Excited to learn from this awesome panel at #AACR2025 as we talk about EO Cancers & their rising rates
As an early onset #colorectalcancer survivor & as someone who sees the impact of #EOCRC daily in #COLONTOWN, we need more concerted efforts to reduce the burden of EOCRC worldwide.
lnkd.in/drM7X2PS

Thrilled to participate in this hashtag#AACR2025 session on Regulatory Trends Shaping the Future of Cancer Drug Development and learn from these experts!
lnkd.in/d4WTshuY
See you there!

Very little can help my general mood of despair, but my goodness, this did..
x.com/timjacobwise...

Next we asked what patients preferred to hear in a hypothetical scenario with no actionable biomarkers, which is the case for ~ 50% of metastatic CRC.
What patients want to know is how does the alphabet soup in their testing results relate to their cancer?
#CRCSM #GI25 9/n

What about the emotional impact of biomarker testing results?
Please see below.
#CRCSM #GI25 8/n

Next we asked how satisfied patients were about #biomarker tests results communication.
Only 17% felt nothing was lacking
Patients & clinicians seem to consider "actionability" of biomarker testing results differently
Our recommendation? see 💡below.
#CRCSM #GI25 7/n

In the next section of the survey, we gathered information about how results were 1st provided & reviewed.
57% of patients viewed #BiomarkerTesting results without their doctor present.
Our recommendation? see 💡below.
#CRCSM #GI25 6/n

For each question, Julie& I had recommendations for clinicians.
For example, in our survey in colontown 31% of respondents indicated that "nothing was discussed" about #BiomarkerTesting before testing was done.
Our recommendation? see 💡below.
#CRCSM #GI25 5/n

Here is the respondent profile. In colontown, our membership is skewed towards stage IV or metastatic #CRC & this is reflected in this poll as well. 44% of patients were seen at an NCI cancer center.
#CRCSM #BiomarkerTesting @ASCO #GI25 3/n

We surveyed colontown members asking to share their #biomarker testing experience through a 46 question online survey. See below for more details.
#CRCSM #ASCOGI25 #GI25 2/n

Thrilled that the colontown poster at #GI25 presented by Julie Clauer generated some traffic!
The clinicians who stopped by & participated in our poll got a special sticker! Thank you so much for your interest & support for our work
@ascocancer.bsky.social #CRCSM #Biomarkers

Please check out the colontown poster at #GI25 presented by Julie on #Biomarker test results communication!
Pl do come by to say hello..
And we have a poll for you as well to find out what sort of a test result communicator you are!! Don’t miss it!
#CRCSM

On my way to #GI25! Delayed already before starting.

Having a very tough time hearing about stuff at the NIH.
Science gives me hope & all this news has been so depressing
#CRCSM

We need to replace Twitter/X with BlueSky on the #ASCOGI25 meeting badge!

Please repost if you agree @ascopost.bsky.social

Merry Christmas to all who celebrate!

The least we can do as a society is to SEE #TheNewFaceOfCRC and
HEAR their stories,
so we can keep #colorectalcancer as a potential possibility in our collective memory...
so that a young, otherwise healthy person with GI symptoms can get the timely help that they need.
7/7

In my 2 years being a rectal cancer survivor, I’ve had people talk about my “disease”..
They couldn’t bring themselves to say “rectal cancer.”
Let us stop being queasy about body parts….
#crcsm #TheNewFaceOfCRC #crc45andunder
2/7

People seem ashamed to say they have/ are diagnosed with/survived #colorectalcancer.
Somehow it is a shameful thing…

We cannot raise awareness about CRC if we can only whisper *colorectal*
#crcsm #TheNewFaceOfCRC #crc45andunder
1/7