Prepare for your home assessment

Stuart Murdoch, frontman of Belle and Sebastian, invites you to join him in a guided meditation. Through his own journey with ME, Stuart has discovered how meditation can calm and support the nervous system. #MEAction is deeply grateful to Stuart for sharing his time and talents to uplift the ME community. We encourage you to take a moment to listen and follow along with his meditation. Please adapt the practice in whatever way feels right for you.

New Medicaid work rules will take effect at the end of 2026. Our care and support systems have long been rigged against disabled people, and these new paperwork rules will push even more sick people off the care and support they need.Please sign our letter to the HHS Secretary urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that their access to Medicaid is protected.Why Medically Frail Congress has mandated that Medicaid recipients work 80 hours a month unless t

MEAction UK is now officially an independent UK registered charity

Good news: Congress has extended Telehealth until January 31,2026 as part of a deal to end the government shutdown.This is not a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent. Join #MEAction in putting pressure on Congress to make Telehealth for Medicare permanent! Call your Member now using our call script, and tell Congress to stop messing around with your healthcare!For people with ME and Long COVID, Telehealth is crucial but ev

#MEAction is thinking of our community during these unpredictable times.You’re doing your best. Reaching out for help takes courage and vulnerability. You deserve to feed yourself and anyone you care for with dignity. Finding help isn’t charity. It’s survival, community, and resilience.Here are some resources to help keep your fridge stocked: Call 2-1-1 (just dial 211) for your zip code — they’re a free hotline linking to local food pantries, soup kitchens, and emergency food services. usa.gov+1

This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for funding for the ME/CFS Research Roadmap: Secured a meeting with the NIH Director, and got the roadmap included in Congress’ draft appropriations language.2. Helping Minnesotans with ME/CFS and Long COVID apply for home care support by launching the Minnesota Home Help Navigation Program.3. Fighting

Join our social media campaign to advocate for Medicaid and ACA.

Summary review of the recent RECOVER TLC Workshop

WGI Workshops start in November. Apply today!

Issue 2 features poems, stories, and essays by 28 writers who call themselves the Pillow Writers and share more than 100 pages of their poetry, fiction and essays.

The launch of the Minnesota Home Help Navigation Program is proof that advocacy works.

With the Minnesota Home Help Navigation Program now underway, here’s an inside look at the strategic choices in our patient-led playbook.

Pilot program offers free support for Minnesotans with energy-limiting illness

Meet #MEAction’s Newest Staff Member- Linda Pozen

#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report! This is a big step in the right direction. Everyone’s advocacy, including the work of #NotJustFatigue and Solve M.E. have led to this step. I am … Celebrating A Big Senate Win Read More » The post Celebrating A Big Senate Win appeared first on #MEAction Network.

We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research. Our Scientific Director, Jaime Seltzer, is in the process of coordinating analysis for three major studies, including our massive symptoms survey and pacing survey, drawn directly from the patient experience. Jaime is also … #MEAction’s Pacing Narrative Data Gets Published in First Paper + MORE Science updates! Read More » The post #MEAction’s Pacing Narrative Data Gets Published in First Paper + MORE Science updates! appeared first on #MEAction Network.

Learn more about this year’s project The post Severe ME Artists Project 2025 appeared first on #MEAction Network.

The University of North Carolina closed its Long COVID clinic last week after its federal funding ran out. It was the sole Long COVID clinic in North Carolina. The clinic has been a lifeline to thousands of people living with complex conditions often triggered by infection, including Long COVID, myalgic encephalomyelitis / chronic fatigue syndrome … Press Release: UNC Closes its Long COVID Clinic – the Only One in the State Read More » The post Press Release: UNC Closes its Long COVID Clinic – the Only One in the State appeared first on #MEAction Network.

#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers: Join us for our Pillow Writers En Español meetings! A place where ME/CFS/Long Covid patients are welcome to participate through writing. This #MEAction-sponsored event has been held in English for over three years. We … Pillow Writers en Español Read More » The post Pillow Writers en Español appeared first on #MEAction Network.

Happy Juneteenth from all of us here at #MEAction! Juneteenth commemorates June 19th, 1865 when slavery of African-Americans was officially enforced. To celebrate we have put together a summer reading list of books by disabled Black authors. Keah Brown is an American author who was born with cerebral palsy. She created the popular hashtag #disabledandcute … Happy Juneteenth + Black Disabled Authors Reading List Read More » The post Happy Juneteenth + Black Disabled Authors Reading List appeared first on #MEAction Network.

We have good news! The first-in-the-nation Long COVID program run by the Minnesota Department of Health (MDH) has been saved from elimination! This means #MEAction will be able to continue its work helping Minnesotans with ME/CFS, Long COVID and related conditions access vital home and community-based support services, as part of our multi-year grant. Last … Minnesota’s Long COVID Funding Saved from Elimination Read More » The post Minnesota’s Long COVID Funding Saved from Elimination appeared first on #MEAction Network.

On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh. The rally sent a clear and urgent message to the Scottish Government to act on the £4.5 million pledged in the 2025-26 budget for specialist support for ME, Long Covid, and other similar conditions. This year’s theme, ‘Red … Millions Missing Scotland 2025 raises a red alert Read More » The post Millions Missing Scotland 2025 raises a red alert appeared first on #MEAction Network.

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family. The post Research Roadmap Petition appeared first on #MEAction Network.

At 5:00 pm Eastern time yesterday, we found out that the Minnesota house would be voting on a bill that would remove funding to all Long COVID grants, including #MEAction’s grant, which allows us to provide direct support to people with ME and Long COVID. This is yet another SOS moment for people in our … SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk Read More » The post SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk appeared first on #MEAction Network.