiftedHand - can’t seem to delete yet) 80% homebound/ multiple chronic long term illness #ME #IBD dx 2010 #POTS #LC multiply #Neurodivergent /advocate / London mum artist, photographer,coach on one long sabbatical. Dabbling in landscape design
I had a very severe SVT attack after lockdown. I couldn’t convert at all, didn’t matter what I did. Suffice to say they couldn’t get one to me for Hrs & urged me to find someone to drive me to hospital. Once there I was taken fast to resus. Not sure what I would’ve done if I needed defibrillation 😔🤯
December 8, 2024 at 9:32 PM
I had a very severe SVT attack after lockdown. I couldn’t convert at all, didn’t matter what I did. Suffice to say they couldn’t get one to me for Hrs & urged me to find someone to drive me to hospital. Once there I was taken fast to resus. Not sure what I would’ve done if I needed defibrillation 😔🤯
Good luck, it’s always a bit of an apprehensive day on a new medication 💊🤞🏻. I started on Ivabradine for #POTS a few weeks ago. Awaiting cardiology response via GP as to tweaks on dosage and timing.
December 7, 2024 at 6:15 PM
Good luck, it’s always a bit of an apprehensive day on a new medication 💊🤞🏻. I started on Ivabradine for #POTS a few weeks ago. Awaiting cardiology response via GP as to tweaks on dosage and timing.
Reposted
"It's Just Anxiety"... Or Perhaps They've Misdiagnosed You
Fighting for a diagnosis? Getting accused of being anxious, depressed or told it’s all in your head?
This is the article for you. It includes tips for dealing with doctors, how to cope with the tilt table test & other key diagnostics:
/12
Fighting for a diagnosis? Getting accused of being anxious, depressed or told it’s all in your head?
This is the article for you. It includes tips for dealing with doctors, how to cope with the tilt table test & other key diagnostics:
/12
"It's Just Anxiety"... Or Perhaps They've Misdiagnosed You
Patients with POTS are frequently misdiagnosed as anxious. An exploration of the diagnostic process, the gaslighting and barriers patients face when dealing with this debilitating condition.
www.disabledginger.com
December 7, 2024 at 3:29 AM
"It's Just Anxiety"... Or Perhaps They've Misdiagnosed You
Fighting for a diagnosis? Getting accused of being anxious, depressed or told it’s all in your head?
This is the article for you. It includes tips for dealing with doctors, how to cope with the tilt table test & other key diagnostics:
/12
Fighting for a diagnosis? Getting accused of being anxious, depressed or told it’s all in your head?
This is the article for you. It includes tips for dealing with doctors, how to cope with the tilt table test & other key diagnostics:
/12
When I have some spoons and extra pace points (currently horizontal in a rolling PEM), I’ll take some photographs of what’s in my studio from work I did a few years ago. The self teaching can be quite the tonic. I have so many pieces I was meant to finish.
December 7, 2024 at 5:54 PM
When I have some spoons and extra pace points (currently horizontal in a rolling PEM), I’ll take some photographs of what’s in my studio from work I did a few years ago. The self teaching can be quite the tonic. I have so many pieces I was meant to finish.
Of course having to step back from social circles really does show you who was a true confidante & kindred & who was just lifestyle based. I’ve been quite shocked as to who I lost along the way. Gradually though I’m making connections with others who are in the same place & have more understanding
December 7, 2024 at 5:49 PM
Of course having to step back from social circles really does show you who was a true confidante & kindred & who was just lifestyle based. I’ve been quite shocked as to who I lost along the way. Gradually though I’m making connections with others who are in the same place & have more understanding
I think this will be a really important piece. Of course spoons withstanding , pacing as you go because it will probably be quite intense. I should think it would be cathartic for you as it will be for many of us reading it. I’ve lost many connections due to failing health over the years..
December 7, 2024 at 5:47 PM
I think this will be a really important piece. Of course spoons withstanding , pacing as you go because it will probably be quite intense. I should think it would be cathartic for you as it will be for many of us reading it. I’ve lost many connections due to failing health over the years..
That’s a lovely design and the colour combo is beautiful.
December 7, 2024 at 4:38 PM
That’s a lovely design and the colour combo is beautiful.
Goodness me, it seems we have more in common.. I used to do textile multimedia art with leather quilting, embroidery & beading straight through canvases. I can’t or haven’t been able to do anything like that for a few years now because of fibromyalgia & arthritic nodules in my hands and fingers
December 7, 2024 at 4:37 PM
Goodness me, it seems we have more in common.. I used to do textile multimedia art with leather quilting, embroidery & beading straight through canvases. I can’t or haven’t been able to do anything like that for a few years now because of fibromyalgia & arthritic nodules in my hands and fingers
I also had a prolific selfie practice, mainly to see myself more, due to my own working memory issues and to rebuild self-esteem following my marriage breakdown. I find it very hard to do the same these days.. I also have wavy curly hair and have lost so much density due to Covid.
December 7, 2024 at 4:34 PM
I also had a prolific selfie practice, mainly to see myself more, due to my own working memory issues and to rebuild self-esteem following my marriage breakdown. I find it very hard to do the same these days.. I also have wavy curly hair and have lost so much density due to Covid.
Oh Rachel, as I read every word I cried. I relate to so much of what you’ve written. So much I could write that is so similar. I’ve also been long-term chronically unwell since 2009. The drastic changes from 2019 to now have left me feeling very deplete. My heart feels the collective hurt 😢
December 7, 2024 at 4:32 PM
Oh Rachel, as I read every word I cried. I relate to so much of what you’ve written. So much I could write that is so similar. I’ve also been long-term chronically unwell since 2009. The drastic changes from 2019 to now have left me feeling very deplete. My heart feels the collective hurt 😢