Karen van Gorp
@melanomamum.bsky.social
D/Chair @Melanoma Patients Australia, Chair @Cancer Voices SA Senior Policy @South Australian Business Chamber Mum of 3, #melanoma #supportivecare #cancer #immunotherapy #survivorship #cancerresearch #clinicaltrials #prevention #HTA
Hello Bluesky is fun. And not the other place!
March 21, 2025 at 11:31 AM
Hello Bluesky is fun. And not the other place!
Brilliant! I will add equity of access to treatment and supportive care. Support in the community (return to work etc). The American scenario of insurance is terrifying. We fight to continue our medicare and HTA process in Australia.
December 7, 2024 at 10:20 PM
Brilliant! I will add equity of access to treatment and supportive care. Support in the community (return to work etc). The American scenario of insurance is terrifying. We fight to continue our medicare and HTA process in Australia.
Is this an American group or intended to be world wide?
December 7, 2024 at 12:16 AM
Is this an American group or intended to be world wide?
December 5, 2024 at 6:37 PM
I dont really like icecream but i love cheese.
Most proud of my presentation at #ACTA2024 this week Australian #HTAReview #ClinicalTrials Early #Comsumer imvolvement. EarlyConsumer
Most proud of my presentation at #ACTA2024 this week Australian #HTAReview #ClinicalTrials Early #Comsumer imvolvement. EarlyConsumer
December 5, 2024 at 6:37 PM
I dont really like icecream but i love cheese.
Most proud of my presentation at #ACTA2024 this week Australian #HTAReview #ClinicalTrials Early #Comsumer imvolvement. EarlyConsumer
Most proud of my presentation at #ACTA2024 this week Australian #HTAReview #ClinicalTrials Early #Comsumer imvolvement. EarlyConsumer
Great thread and starter pack. Would you please add me melanoma stage IV 2013 clinical trial pembro super responder, choroidal melanoma 2021 brachytherapy - fingers crossed. Chair Cancer Voices SA Deputy Chair Melanoma Patients Aust
December 5, 2024 at 6:31 PM
Great thread and starter pack. Would you please add me melanoma stage IV 2013 clinical trial pembro super responder, choroidal melanoma 2021 brachytherapy - fingers crossed. Chair Cancer Voices SA Deputy Chair Melanoma Patients Aust
Neràk a new cushion cover that only fits one shape of cushion soon to be discontinued.
November 30, 2024 at 12:42 AM
Neràk a new cushion cover that only fits one shape of cushion soon to be discontinued.
Oh I realise now it was that cat owner who pointed out the date! Oh this migration is messy!
November 23, 2024 at 6:54 AM
Oh I realise now it was that cat owner who pointed out the date! Oh this migration is messy!
Lol, thanks. Hope she didn't give the poor cat the ointment
November 23, 2024 at 6:35 AM
Lol, thanks. Hope she didn't give the poor cat the ointment
Please don't, if it can be cut out or off that would be the best option for animals and humans.
November 23, 2024 at 4:12 AM
Please don't, if it can be cut out or off that would be the best option for animals and humans.
Hi I am a stage IV melanoma survivor. I managed to get on a clinical trial for keytruda in 2013. I have had a complete response.
November 23, 2024 at 4:07 AM
Hi I am a stage IV melanoma survivor. I managed to get on a clinical trial for keytruda in 2013. I have had a complete response.
You might like to look at some Facebook support groups, especially in Australia. So sorry to hear it has spread, such a rare occurrence.
November 23, 2024 at 4:06 AM
You might like to look at some Facebook support groups, especially in Australia. So sorry to hear it has spread, such a rare occurrence.
I had worked so hard on my twitter account. I rarely saw ads but I didn't miss any news from the areas I am interested in (melanoma, cancer, gut microbiome, some HTA). I would like to reclaim linked in for my day job!
November 22, 2024 at 11:44 PM
I had worked so hard on my twitter account. I rarely saw ads but I didn't miss any news from the areas I am interested in (melanoma, cancer, gut microbiome, some HTA). I would like to reclaim linked in for my day job!
@jay.bsky.team also apologises for the lack of drafts, but we have love. I will have to draft n paste
November 22, 2024 at 1:32 PM
@jay.bsky.team also apologises for the lack of drafts, but we have love. I will have to draft n paste
Brilliant if it increases their choices to access clinical trials!
November 22, 2024 at 12:50 AM
Brilliant if it increases their choices to access clinical trials!
I wish you luck. I am stage 4 melanoma and I was a super responder to pembro. Few side effects but i know many who have had pituitary and adrenal glands effected.
February 9, 2024 at 11:46 PM
I wish you luck. I am stage 4 melanoma and I was a super responder to pembro. Few side effects but i know many who have had pituitary and adrenal glands effected.