Małgorzata Henek
@malhen.bsky.social
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
Happy International PKU Day! #IPKUDAY2025 🌍🎉 Let's celebrate what we have. However PKU is not a solved problem. All European countries have gaps in care that need improvement. I recommend @espku.org
campaign #shadesofpku to see how life with PKU looks like in Europe.
campaign #shadesofpku to see how life with PKU looks like in Europe.
June 28, 2025 at 12:49 PM
Happy International PKU Day! #IPKUDAY2025 🌍🎉 Let's celebrate what we have. However PKU is not a solved problem. All European countries have gaps in care that need improvement. I recommend @espku.org
campaign #shadesofpku to see how life with PKU looks like in Europe.
campaign #shadesofpku to see how life with PKU looks like in Europe.
Yesterday's meeting for adults with #PKU in Cracow was great! Interesting lectures by our doctor and dietitian and cooking PKU versions of Polish Easter dishes proved it can be easy, joyful and tasty! #adultPKUawareness
March 30, 2025 at 8:30 PM
Yesterday's meeting for adults with #PKU in Cracow was great! Interesting lectures by our doctor and dietitian and cooking PKU versions of Polish Easter dishes proved it can be easy, joyful and tasty! #adultPKUawareness
📅 March 29, Kraków – 1st ever #PKU meeting just for adults!
What’s planned?
🔹 PKU doctor & dietitian lectures 🏥
🔹 Easter cooking workshop 🍽️
👨⚕️ Organized by: The Adult Metabolic Clinic of the University Hospital in Kraków & Vitalfo. #adultpkuawaremess
What’s planned?
🔹 PKU doctor & dietitian lectures 🏥
🔹 Easter cooking workshop 🍽️
👨⚕️ Organized by: The Adult Metabolic Clinic of the University Hospital in Kraków & Vitalfo. #adultpkuawaremess
March 19, 2025 at 3:53 PM
📅 March 29, Kraków – 1st ever #PKU meeting just for adults!
What’s planned?
🔹 PKU doctor & dietitian lectures 🏥
🔹 Easter cooking workshop 🍽️
👨⚕️ Organized by: The Adult Metabolic Clinic of the University Hospital in Kraków & Vitalfo. #adultpkuawaremess
What’s planned?
🔹 PKU doctor & dietitian lectures 🏥
🔹 Easter cooking workshop 🍽️
👨⚕️ Organized by: The Adult Metabolic Clinic of the University Hospital in Kraków & Vitalfo. #adultpkuawaremess
Today I've had my first visit at the adult #PKU clinic. The professionalism and enthusiasm of doctor and dietician is very refreshing. I've had comprehensive tests so I know the condition of my body and whether I should take any additional supplements. #adultpkuawareness
March 6, 2025 at 4:10 PM
Today I've had my first visit at the adult #PKU clinic. The professionalism and enthusiasm of doctor and dietician is very refreshing. I've had comprehensive tests so I know the condition of my body and whether I should take any additional supplements. #adultpkuawareness
He'd be 38 years old today....😞 It's such a hard day. He left, we've stayed....
February 25, 2025 at 7:36 PM
He'd be 38 years old today....😞 It's such a hard day. He left, we've stayed....
#InvictusGames2025 begins today! I am holding my fingers crossed for #TeamPoland!
February 8, 2025 at 12:46 PM
#InvictusGames2025 begins today! I am holding my fingers crossed for #TeamPoland!
It's been 2 months since my brother's passing. Today was a bad day for me.
February 2, 2025 at 9:08 PM
It's been 2 months since my brother's passing. Today was a bad day for me.
Have you been to Auschwitz? I have. Two times. And it hit me so much every time. It leaves you speechless and for me it was very hard to process everything I have seen there. So much suffering, so much hatred, so much evil.
January 27, 2025 at 8:55 PM
Have you been to Auschwitz? I have. Two times. And it hit me so much every time. It leaves you speechless and for me it was very hard to process everything I have seen there. So much suffering, so much hatred, so much evil.
We must never forget! Auschwitz didn't come from nowhere. It's terrifying nowadays we are seeing similar behaviours, hearing similar narratives and even political manifestos.
January 27, 2025 at 7:13 PM
We must never forget! Auschwitz didn't come from nowhere. It's terrifying nowadays we are seeing similar behaviours, hearing similar narratives and even political manifestos.
Wspieram i zawsze będę wspierać Wielką Orkiestrę Świątecznej Pomocy. Jurek Owsiak sprawił, że Polacy jednoczą się i zbierają pieniądze na pomoc tym, którzy jej potrzebują, a najmłodsi uczą się w naprawdę cudowny sposób jak to pięknie jest móc pomóc drugiemu człowiekowi #wosp2025
January 26, 2025 at 9:54 PM
Wspieram i zawsze będę wspierać Wielką Orkiestrę Świątecznej Pomocy. Jurek Owsiak sprawił, że Polacy jednoczą się i zbierają pieniądze na pomoc tym, którzy jej potrzebują, a najmłodsi uczą się w naprawdę cudowny sposób jak to pięknie jest móc pomóc drugiemu człowiekowi #wosp2025
Mój brat zmarł bo leczący go onkolodzy skazali go na śmierć. Dodatkowo wykazali się pogardą i brakiem empatii. Mój wniosek odnośnie leczenia raka w PL: brak przerzutów może będą Cię leczyć, ale jeśli są przerzuty prędzej czy później skażą Cię na śmierć tłumacząc, że NFZ za Twoje leczenie nie zapłaci
January 16, 2025 at 2:33 PM
Mój brat zmarł bo leczący go onkolodzy skazali go na śmierć. Dodatkowo wykazali się pogardą i brakiem empatii. Mój wniosek odnośnie leczenia raka w PL: brak przerzutów może będą Cię leczyć, ale jeśli są przerzuty prędzej czy później skażą Cię na śmierć tłumacząc, że NFZ za Twoje leczenie nie zapłaci
Tradycji stało się zadość! Kubek na pamiątkę musiał być!
January 12, 2025 at 7:24 PM
Tradycji stało się zadość! Kubek na pamiątkę musiał być!
Kocham takie widoki! Nigdy mi się nie znudzą.
January 12, 2025 at 8:56 AM
Kocham takie widoki! Nigdy mi się nie znudzą.
"Charakter to sposób, w jaki traktujesz kogoś, kto nie może nic dla Ciebie zrobić. ❤️🤝✨"
January 5, 2025 at 7:02 PM
"Charakter to sposób, w jaki traktujesz kogoś, kto nie może nic dla Ciebie zrobić. ❤️🤝✨"
They are together now. My dog Cesare died today. He missed Rafał greatly. What an annus horribilis!
December 31, 2024 at 12:51 PM
They are together now. My dog Cesare died today. He missed Rafał greatly. What an annus horribilis!
My Christmas won`t be merry or joyful however I wish all of you a Merry Christmas!
December 24, 2024 at 1:04 PM
My Christmas won`t be merry or joyful however I wish all of you a Merry Christmas!
Wczoraj zmarł mój brat. 😭Przez prawie dwa lata dzielnie walczył z rakiem trzustki. W tym zakresie zawiódł go system polskiej służby zdrowia. Chorował także na Fenyloketonurię. Byliśmy z nim do końca. Do końca walczył. Nasz wojownik.
December 3, 2024 at 12:38 PM
Wczoraj zmarł mój brat. 😭Przez prawie dwa lata dzielnie walczył z rakiem trzustki. W tym zakresie zawiódł go system polskiej służby zdrowia. Chorował także na Fenyloketonurię. Byliśmy z nim do końca. Do końca walczył. Nasz wojownik.
On the occasion of International PKU Day #PKUDAY2024, E.S.PKU launched the 'The Life of Adults with PKU' campaign. It was a global success, raising awareness abt the reality of life of adults with PKU. Soon E.S.PKU will share new info about campaign! Don't miss it.
November 26, 2024 at 11:46 AM
On the occasion of International PKU Day #PKUDAY2024, E.S.PKU launched the 'The Life of Adults with PKU' campaign. It was a global success, raising awareness abt the reality of life of adults with PKU. Soon E.S.PKU will share new info about campaign! Don't miss it.
Hi! 👋 My name is Gosia (she/her). I live in Poland (Upper Silesia). I am a specialist in child support benefits, social media and campaign manager, patient advocate for individuals with #PKU I love reading books, listening to music, learning new languages, flying, watching ski jumping and tennis.
November 14, 2024 at 3:30 PM
Hi! 👋 My name is Gosia (she/her). I live in Poland (Upper Silesia). I am a specialist in child support benefits, social media and campaign manager, patient advocate for individuals with #PKU I love reading books, listening to music, learning new languages, flying, watching ski jumping and tennis.