Yann (ME/LC)
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Oh damn didn’t expect this 😂. Haven’t taken a serious bio / med course in my life.
September 11, 2025 at 7:13 PM
Oh damn didn’t expect this 😂. Haven’t taken a serious bio / med course in my life.
On dirait vraiment un
September 2, 2025 at 12:35 PM
On dirait vraiment un
I keep this infographic handy when I counter the types arguing USSR or Xi’s China is model socialism.
August 17, 2025 at 9:56 AM
I keep this infographic handy when I counter the types arguing USSR or Xi’s China is model socialism.
Reminds me of this paragraph I wrote about peer review somewhere else.
August 12, 2025 at 1:43 PM
Reminds me of this paragraph I wrote about peer review somewhere else.
Screenshot since was blocked
August 4, 2025 at 1:59 PM
Screenshot since was blocked
Common unfortunately in leftist spaces. When you point out they use bigoted insults against their enemies you’re accused of being the enemy. It’s a real shame.
August 4, 2025 at 11:31 AM
Common unfortunately in leftist spaces. When you point out they use bigoted insults against their enemies you’re accused of being the enemy. It’s a real shame.
This is Isla at age 8.
She died at age 18 with severe ME/CFS.
Isla’s mum, who took care of Isla and tried to protect her from abusive medical professionals has been arrested. The state and medical system are trying to blame her for a death resulting from neglect and harmful medical practice.
She died at age 18 with severe ME/CFS.
Isla’s mum, who took care of Isla and tried to protect her from abusive medical professionals has been arrested. The state and medical system are trying to blame her for a death resulting from neglect and harmful medical practice.
![More, more, more
You are meant to understand my illness but you all do is push, push, push. Nothing I do is ever good enough. I am proud and think you will be pleased with me as I have been going to school much more than before, but all you do is say I need to stay there longer, and if I feel ill I can’t [go] home early. I can’t get to sleep at night and you make me feel like it is my fault. You tell my parents to ignore me at night time, even when I am upset and feeling scared and lonely. Lucky for me they ignore you! I am so tired but you say I still have to get out of bed and walk even at the weekend after I have been at school all week. I don’t like coming to see you, it makes me worry what you are going to ask me to do next. My mum tells you I sometimes feel much worse but you tell us I just have to do more, more, more. You speak to my school and I worry they will be on your side and expect more of me too. I worry about what you are going to tell us to do next. I think you should care more about the children who come to see you and try to understand what they are going through.
From Isla aged 8](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:tbjkzimgulox2kwiykbhspfn/bafkreicns5bi5awyizdmale5oex7evjygihsoc7lzaop536t4fh4tunxna@jpeg)
July 31, 2025 at 12:40 PM
This is Isla at age 8.
She died at age 18 with severe ME/CFS.
Isla’s mum, who took care of Isla and tried to protect her from abusive medical professionals has been arrested. The state and medical system are trying to blame her for a death resulting from neglect and harmful medical practice.
She died at age 18 with severe ME/CFS.
Isla’s mum, who took care of Isla and tried to protect her from abusive medical professionals has been arrested. The state and medical system are trying to blame her for a death resulting from neglect and harmful medical practice.
Maybe we should follow the footsteps of the french.
(For legal reasons this is a joke).
(For legal reasons this is a joke).
July 6, 2025 at 11:27 AM
Maybe we should follow the footsteps of the french.
(For legal reasons this is a joke).
(For legal reasons this is a joke).
sorry no energy for alt text.
July 2, 2025 at 12:06 AM
sorry no energy for alt text.
I did some crude editing on my phone to remove the half broken textbox on the left
July 1, 2025 at 12:44 PM
I did some crude editing on my phone to remove the half broken textbox on the left
Psychiatry has been stuck in an inversion-of-causation fallacy for a century.
Today: “You’re sick because you’re inactive.”
1932: “You’re gay because you’re neurotic.”
Maybe… people are inactive because they’re sick? “Neurotic” because they’re persecuted?
Today: “You’re sick because you’re inactive.”
1932: “You’re gay because you’re neurotic.”
Maybe… people are inactive because they’re sick? “Neurotic” because they’re persecuted?
June 29, 2025 at 4:20 PM
Psychiatry has been stuck in an inversion-of-causation fallacy for a century.
Today: “You’re sick because you’re inactive.”
1932: “You’re gay because you’re neurotic.”
Maybe… people are inactive because they’re sick? “Neurotic” because they’re persecuted?
Today: “You’re sick because you’re inactive.”
1932: “You’re gay because you’re neurotic.”
Maybe… people are inactive because they’re sick? “Neurotic” because they’re persecuted?
I mean calling a study that is literally used across universities as an example of how NOT to conduct RCTs, is pretty baffling.
It’s almost as if these people will say everything that confirms their biases is a well done study and anything that doesn’t is a poorly done study.
It’s almost as if these people will say everything that confirms their biases is a well done study and anything that doesn’t is a poorly done study.
May 14, 2025 at 5:45 PM
I mean calling a study that is literally used across universities as an example of how NOT to conduct RCTs, is pretty baffling.
It’s almost as if these people will say everything that confirms their biases is a well done study and anything that doesn’t is a poorly done study.
It’s almost as if these people will say everything that confirms their biases is a well done study and anything that doesn’t is a poorly done study.
Labels out of date but the UK seems very much stuck in this cycle.
April 28, 2025 at 5:39 PM
Labels out of date but the UK seems very much stuck in this cycle.
Can relate with that. I’m surrounded by boxes on my shelf ahha
March 30, 2025 at 8:03 PM
Can relate with that. I’m surrounded by boxes on my shelf ahha
Absolutely gutting news. Another person with ME/CFS died of starvation after being refused tube feeding.
The NHS was warned about this months ago, after Maeve’s inquest. And nothing was done to improve the situation.
The scariest part is that the cases we know of are only the tip of the iceberg.
The NHS was warned about this months ago, after Maeve’s inquest. And nothing was done to improve the situation.
The scariest part is that the cases we know of are only the tip of the iceberg.
March 29, 2025 at 5:31 PM
Absolutely gutting news. Another person with ME/CFS died of starvation after being refused tube feeding.
The NHS was warned about this months ago, after Maeve’s inquest. And nothing was done to improve the situation.
The scariest part is that the cases we know of are only the tip of the iceberg.
The NHS was warned about this months ago, after Maeve’s inquest. And nothing was done to improve the situation.
The scariest part is that the cases we know of are only the tip of the iceberg.
The irony of our inability to protest is we are painted as ruthless militants by our biggest oppressors.
(Yes, bedridden militants who have to rest a couple days after taking a shower).
But calling people you don’t agree with “militants” or “activists” helps make you sound better, I guess.
(Yes, bedridden militants who have to rest a couple days after taking a shower).
But calling people you don’t agree with “militants” or “activists” helps make you sound better, I guess.
March 26, 2025 at 12:03 PM
The irony of our inability to protest is we are painted as ruthless militants by our biggest oppressors.
(Yes, bedridden militants who have to rest a couple days after taking a shower).
But calling people you don’t agree with “militants” or “activists” helps make you sound better, I guess.
(Yes, bedridden militants who have to rest a couple days after taking a shower).
But calling people you don’t agree with “militants” or “activists” helps make you sound better, I guess.
I have been sick with Long COVID for 3 years.
Bedridden for nearly two years.
Unable to have a conversation for 1.5 years.
Long COVID is devastating, and it doesn’t always get better with time.
#LongCOVIDAwarenessDay
Bedridden for nearly two years.
Unable to have a conversation for 1.5 years.
Long COVID is devastating, and it doesn’t always get better with time.
#LongCOVIDAwarenessDay
March 15, 2025 at 5:51 PM
I have been sick with Long COVID for 3 years.
Bedridden for nearly two years.
Unable to have a conversation for 1.5 years.
Long COVID is devastating, and it doesn’t always get better with time.
#LongCOVIDAwarenessDay
Bedridden for nearly two years.
Unable to have a conversation for 1.5 years.
Long COVID is devastating, and it doesn’t always get better with time.
#LongCOVIDAwarenessDay