Mariecece 🌈
@mariecece.bsky.social
I suffer from a chronic illness called Neuro Sjögrens. It’s an autoimmune disease.
I went from happy & healthy to sick fast.
I hope to create awareness about this disease and give an account of what’s happening to me on my journey to some sort of recovery
I went from happy & healthy to sick fast.
I hope to create awareness about this disease and give an account of what’s happening to me on my journey to some sort of recovery
I got a new walking aid. I hate it but I can get out now for more than 5 minutes 😱
July 15, 2025 at 11:37 AM
I got a new walking aid. I hate it but I can get out now for more than 5 minutes 😱
The 6 months of cyclophosphamide helped to a degree, and now I am on collcept, another immunosuppressant and it makes me so sick and more depressed than ever. I also have # myasthenia gravis so that kinda sucks and my cystic lung disease is bad
#NeuroSjögrens #myastheniagravis #cysticlungdisease
#NeuroSjögrens #myastheniagravis #cysticlungdisease
July 15, 2025 at 11:36 AM
The 6 months of cyclophosphamide helped to a degree, and now I am on collcept, another immunosuppressant and it makes me so sick and more depressed than ever. I also have # myasthenia gravis so that kinda sucks and my cystic lung disease is bad
#NeuroSjögrens #myastheniagravis #cysticlungdisease
#NeuroSjögrens #myastheniagravis #cysticlungdisease
Still struggling with this illness and the longer it’s going on the more out of touch with life I have become.. smiling is harder
July 15, 2025 at 11:31 AM
Still struggling with this illness and the longer it’s going on the more out of touch with life I have become.. smiling is harder
I’m always scared to look out my windows at night even a signpost looks like Slenderman 😵💫😮🤯
January 13, 2025 at 10:14 AM
I’m always scared to look out my windows at night even a signpost looks like Slenderman 😵💫😮🤯
This time last year. Glamping in Wicklow. I adored that place
January 5, 2025 at 7:13 PM
This time last year. Glamping in Wicklow. I adored that place
Heat broken on the coldest day of the year so far. Shivering in bed post chemo. Fml #autoimmune Also desperately missing my old life today more than ever. Walks, trees, nature never seemed more out of reach.
January 5, 2025 at 7:11 PM
Heat broken on the coldest day of the year so far. Shivering in bed post chemo. Fml #autoimmune Also desperately missing my old life today more than ever. Walks, trees, nature never seemed more out of reach.
I don’t understand the mindset of a bully. I never have
January 3, 2025 at 2:31 PM
I don’t understand the mindset of a bully. I never have
Back in for 4th round of chemotherapy Cyclophosphamide #autoimmune #Sjögrens please work 🌈
January 3, 2025 at 2:31 PM
Back in for 4th round of chemotherapy Cyclophosphamide #autoimmune #Sjögrens please work 🌈
January 3, 2025 at 12:26 AM
Making room for my endless herbs and spices
January 3, 2025 at 12:24 AM
Making room for my endless herbs and spices
January 3, 2025 at 12:21 AM
Parts of Christmas,, hard to fully enjoy while going through chemo #Sjögrens #autoimmune
January 3, 2025 at 12:19 AM
Parts of Christmas,, hard to fully enjoy while going through chemo #Sjögrens #autoimmune
Christmas is over. It was a hard time dealing with my illness and the holidays. Family and friends are so important especially when you are no longer independent. Tomorrow is my 4th chemo appointment which I dread and fear. Well, happy New Year ❤️ #Sjögrens #autoimmune
January 3, 2025 at 12:17 AM
Christmas is over. It was a hard time dealing with my illness and the holidays. Family and friends are so important especially when you are no longer independent. Tomorrow is my 4th chemo appointment which I dread and fear. Well, happy New Year ❤️ #Sjögrens #autoimmune
Sick and in bed. Autoimmune diseases suck
December 17, 2024 at 7:04 PM
Sick and in bed. Autoimmune diseases suck
Irish cream, fake Baileys and coffee morning ritual at Christmas 🎄
December 11, 2024 at 12:57 PM
Irish cream, fake Baileys and coffee morning ritual at Christmas 🎄
The tree is up! No matter how sick I feel I can always decorate 🎄🎄🎄
December 11, 2024 at 1:08 AM
The tree is up! No matter how sick I feel I can always decorate 🎄🎄🎄
Mmmmm favourite breakfast food
December 7, 2024 at 12:03 PM
Mmmmm favourite breakfast food
Cyclophosphamide is a nasty chemo drug that was given to me to help my autoimmune disease relapse. Spending so much time in hospital made me value the real things in life..family, friends and nature. #Sjögrens #autoimmunediseases
December 7, 2024 at 12:01 PM
Cyclophosphamide is a nasty chemo drug that was given to me to help my autoimmune disease relapse. Spending so much time in hospital made me value the real things in life..family, friends and nature. #Sjögrens #autoimmunediseases
On my way to get my 3rd dose of chemotherapy..a very nasty week lurks ahead
November 29, 2024 at 6:35 AM
On my way to get my 3rd dose of chemotherapy..a very nasty week lurks ahead
So I was diagnosed back in June 2024 with an autoimmune disease called Sjögrens.. I had no idea what this is and what is means. In my case it was endless hospital admissions and a race to see what will stop this disease destroying my body.
November 28, 2024 at 1:49 PM
So I was diagnosed back in June 2024 with an autoimmune disease called Sjögrens.. I had no idea what this is and what is means. In my case it was endless hospital admissions and a race to see what will stop this disease destroying my body.
Waiting for my chemotherapy appointment tomorrow cyclophosphamide. It’s so horrid to get. The after effects are so bad. Autoimmune diseases are so bad and this one has ruined my life! #Sjögrens #autoimmunedisease
November 28, 2024 at 1:46 PM
Waiting for my chemotherapy appointment tomorrow cyclophosphamide. It’s so horrid to get. The after effects are so bad. Autoimmune diseases are so bad and this one has ruined my life! #Sjögrens #autoimmunedisease