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melindaiscomplex.bsky.social
melinda_is_done
@melindaiscomplex.bsky.social
My body has given up but I haven't...
ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids.
Orioles/Ravens/Caps fan. She/her
July 20, 2025 at 9:20 AM
In calendar, click on settings then click on holidays, then add religious holidays
February 11, 2025 at 5:41 AM
Today in person #EarlyVoting begins in Maryland! Find an early voting center elections.maryland.gov/elections/Vo...
My ballot has officially been counted. I voted via mail-in ballot/drop box and am thankful being bed-bound disabled I have accessible voting in #Maryland. #VoteEarly
October 24, 2024 at 10:38 AM
Millions of people with ME, including me, in the U.S. do not have access to a specialist who can care for their complex disease. Teach ME, Treat ME so that we can educate the next generation of ME specialists. #MillionsMissing2024 #MEcfs #MEawarenessmonth #PwME #PwLC #MedEd #MEAction #severeME
May 9, 2024 at 2:54 PM
I am joining #MEAction's #TeachMETreatME campaign so that I can get the care I and the millions like me deserve. Please share this @meactnet.bsky.social CME with your healthcare provider: bit.ly/MayoCME8 #MillionsMissing #MEcfs #PwME #PwLC #MedEd
May 7, 2024 at 10:50 PM
Found it!
February 17, 2024 at 7:01 AM
No, I'm not acutely ill or have a fever. This is what #PEM can look like.
What did I do for this you ask? Had a telehealth appt with my headache specialist earlier that day...

Sheldon is good at comfort 😻

#MEcfs #MyalgicEncephalomyelitis #ComplexChronicIllness #LongCovid #IACC
October 6, 2023 at 2:49 PM
Sunday Selfies
September 10, 2023 at 8:17 PM
Here it is 2023. We are years into a pandemic & the CDC is rolling out its ME playbook from 1990.
Join the Read ME book club to read & discuss Hillary Johnson's The Why: The Historic ME/CFS Call to Arms on Sept. 9th
bookclubs.com/clubs/596855...
Please excuse alt text, limited capacity today.
August 28, 2023 at 5:34 PM
This is how we do this, right? I didn't see the movie not because I don't want to, but because I'm bedridden by #SevereME.
About Severe ME youtu.be/CTxwlf7LSrA?...
August 27, 2023 at 9:44 PM