Muscular Dystrophy Association
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Muscular Dystrophy Association
@mda.org
MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
When the next 75 years start with the impact you’ve already made 🙏

Families got answers. Kids built independence. Caregivers felt supported. Research & advocacy moved forward.

We can’t thank you enough.

💙💛 #ForwardTogether #MDA75
October 29, 2025 at 7:00 PM
Inspired by his uncle and cousin who lived with muscular dystrophy, Zack has volunteered at MDA Summer Camp for the last 14 years.

He says the community gives him strength, but it’s his commitment that makes us stronger. Thank you, Zack!

💙💛 #ForwardTogether #MDA75 #MDAVolunteer
October 16, 2025 at 2:00 PM
The 2026 #MDAconference agenda is LIVE! 🧬Join global leaders in #neuromuscular research, care & advocacy March 8-11 in Orlando FL. View tracks, speakers & sessions: www.mda.org/press-releas...

#NeuromuscularResearch #GeneticMedicine #RareDisease #ClinicalCare#RareDiseaseshtag/ClinicalCare" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#ClinicalCarehtag/GeneticMedicine" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#GeneticMedicineg/NeuromuscularResearch" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#NeuromuscularResearch
October 15, 2025 at 1:00 PM
This year, thousands of families found answers, care & hope because of you.

From research to camp memories, your support goes beyond numbers — it changes lives.

💙💛 #ForwardTogether #MDA75
October 2, 2025 at 12:00 AM
💪 “Being strong is showing up and giving my all—even when I face challenges.” – Brayden, MDA Ambassador

This Sept, discover what it means to be #MDAstrong.

Donate $35.75+ & get our 75th anniversary tee: www.mda.org/Strong
What makes you strong? mda.org/MDAstrong
August 25, 2025 at 1:30 PM
🚨 Registration is OPEN! 🚨
Join us March 8–11, 2026 in Orlando for the #MDAConference, the leading global event for neuromuscular care & research. 🌍🧬

🔗 Register now: www.mdaconference.org

#MDA #MuscularDystrophy #neuromuscular
August 21, 2025 at 5:46 PM
How do you raise the standard of care? You make it law.

Thanks to the MD-Care Act, more people with neuromuscular disease now have access to the care they need.

Join us in making an impact: MDA75.org. 💙💛

#MDA75 #MuscularDystrophy #ALS #Neuromuscular
July 14, 2025 at 10:08 PM
Dr. Jeni Stepanek calls herself a welcome mat.

But not because she is walked on - because she invites others in and celebrates their stories. Stories defined by purpose and potential.

Watch her story and share yours at #75YearsStrong!

💙💛

#MDA75
#MuscularDystrophy #Neuromuscular
July 10, 2025 at 2:09 PM
We are proud of what MDA advocates have accomplished over the past six months. We know many in our community are feeling anxious or uncertain about what comes next. Join us July 15 @ 7PM ET for a special MDA Advocacy Institute: Medicaid and the Path Forward.
July 9, 2025 at 6:00 PM
Congress has passed legislation that makes historic cuts to #Medicaid, #Medicare, and #ACA, & it could leave 17M more uninsured, including those w/ #neuromuscular diseases.

#MDA is disappointed, and we pledge to defend our community.

Read the full statement: www.mda.org/press-releas...
July 3, 2025 at 7:06 PM
Today, the U.S. Senate passed a bill making devastating cuts to Medicaid & other health programs that the #neuromuscular community relies on to build healthy lives & independence.

Urge the House to reject this bill & its cuts NOW!

Read #MDA's statement: www.mda.org/press-releas...
July 1, 2025 at 8:13 PM
🚨 NEW: MDA + FARA are co-funding a $300K research grant to study cardiac fibrosis in Friedreich’s ataxia (FA), a key cause of heart failure in FA. This study could lead to life-changing therapies.

🔗 www.mda.org/press-releas...

#FriedreichsAtaxia #CardiacResearch #FAresearch #Neuromuscular
June 30, 2025 at 3:57 PM
Today, MDA & 41 neuromuscular disease organizations sent a letter to the U.S. Senate leadership rejecting cuts to #Medicaid and affordable health insurance coverage/services used by the #neuromuscular community - raising costs, imposing red tape, and delaying care.
June 16, 2025 at 10:50 PM
In 1986, Dr. Lou Kunkel cracked the genetic code of dystrophin, the gene behind Duchenne and Becker muscular dystrophies. This breakthrough paved the way for lifesaving treatments and gene therapies that are transforming lives today. 💛💙

Donate today: MDA75.org
June 12, 2025 at 3:04 PM
Sometimes, going the distance for others starts by going the distance yourself. Literally. See how disability advocate & travel blogger Cory Lee helps others see the world—and share your own story at #75YearsStrong!
💙💛
#75YearsStrong #MDA75 #MuscularDystrophy #Neuromuscular #Travel #Adventure
June 4, 2025 at 6:56 PM
📺 One nation, one mission. In 1971, the first national MDA Telethon hit the airwaves—bringing America together to fight neuromuscular disease. Millions watched, donated, and changed lives.

💙 Be part of the next historic moment. Donate today: MDA75.org 💛

#MDA75 #ALS #MuscularDystrophy
May 14, 2025 at 7:32 PM
ALS influencer Brooke Eby’s perspective? You can endure anything if you make it funny. See how she’s tackling ALS and share your own story! 💙💛

#MDA75 #EndALSwithMDA #EndALS #ALS #MuscularDystrophy #Neuromuscular #ALSawarenessMonth #75YearsStrong
May 9, 2025 at 2:50 PM
Every kid deserves a summer of fun. In 1955, we launched #MDA Summer Camp,a place where kids with neuromuscular disease could experience friendship, adventure, and freedom without limits. 75 years later, the magic continues. Help make summers more unforgettable. Donate today: MDA75.org
April 30, 2025 at 1:44 PM
🌟 Not even muscular dystrophy could stop country musician Bradley Walker from becoming a star. Watch his story of hope and share yours at #75YearsStrong. 💙💛 #75YearsStrong #MDA75 #MuscularDystrophy #ALS #Neuromuscular
April 3, 2025 at 9:09 PM
Summer fun can change the world. Just ask #MDA Camp Counselor Devin Jensen. His work with campers living with neuromuscular disease has changed their lives —and changed his too.

Watch his story and share yours! 💙💛

#75YearsStrong #MDA75 #SummerCamp #MuscularDystrophy #Neuromuscular
March 20, 2025 at 1:20 PM
In 1953, the first MDA Care Centers opened—transforming life with neuromuscular disease forever. Today, our impact spans 150+ centers nationwide—helping families every day. Be part of the next breakthrough.

Donate today: MDA75.org 💙💛 #HealthcareHeroes #MDA75 #ALS #MuscularDystrophy
March 12, 2025 at 9:40 PM
When hope wasn't enough, they took action. In just two months, these unstoppable families changed the future of #neuromuscular disease forever. The first breakthrough in our 75-year journey that defined MDA.

Donate now at MDA75.org. 💙💛

#MDA75 #ALS #MuscularDystrophy
February 12, 2025 at 2:39 PM
75 years of hope, progress, & action 💙💛 #MDA’s new PSA, Legacy. Impact. Momentum., celebrates the families, researchers, clinicians, advocates, volunteers, donors, & partners who’ve shaped the fight against #neuromuscular disease.

🎥 Watch the PSA: www.mda.org/press-releas...

MDA75.org #MDA75
January 28, 2025 at 2:19 PM