Muscular Dystrophy Pakistan
@mdpakistanorg.bsky.social
Our mission is to empower the muscular dystrophy community through education, advocacy, collaboration, and compassionate outreach.We actively engage with healthcare providers, researchers, policymakers, and global partners to improve the quality of Life.
Proud Moment – Muscular Dystrophy Pakistan 🇵🇰
Muscular Dystrophy Pakistan,
successfully participated in the 2-Day Duchenne Patient Academy organized by the WDO. This global training strengthened skills in:
✔️ Patient advocacy
✔️ Standards of care
✔️ Research & clinical trials
✔️ Global collaboration
Muscular Dystrophy Pakistan,
successfully participated in the 2-Day Duchenne Patient Academy organized by the WDO. This global training strengthened skills in:
✔️ Patient advocacy
✔️ Standards of care
✔️ Research & clinical trials
✔️ Global collaboration
December 16, 2025 at 4:07 AM
Proud Moment – Muscular Dystrophy Pakistan 🇵🇰
Muscular Dystrophy Pakistan,
successfully participated in the 2-Day Duchenne Patient Academy organized by the WDO. This global training strengthened skills in:
✔️ Patient advocacy
✔️ Standards of care
✔️ Research & clinical trials
✔️ Global collaboration
Muscular Dystrophy Pakistan,
successfully participated in the 2-Day Duchenne Patient Academy organized by the WDO. This global training strengthened skills in:
✔️ Patient advocacy
✔️ Standards of care
✔️ Research & clinical trials
✔️ Global collaboration
December 8, 2025 at 12:52 PM
📢 Muscular Dystrophy Pakistan – Official WhatsApp Channel Launched!
Stay connected. Stay informed
✨ Join us and become part of a growing community working for early diagnosis, support, and hope for every MD family in Pakistan.
👉 Follow our WhatsApp Channel:
whatsapp.com/channel/0029...
Stay connected. Stay informed
✨ Join us and become part of a growing community working for early diagnosis, support, and hope for every MD family in Pakistan.
👉 Follow our WhatsApp Channel:
whatsapp.com/channel/0029...
December 3, 2025 at 3:44 AM
📢 Muscular Dystrophy Pakistan – Official WhatsApp Channel Launched!
Stay connected. Stay informed
✨ Join us and become part of a growing community working for early diagnosis, support, and hope for every MD family in Pakistan.
👉 Follow our WhatsApp Channel:
whatsapp.com/channel/0029...
Stay connected. Stay informed
✨ Join us and become part of a growing community working for early diagnosis, support, and hope for every MD family in Pakistan.
👉 Follow our WhatsApp Channel:
whatsapp.com/channel/0029...
Dear Team Members of EveryLife Foundation for Rare Diseases,
From my perspective, Thanksgiving is a special time to pause and recognize the power of collaboration, kindness, and shared purpose. Today.
With gratitude,
Ghulam Ali
Founder and CEO- Research Fellow
Muscular Dystrophy Pakistan
From my perspective, Thanksgiving is a special time to pause and recognize the power of collaboration, kindness, and shared purpose. Today.
With gratitude,
Ghulam Ali
Founder and CEO- Research Fellow
Muscular Dystrophy Pakistan
November 27, 2025 at 2:10 AM
Dear Team Members of EveryLife Foundation for Rare Diseases,
From my perspective, Thanksgiving is a special time to pause and recognize the power of collaboration, kindness, and shared purpose. Today.
With gratitude,
Ghulam Ali
Founder and CEO- Research Fellow
Muscular Dystrophy Pakistan
From my perspective, Thanksgiving is a special time to pause and recognize the power of collaboration, kindness, and shared purpose. Today.
With gratitude,
Ghulam Ali
Founder and CEO- Research Fellow
Muscular Dystrophy Pakistan
🌟 This Giving Tuesday – 2 December 2025 🌟
Join us in making a difference! 🤝💙
Muscular Dystrophy Pakistan is dedicated to supporting individuals and families affected by Muscular Dystrophy. Your generous contribution today can help provide:
💙 Together, we can empower lives.
Join us in making a difference! 🤝💙
Muscular Dystrophy Pakistan is dedicated to supporting individuals and families affected by Muscular Dystrophy. Your generous contribution today can help provide:
💙 Together, we can empower lives.
November 26, 2025 at 9:20 AM
🌟 This Giving Tuesday – 2 December 2025 🌟
Join us in making a difference! 🤝💙
Muscular Dystrophy Pakistan is dedicated to supporting individuals and families affected by Muscular Dystrophy. Your generous contribution today can help provide:
💙 Together, we can empower lives.
Join us in making a difference! 🤝💙
Muscular Dystrophy Pakistan is dedicated to supporting individuals and families affected by Muscular Dystrophy. Your generous contribution today can help provide:
💙 Together, we can empower lives.
Sarepta Therapeutics, Inc. announced that the FDA has approved dosing in Cohort 8 of ENDEAVOR (Study 9001-103). Purpose of Cohort 8 is evaluate use of enhanced immunosuppressive regimen part of treatment with ELEVIDYS (delandistrogene moxeparvovec-rokl) for non-ambulant individuals with DMD.
November 26, 2025 at 7:19 AM
Sarepta Therapeutics, Inc. announced that the FDA has approved dosing in Cohort 8 of ENDEAVOR (Study 9001-103). Purpose of Cohort 8 is evaluate use of enhanced immunosuppressive regimen part of treatment with ELEVIDYS (delandistrogene moxeparvovec-rokl) for non-ambulant individuals with DMD.
New MINA Rare Disease of genetic disorder found.
November 25, 2025 at 5:35 AM
New MINA Rare Disease of genetic disorder found.
Muscular Dystrophies...
November 24, 2025 at 9:45 AM
Muscular Dystrophies...
November 22, 2025 at 6:12 AM
Few clicks of the Fruitful meeting at Aga Khan University Hospital Karachi with Dr Sara Khan Neurologist Specialist.
November 19, 2025 at 5:05 PM
Few clicks of the Fruitful meeting at Aga Khan University Hospital Karachi with Dr Sara Khan Neurologist Specialist.
Common Symptoms of Muscular Dystrophy...
November 11, 2025 at 7:29 AM
Common Symptoms of Muscular Dystrophy...
Motor Function in LGMD 2A/R1
November 11, 2025 at 7:28 AM
Motor Function in LGMD 2A/R1
About Dechene Muscular Dystrophy DMD.
October 31, 2025 at 11:55 AM
About Dechene Muscular Dystrophy DMD.
Regarding LGMD Awareness Day of 30 September By Muscular Dystrophy Pakistan...
Thanks to EveryLife Foundation for Rare Diseases.
Thanks to EveryLife Foundation for Rare Diseases.
October 11, 2025 at 3:45 AM
Regarding LGMD Awareness Day of 30 September By Muscular Dystrophy Pakistan...
Thanks to EveryLife Foundation for Rare Diseases.
Thanks to EveryLife Foundation for Rare Diseases.
