MEActMaryland
LightNews LightNews
banner
meactmaryland.bsky.social
MEActMaryland
@meactmaryland.bsky.social
1.9K followers 1.8K following 190 posts
#MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV

https://youtube.com/@meactmaryland

https://linktr.ee/meactmd
Posts Replies Media Videos
meactmaryland.bsky.social
Tues, Nov 4th @7pm
Advocacy Meeting

**New** Zoom Link in Bio

#MEAction
#Advocacy
#MECFS
#LongCovid
orange fox sits in the middle of the gray screen 2 trees with multi-colored autumnal leaves; one on each side of the screen. @meactmaryland.bsky.social logo bottom right corner Text reads Tues, Nov 4th @7pm Advocacy Meeting **New** Zoom Link in Bio
November 2, 2025 at 4:44 PM
meactmaryland.bsky.social
$1trillion in Medicaid cuts will harm millions.

ACA premium hikes will steal affordable healthcare from tens of millions.

Ask Congress to protect the most vulnerable Americans.

Call/email script available in bio.
#savemedicaid #aca @meactnet.bsky.social
Bonus image for those who scroll: Owl pumpkin (from previous) plus cat pumpkin
November 2, 2025 at 2:36 AM
meactmaryland.bsky.social
Today is the day after Halloween & this pumpkin is not scary
...
Not like Medicaid cuts are scary for millions of Americans - they're life and death.

#savemedicaid #aca @meactnet.bsky.social
ALT-TEXT: smallish Halloween pumpkin sort of adorably decorated (with stick on decorations) black ears, black wings, big huge owl eyes, yellow beak, huge orange flippers
November 2, 2025 at 2:36 AM
meactmaryland.bsky.social
TeamBlueZoo's cutest member protests for Healthcare reform

Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
Deja Blue, a light brown service dog sits in the grass in front of a sign PAWS OFF OUR HEALTHCARE! PAWS OFF OUR RIGHTS! PAWS OFF OUR FREEDOM! #NOKINGS #meactmaryland @meactmaryland.bsky.social #TEAMBLUEZOO sign with pawprints reading: PAWS OFF OUR HEALTHCARE! PAWS OFF OUR RIGHTS! PAWS OFF OUR FREEDOM! #NOKINGS #meactmaryland @meactmaryland.bsky.social #TEAMBLUEZOO
October 31, 2025 at 7:58 PM
meactmaryland.bsky.social
Tomorrow
Tuesday, October 21st @ 4pm ET

Community Support Zoom #MEAction Maryland

"Come As You Are"

We've got new zoom links, so email us or check or link tree (in bio).

#MECFS #LongCovid #CommunitySupport
Black background with top & bottom borders of autumnal colored leaves White text reads: Community Support Tuesday, October 21st @ 4pm ET "Come As You Are" **New** Zoom link in Bio Meactmaryland@social.bluesky logo bottom right corner
October 20, 2025 at 5:31 PM
meactmaryland.bsky.social
Tues, Oct 7th at 7pm

1st meeting of the 2025-2026 Advocacy Year.

NEW ZOOM link in bio.

#MEAction website link not yet updated 10/5
orange & black background with white text picture of fall foliage with red/orange leaves on the ground text reads: Do the October Slide with Us! 1st meeting of the 2025-2026 Advocacy year Tuesday, October 7th @ 7pm New Zoom links in bio @MEActMaryland.bsky.social logo bottom left corner
October 5, 2025 at 8:52 PM
meactmaryland.bsky.social
#severeME Day
Aug 8th is a day of Remembrance & a day of amplification

25% of those with #MyalgicEncephalomyelitis are Severe/Very Severe. Trapped in the Dark, the Void, the Wasteland

#SevereMEAwareness
#SevereMEAwarenessDay
#UnitedForME
Black background with Blue forget-me-not flower white text reads: Severe M.E. Day August 8th Forget M.E. Not @MEActMaryland.bsky.social Logo bottom left corner
August 7, 2025 at 6:03 PM
meactmaryland.bsky.social
Sorry the alt text is the entire list for both images!
The infant mortality rate for Blacks is >2x that of whites. • Blacks have higher rates of chronic conditions, such as hypertension, diabetes, & heart disease, including a 30% > risk of death from heart disease. • Blacks died of COVID-19 at 2.4x the rate of whites; the rate was 2.3x for Hispanics. • ~1/4 of the U.S. population live in areas designated as Health Professional Shortage Areas, & these areas are disproportionately BIPOC populations. • Adults with higher incomes are more likely to receive preventive services such as screenings & vaccinations compared to those with lower incomes. For example, 77% of high-income adults receive flu shots compared to 43% of low-income adults. https://www.kff.org/key-data-on-health-and-health-care-by-race-and-ethnicity/?entry=executive-summary-key-takeaways
June 19, 2025 at 9:30 PM
meactmaryland.bsky.social
Urban Institute: “How Black Families are Faring Under the Shifting Federal Landscape” • Cuts disproportionately affected Black middle-class families in the South. • Rising unemployment is hitting Black women workers especially hard. • Existing & planned tariffs will disproportionately affect Black-owned small businesses • Tariffs could also hit Black farmers esp. hard • Safety net cuts proposed in the reconciliation bill could have the greatest effects on Black consumers • Resumed student loan collections could have an outsized effect on Black households https://www.urban.org/urban-wire/juneteenth-reflection-how-black-families-are-faring-economically-under-shifting-federal
June 19, 2025 at 9:28 PM
meactmaryland.bsky.social
The infant mortality rate for Blacks is >2x that of whites. • Blacks have higher rates of chronic conditions, such as hypertension, diabetes, & heart disease, including a 30% > risk of death from heart disease. • Blacks died of COVID-19 at 2.4x the rate of whites; the rate was 2.3x for Hispanics. • ~1/4 of the U.S. population live in areas designated as Health Professional Shortage Areas, & these areas are disproportionately BIPOC populations. • Adults with higher incomes are more likely to receive preventive services such as screenings & vaccinations compared to those with lower incomes. For example, 77% of high-income adults receive flu shots compared to 43% of low-income adults. https://www.kff.org/key-data-on-health-and-health-care-by-race-and-ethnicity/?entry=executive-summary-key-takeaways
June 19, 2025 at 9:27 PM
meactmaryland.bsky.social
For #Juneteenth we collected some resources:

JUNETEENTH: it's the celebration of the end of slavery in the United States, marking the day when the last enslaved African Americans were free.
nmaahc.si.edu/explore/mome...
June 19, 2025 at 9:23 PM
meactmaryland.bsky.social
QR code
#pediatrics #thoracicoutletsyndrome #TOS #biomechanical #medicaleducation #chronicpain #thoracicspine #ehlersdanlossyndrome #ehlersdanlossyndromes #hypermobility #mecfs #pediatric #meaction #cfsme #cfs #chronicfatiguesyndrome #livedexperience #evidencebased
#MEAction
Alt ID2: Graphic in blue/ yellow/ & white sharing info about the webinar “Biomechanical Manifestations in Pediatric ME/CFS” which launched on June 9, 2025. Large QR code on right side
June 17, 2025 at 7:34 AM
meactmaryland.bsky.social
Dr. Peter Rowe's slides now available for episode 4!

tinyurl.com/RoweSlidesME...
Alt ID1 : Graphic in blue/ yellow/ and white sharing info about “Biomechanical Considerations in Pediatric ME/CFS” with Dr. Peter Rowe on June 9th at 1 pm ET. It includes a photo of Dr. Rowe. Graphic also lists things you will learn & shares that it will be facilitated by #MEAction Maryland. #TeachMETreatME logo is in the bottom corner. This series will be available online at youtube.com/@MEActMaryland
June 17, 2025 at 7:34 AM
meactmaryland.bsky.social
Tues, June 17th at 4 pm ET is our monthly support call (3rd Tuesday of every month).

We need community & support now more than ever.

Come As You Are and share as little or as much as you want!

Link in linktree
Turquoise background with sunflowers #meaction Maryland logo Text: Community Support; June 17th @ 4pm
June 15, 2025 at 6:39 PM
meactmaryland.bsky.social
Episode 4 debuted today!

And of course it has a full transcript available too! tinyurl.com/RoweTranscri...
Graphic in blue/ yellow/ and white sharing info about the upcoming event: “Biomechanical Considerations in Pediatric ME/CFS” with Dr. Peter Rowe on June 9th at 1 pm ET. It includes a photo of Dr. Rowe @meactnet.social.bsky #MEAction Maryland #TeachMETreatME
June 9, 2025 at 8:57 PM
meactmaryland.bsky.social
Premiering Now: Biomechanical Considerations in Pediatric ME/CFS the 4th Episode in the #MedEd Webinar Series by Dr. Peter Rowe youtube.com/@meactmaryland

Do you struggle to shampoo your hair? Grip strength? Come learn more! #MyalgicEncephalomyelitis ##thoracicoutletsyndrome #tos
Alt ID1 : Graphic in blue/ yellow/ and white sharing info about the upcoming event: “Biomechanical Considerations in Pediatric ME/CFS” with Dr. Peter Rowe on June 9th at 1 pm ET. It includes a photo of Dr. Rowe #MEAction #TeachMETreatME @MeActnet
June 9, 2025 at 4:58 PM
meactmaryland.bsky.social
“Evidence-Based Pediatric ME/CFS" Webinar Series by Dr. Rowe
1) Evidence-Based Pediatric ME/CFS
2) Orthostatic Intolerance in Pediatric ME/CFS
3) Hypermobility and EDS in Pediatric ME/CFS
4) Biomechanical Manifestations in Pediatric ME/CFS 5) Neuroanatomical Manifestations in Pediatric ME/CFS
ALT TEXT: Graphic in blue/ yellow/ and white sharing info on the “Evidence-Based Pediatric ME/CFS Webinar Series by Dr Peter Rowe” facilitated by @Meactnetmaryland.bsky.social 1) Evidence-Based Pediatric ME/CFS 2) Orthostatic Intolerance in Pediatric ME/CFS 3) Hypermobility and EDS in Pediatric ME/CFS 4) Biomechanical Manifestations in Pediatric ME/CFS 5) Neuroanatomical Manifestations in Pediatric ME/CFS
June 3, 2025 at 7:53 AM
meactmaryland.bsky.social
The objectives of this #MedEd webinar:
1) Joint hypermobility & Ehlers-Danlos Syndrome are risk factors for ME/CFS, orthostatic intolerance, & structural dysfunctions
2)Symptoms can be provoked by application of a neural strain
3) Adverse neural tension & neural tension dysfunction.
Alt ID: Graphic in blue/ yellow/ and white sharing info about the webinar “Biomechanical Manifestations in Pediatric ME/CFS” which launched on June 9 at 1 pm ET. The graphic also lists things you will learn and shares that it will be facilitated by #MEAction Maryland. Those are also listed in this post. #TeachMETreatME logo is in the bottom corner. This series will be available online at youtube.com/@MEActmaryland
June 3, 2025 at 7:53 AM
meactmaryland.bsky.social
May Community Support
5/20, Tuesday
@4pm
Link in linktree
Background floral border
May Community Support 5/20, Tuesday @4pm Link in linktree Background floral border
May 19, 2025 at 8:26 AM
meactmaryland.bsky.social
Team Griff was channeling my inner feelings and did not leave bed
#MyalgicEncephalomyelitis #MECFS
#NEISVoid
Black cat called Griff stares with big green eyes at the camera from a whole pile of blankets (one of which happens to have black cats with green eyes on it)
May 18, 2025 at 3:15 AM
meactmaryland.bsky.social
Team Terra agrees.
#BlueSundayforME2025
Tortishell cat named Terra tours a Blue Sunday MECFS table scape involving a blue teapot, cup, & teabag holder in wedgewood design along with two candles & two iced tea glasses & a pitcher made of glass with blue spackles of paint in multi shades along the bottom.
May 18, 2025 at 3:15 AM
meactmaryland.bsky.social
Trying to prep for #BlueSundayForME tomorrow, & my cats have definite opinions.

Team ZeeZee votes wedgewood teapot
#TeaPartyForME2025

www.facebook.com/share/p/1AeD...
Calico cat nicknamed ZeeZee tours a Blue Sunday MECFS table scape involving a blue teapot, cup, & teabag holder in wedgewood design along with two candles & a tiny blue glass decorative vase pitcher hybrid
May 18, 2025 at 3:15 AM
meactmaryland.bsky.social
All links on our linktree (Zoom not live until Sunday).

Share your Blue Sunday moments (tea, cake, wearing blue!) using #BlueSunday. Let's build community, even when we're apart.

#BlueSunday2025 #MyalgicEncephalomyelitis #ChronicIllness #MEAwareness #VirtualTeaParty #MillionsMissing
May 14, 2025 at 5:51 AM
meactmaryland.bsky.social
How: Participate virtually from the comfort of your home!

Join: #MEAction Maryland & Dr Kristina Hallett for a ~20min talk = Q&A on the difference it makes in Quality of Life to be believed by the medical community.

Stay after: for Bingo (with prizes!)

Stay after: to chat!
May 14, 2025 at 5:51 AM
meactmaryland.bsky.social
BLUE SUNDAY
May 18th @ 1pm ET

Living with #MECFS can be isolating, but you're not alone. Join the virtual Blue Sunday gathering to connect with others who understand.

We'll be sharing moments of community and raising awareness together
May 14, 2025 at 5:51 AM