#MEAction Network
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
And because we all need some joy, we have amazing rewards for our community as we reach different levels. No donation required to join in the rewards. We will share more soon!
#pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #Research #Advocacy
#pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #Research #Advocacy
November 7, 2025 at 5:00 PM
And because we all need some joy, we have amazing rewards for our community as we reach different levels. No donation required to join in the rewards. We will share more soon!
#pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #Research #Advocacy
#pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #Research #Advocacy
We have a special opportunity to honor someone in your life with their name on a lantern on our site.
Donate $50 (or more) & pick the name of someone that you are donating to support, someone you are remembering, anyone who has been a light in your life… you choose. You will be emailed a form.
Donate $50 (or more) & pick the name of someone that you are donating to support, someone you are remembering, anyone who has been a light in your life… you choose. You will be emailed a form.
November 7, 2025 at 5:00 PM
We have a special opportunity to honor someone in your life with their name on a lantern on our site.
Donate $50 (or more) & pick the name of someone that you are donating to support, someone you are remembering, anyone who has been a light in your life… you choose. You will be emailed a form.
Donate $50 (or more) & pick the name of someone that you are donating to support, someone you are remembering, anyone who has been a light in your life… you choose. You will be emailed a form.
We are advancing research through our advocacy, fighting for policy that protects healthcare for people with ME and Long COVID, and providing support and community.
As we kickoff our end-of-year fundraiser, we are incredibly grateful to have a $50,000 match for your donation to go even further!
As we kickoff our end-of-year fundraiser, we are incredibly grateful to have a $50,000 match for your donation to go even further!
November 7, 2025 at 5:00 PM
We are advancing research through our advocacy, fighting for policy that protects healthcare for people with ME and Long COVID, and providing support and community.
As we kickoff our end-of-year fundraiser, we are incredibly grateful to have a $50,000 match for your donation to go even further!
As we kickoff our end-of-year fundraiser, we are incredibly grateful to have a $50,000 match for your donation to go even further!
“The observation of ME in long COVID has brought renewed importance to the need to use specific case definition criteria in intervention studies,” said Todd Davenport, PT, DPT, PhD, professor and chair of the Department of Physical Therapy at the University of the Pacific.
November 6, 2025 at 7:42 PM
“The observation of ME in long COVID has brought renewed importance to the need to use specific case definition criteria in intervention studies,” said Todd Davenport, PT, DPT, PhD, professor and chair of the Department of Physical Therapy at the University of the Pacific.
The problem with using the broader “CFS” definitions… is that the study samples “will include cases with many other causes of fatigue, including other organic disease or depression or mental health illnesses. This is not good for research,” said Luis Nacul, MD, PhD.
November 6, 2025 at 7:42 PM
The problem with using the broader “CFS” definitions… is that the study samples “will include cases with many other causes of fatigue, including other organic disease or depression or mental health illnesses. This is not good for research,” said Luis Nacul, MD, PhD.
“Of the 17 trials meeting inclusion criteria, three used “CFS” definitions that didn’t include PEM at all, 13 used criteria in which PEM was an optional criterion, and only one used a definition that required PEM, although there was no mention of PEM in that paper.”
November 6, 2025 at 7:42 PM
“Of the 17 trials meeting inclusion criteria, three used “CFS” definitions that didn’t include PEM at all, 13 used criteria in which PEM was an optional criterion, and only one used a definition that required PEM, although there was no mention of PEM in that paper.”
Wormgoor presented an update to her 2021 systematic review paper examining randomized clinical trials of physical activity interventions for adults diagnosed with CFS or ME criteria, published between 2000 and 2024.
November 6, 2025 at 7:42 PM
Wormgoor presented an update to her 2021 systematic review paper examining randomized clinical trials of physical activity interventions for adults diagnosed with CFS or ME criteria, published between 2000 and 2024.
Most studies investigating activity-based interventions for ME/CFS enrolled people *without* requiring the core symptom of post-exertional malaise (PEM), explained Researcher Marjon E. A. Wormgoor, MS who presented her paper at the IACFS/ME conference.
November 6, 2025 at 7:42 PM
Most studies investigating activity-based interventions for ME/CFS enrolled people *without* requiring the core symptom of post-exertional malaise (PEM), explained Researcher Marjon E. A. Wormgoor, MS who presented her paper at the IACFS/ME conference.
We have a wonderful community available anytime! Glad you found us.
November 6, 2025 at 4:02 AM
We have a wonderful community available anytime! Glad you found us.
Thats so wonderful to hear! Glad your cat has also found a fun use!
November 6, 2025 at 4:01 AM
Thats so wonderful to hear! Glad your cat has also found a fun use!