Patient Focused Medicines Development (PFMD)
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madewithpatients.bsky.social
Patient Focused Medicines Development (PFMD)
@madewithpatients.bsky.social
32 followers 33 following 28 posts
We are a multi-stakeholder coalition uniting the people, frameworks, and tools needed to make patient engagement a standard in healthcare worldwide.
Visit us at https://patientfocusedmedicine.org/
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madewithpatients.bsky.social
At #PEOF2025, BMJ’s Emma Doble shared how patients are shaping research. As reviewers, authors & partners, they are redefining what credible science looks like: evidence built with empathy.

Watch her speak:

#PFMD #MwP
November 27, 2025 at 12:56 PM
madewithpatients.bsky.social
10 years of shared frameworks have turned PE into evidence shaping science, policy & care. As the EMA consultation continues, it marks a collective opportunity to embed lasting change in how patient experience data informs health decisions.

Explore more: pemsuite.org

#PE #EMA
November 26, 2025 at 1:29 PM
madewithpatients.bsky.social
PFMD's PE Intelligence data shows patient input drives real financial value with 61 days saved per avoided protocol change & 500x ROI from initial PE investment. Patient engagement is now a strategic lever reshaping costs, risk, and speed in clinical development.

#PatientEngagement
November 25, 2025 at 1:14 PM
madewithpatients.bsky.social
The latest OECD Health at a Glance report shows progress. The real opportunity now is a deeper partnership with patients — listening, involving & co-creating care that builds trust and strengthens every interaction.
 
Full report: oe.cd/6gn
 
#HealthAtAGlance #OECD #PE
November 24, 2025 at 12:59 PM
madewithpatients.bsky.social
One patient story. One room that listened. One national policy changed.
Watch how Robert Joyce helped shift the system — simply by speaking up.

#PFMD #MadeWithPatients #PEOF2025
#PolicyChange
November 20, 2025 at 12:54 PM
madewithpatients.bsky.social
“Inclusion is a scientific necessity.” Lara Bloom, President & CEO of The Ehlers-Danlos Society & 2025 Made With Patients Champion, shares why lived experience must stay central to human-centered research. -
#PEOF #PE
November 17, 2025 at 1:14 PM
madewithpatients.bsky.social
Patient experience data has matured. The question is now is how we embed it into policy, research, and regulation.
Read Hayley’s reflection on what this new era of patient-centred evidence means:
tinyurl.com/mve829nu

#PFMD #PatientEngagement #EMA
What EMA’s Patient Experience Data consultation signals — and what
What EMA’s Patient Experience Data consultation signals — and what
tinyurl.com
November 17, 2025 at 1:04 PM
madewithpatients.bsky.social
Real change in diabetes care begins with the people who live it every day. The Research-to-Action Fellowship is a clear example of patient engagement driving better outcomes.
Learn more: tinyurl.com/33j32r8w

#WorldDiabetesDay #PE

@who.int
Research-to-Action Patient Partner Fellowship: Bridging Diabetes Research and Community Impact
Initiative Description:The Research-to-Action Fellowship is a dynamic, nine‑month, $3,000 paid program designed to empower Patient Partners to translate diabetes research into community-driven solutio...
tinyurl.com
November 14, 2025 at 12:48 PM
madewithpatients.bsky.social
Ilona Kickbusch, Founding Director, Global Health Center, urges that patient engagement must move beyond crisis response. It should be part of how we design, govern, and deliver care.

Watch her call to rebuild trust and equity in global health: tinyurl.com/yhydfeya

#WHS #PE WHS EMA Derick Mitchell
On ensuring patient engagement is integral to global healthcare. WIth Ilona Kickbush (WHS)
YouTube video by Patient Focused Medicines Development (PFMD)
www.youtube.com
November 7, 2025 at 8:06 AM
madewithpatients.bsky.social
The EMA Reflection Paper marks a key step for patient engagement. PFMD’s Executive Director, Derick Mitchell, shares his perspective on structured collaboration: tinyurl.com/2s4erm7u

#PE #EMA

@nbrooke12.bsky.social, @milkeninstitute.org, @derickomisteal.bsky.social
Why Engagement Must Power the Next Decade of Health Innovation
Why Engagement Must Power the Next Decade of Health Innovation
tinyurl.com
November 6, 2025 at 7:25 AM
madewithpatients.bsky.social
What if patient engagement could be measured like ROI?
PFMD & Gilde explore how patient-centred metrics could link social impact to sustainable investment.

Read more: tinyurl.com/2xkwtt8v

#PatientEngagement #ESG #HealthcareInnovation
November 4, 2025 at 7:45 AM
madewithpatients.bsky.social
Turning patient experience into evidence is no longer a vision; it’s happening now!

Learn how your organisation can lead this shift with 7 takeaways on advancing Patient Experience Data (PED).

Read more: tinyurl.com/mtwsbse5

#PatientEngagement #HealthData #PFMD
October 30, 2025 at 7:25 AM
madewithpatients.bsky.social
The “S” in ESG remains hard to measure. Could patient engagement metrics be the answer? At PFMD & Gilde, we’re exploring how patient-centred performance can define responsible investment in healthcare.

Read more: tinyurl.com/2xkwtt8v

#Glide #PatientEngagement
How Patient Engagement Metrics could drive sustainable investment decisions
How Patient Engagement Metrics could drive sustainable investment decisions
tinyurl.com
October 28, 2025 at 7:52 AM
madewithpatients.bsky.social
Tomorrow’s the day!

Join us for #Lunch&Learn: Rules of Engagement – Navigating Codes of Conduct for Patient Engagement (II) to explore how trade associations’ Codes of Conduct shape pharma–patient collaboration.

Not registered yet? Do it now 👉 tinyurl.com/ymtvfb6r

#PatientEngagement #PEOF2025
October 27, 2025 at 7:00 AM
madewithpatients.bsky.social
Patient Experience Data can transform healthcare decisions. While EMA’s Reflection Paper opens the door, PFMD’s 10 years of co-created tools & guidance provide the blueprint. A PEOF session will soon explore the consultation. Stay tuned!
#PFMD #PatientEngagement #EMA #HealthPolicy
October 25, 2025 at 8:40 AM
madewithpatients.bsky.social
Our Lunch & Learn: Rules of Engagement II on Oct 28, 13:30–14:30 CET will explore real examples, key rules, and how PFMD Country Guidelines support your work. Submit your questions in advance to info@peopenforum.org

Register now! patientengagement.synapseconnect.org/events/lunch...

#PEOF #PFMD
Promotional Banners - Lunch & Learn - Rules of Engagement (II)
October 24, 2025 at 12:33 PM
madewithpatients.bsky.social
A truly insightful session at PEOF!

Unlocking Patient Engagement Intelligence highlighted the power of patient voices in shaping healthcare decisions.

Grateful to our program director, jury, speakers, and all participants for their contributions.

#PatientEngagement #MadeWithPatients #PEOF2025
Event_Picture1 Event_Picture2 Event_Picture3
October 23, 2025 at 12:06 PM
madewithpatients.bsky.social
Over the past decade, the PE community has helped turn patient engagement from isolated pilots into a shared global practice. Now, the EMA’s Reflection Paper marks a defining moment, validating this collective progress.

Let’s make this count. tinyurl.com/5n86p3rw

#PFMD #EMA #PatientExperienceData
A path to better include patients’ perspectives in the regulation of medicines
October 22, 2025 at 6:15 AM
madewithpatients.bsky.social
Patient experience data are now stepping into policy. We welcome the EMA’s Reflection Paper on Patient Experience Data and invite the community to contribute & shape how patient insights guide healthcare decisions.

Learn more about the paper - tinyurl.com/5n86p3rw

#PFMD #PE #HealthPolicy #EMA
A path to better include patients’ perspectives in the regulation of medicines | European Medicines Agency (EMA)
Reflection paper on patient experience data for public consultation until 31 January 2026
tinyurl.com
October 22, 2025 at 5:57 AM
madewithpatients.bsky.social
The next phase of patient engagement is about evidence, not anecdotes. Explore lessons from the Made With Patients Award winners at Unlocking Patient Engagement Intelligence on October 22nd.

Block your calendar - tinyurl.com/yapxpjsh

#PatientEngagement #MadeWithPatients #PEOF2025
Unlocking Patient Engagement Intelligence: Learn from the 2025 'Made with Patients' Awardees and help define what makes a winner
The aim of this session is to learn directly from the Made with Patients Award-winning initiatives while also reflecting on insights from recent quality assessments of MWPA finalists. Led by Lode Dewu...
patientengagement.synapseconnect.org
October 22, 2025 at 5:43 AM
madewithpatients.bsky.social
Clinical research often overlooks Africa’s realities. Our recent webinar showed the path forward: local leadership, community voices & systems change drive impact. The Africa Working Group is uniting voices—join us. Link in the comments.

#GlobalHealth #ClinicalResearch#CommunityLeadership
August 22, 2025 at 1:50 PM
madewithpatients.bsky.social
Patients weren’t in the room when research was shaped. So Emma opened the door. Now at BMJ, she’s making patient involvement the rule—not the exception. She’s quietly changing whose voice counts in evidence.

Explore more on her work on Synapse.
#MadeWithPatients #PatientEngagement
August 18, 2025 at 11:19 AM
madewithpatients.bsky.social
The 2025 #MadeWithPatients Awards offered something rare: a shared pause. A moment to witness the quiet power of patient-led transformation.
🎥 Watch the full ceremony. Link in comments.
Follow this space as we share lessons that will guide the next steps.

#PatientEngagement#HealthcarethatListens
August 1, 2025 at 10:11 AM
madewithpatients.bsky.social
🤝At the Made With Patients Awards, we celebrated quiet revolutions—work rooted in empathy and shaping care with patients at its heart. From community clinics to global spaces, these stories inspire.

▶️Full recording in comments. More to build, together.

#BetterTogether #MadeWithPatients #PFMD
July 21, 2025 at 7:12 PM