MEAction UK
@meactionuk.bsky.social
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
We have a small window to get ME research funded in the ME/CFS Delivery Plan. Raise your voice and join us in our S.O.S. campaign by writing to politicians and funding bodies 👇📩
ow.ly/8vxF50VFjTm
#MillionsMissing #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness
ow.ly/8vxF50VFjTm
#MillionsMissing #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness
April 22, 2025 at 11:52 AM
We have a small window to get ME research funded in the ME/CFS Delivery Plan. Raise your voice and join us in our S.O.S. campaign by writing to politicians and funding bodies 👇📩
ow.ly/8vxF50VFjTm
#MillionsMissing #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness
ow.ly/8vxF50VFjTm
#MillionsMissing #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness
“There is a sound economic argument for spending more money on research. If just a fraction of people who are unwell with ME were able to go back to work by dint of that research, that would be a good financial outcome.”
ow.ly/r0Ju50VFjTn
ow.ly/r0Ju50VFjTn
April 22, 2025 at 11:52 AM
“There is a sound economic argument for spending more money on research. If just a fraction of people who are unwell with ME were able to go back to work by dint of that research, that would be a good financial outcome.”
ow.ly/r0Ju50VFjTn
ow.ly/r0Ju50VFjTn
Prof Ponting makes a point that should be taken very seriously by @ashleydaltonmp.bsky.social,
@rthonwesstreeting.bsky.social , the DHSC, the MRC and NIHR.
@rthonwesstreeting.bsky.social , the DHSC, the MRC and NIHR.
April 22, 2025 at 11:52 AM
Prof Ponting makes a point that should be taken very seriously by @ashleydaltonmp.bsky.social,
@rthonwesstreeting.bsky.social , the DHSC, the MRC and NIHR.
@rthonwesstreeting.bsky.social , the DHSC, the MRC and NIHR.
They concluded that 404,000 people are living with the illness, a figure that is two thirds higher than previously thought, and many are being “completely overlooked”.
April 22, 2025 at 11:52 AM
They concluded that 404,000 people are living with the illness, a figure that is two thirds higher than previously thought, and many are being “completely overlooked”.
'Researchers at the University of Edinburgh analysed NHS records from 62 million people to come up with the best estimate yet of the prevalence of ME, also known as chronic fatigue syndrome (CFS).
April 22, 2025 at 11:52 AM
'Researchers at the University of Edinburgh analysed NHS records from 62 million people to come up with the best estimate yet of the prevalence of ME, also known as chronic fatigue syndrome (CFS).