Long Covid Journey
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longcovidjourney.bsky.social
Long Covid Journey
@longcovidjourney.bsky.social
120 followers 360 following 160 posts
Sharing insights, resources, and experiences on Long COVID recovery and research. Visit www.longcovidjourney.com for more. #cleanair, #covid #LongCovid #ChronicIllness #HealthResearch #PatientAdvocacy
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longcovidjourney.bsky.social
Some days, everything is a negotiation with your energy, your focus, your equilibrium. If you’re navigating Long COVID or supporting someone who is, you’re not alone. To read with compassion longcovidjourney.com/2025/08/12/u...
#health #compassion #longcovid #me
Cartoon-style illustration showing two people against a warm beige background. On the left, a woman with brown hair and a sad expression rests one hand on her chest. On the right, a smiling man with short brown hair places a hand on her shoulder in a comforting gesture. Above them, large text reads “UNDERSTANDING LIFE WITH LONG COVID,” and a speech bubble from the man says “EMPATHY.”
August 13, 2025 at 11:30 AM
longcovidjourney.bsky.social
Fatigue friendly cooking is real.
If you’re living with Long Covid or POTS, your kitchen setup can make or break your energy levels.

Here are 10 must-have tools to make food prep easier & flare safe:
👉 longcovidjourney.com/2025/07/27/1...

#LongCovid #POTS #MECFS #DisabilityHack #EnergySavingTips
Cartoon-style illustration of a smiling woman in a green shirt giving a thumbs-up while sitting at a kitchen counter. Surrounding her are helpful kitchen tools such as a kettle, slow cooker, mini food processor, cutting board, vegetable peeler, and various utensils. In the background is a cozy kitchen with blue tile walls and a window with sunlight and a potted plant. A large orange circle displays the text: “10 Must-Have Tools for Long Covid and POTS.
July 30, 2025 at 2:10 PM
longcovidjourney.bsky.social
What happens to your social life when you’re no longer “fun” or “reliable”?

Chronic illness quietly reshapes relationships often in painful ways.
This article doesn’t sugarcoat it.

Read & share ➡️ longcovidjourney.com/2025/07/13/t...
#Spoonie #LongCovid #DisabilityAwareness
cartoon-style illustration showing a sad woman sitting on a green couch, resting her head on her hand, looking fatigued and withdrawn. Another woman sits beside her, facing away. Above them, bold purple text reads: “CHRONIC ILLNESS AND FRIENDSHIPS” on a warm orange background. The image conveys emotional distance and the strain illness can place on relationships.
July 15, 2025 at 6:41 PM
longcovidjourney.bsky.social
Why are so many Long COVID patients gaining or losing weight without trying?

Long COVID disrupts insulin, cortisol, thyroid, and gut-brain signalling causing inflammation and metabolic chaos

🔗 Read now: longcovidjourney.com/2025/07/08/u...

#LongCovidWeightGain #MetabolicHealth #ChronicIllness
A beige background, the copy ‘Why are so many Long COVID patients gaining or losing weight without trying? It’s not just diet. It’s inflammation, hormone disruption, and metabolic chaos.’
July 10, 2025 at 6:41 PM
longcovidjourney.bsky.social
🐢 Sea turtles survive long journeys by slowing down.
Living with Long COVID is similar—it’s not weakness, it’s wisdom.
New post on pacing, resilience & nature’s lessons:
🔗 longcovidjourney.com/2025/07/06/n...
#LongCovid #Pacing #ChronicIllness #mecfs #autoimmune #ms #health #seaturtles #wisdom
A digital illustration of a sea turtle swimming calmly underwater, surrounded by gentle waves and marine plants. The text reads “LIVING WITH LONG COVID: LESSONS OF RESILIENCE” in bold white letters, symbolizing strength and endurance in chronic illness.
July 7, 2025 at 7:58 PM
longcovidjourney.bsky.social
Low Bifidobacterium = higher risk.

Supporting it (via food or prebiotics- probiotic) may help immunity and recovery in COVID & Long COVID.

🔬 Still under study , but promising.

#MicrobiomeMatters #LongCovid #COVID19 #Bifidobacterium #GutHealth

More on: longcovidjourney.com
A colorful cartoon-style illustration showing a smiling woman eating yogurt, with a bowl of fresh fruits like strawberries, blueberries, and carrots in front of her. Above her, a circular graphic depicts a happy intestine surrounded by green bifidobacteria, representing gut health.
July 6, 2025 at 10:26 AM
longcovidjourney.bsky.social
The heat isn’t just uncomfortable, it’s disabling when your nervous system’s already fried.

🔥 Dysautonomia + Long COVID =
🧠 Brain fog
💓 Heart racing
💦 Sweat chaos
🪫 Energy crash

Stay cool. Rest. You’re not imagining it.

#LongCovid #MECFS #HeatSensitivity #POTS
Beige background :Image with copy on a beige background: When the nervous system is already dysregulated, heat just adds fuel. 🧠 Brain fog 💓 Heart racing 💦 Sweating or not sweating at all 🪫 Crushing fatigue It’s not “just the heat.” It’s #dysautonomia. It’s #LongCovid. Stay cool. Rest. You’re not alone. 🔁 Share if you feel it too.
July 1, 2025 at 3:01 PM
longcovidjourney.bsky.social
Long COVID isn’t left or right. It’s a public health crisis hijacked by politics at the cost of real lives, care, and research. Time to put science first.
👉 longcovidjourney.com/2025/01/29/l...

#LongCovid #HealthNotPolitics #disability #cleanair #masks #longcovidkids
Graphic poster with the text “Long COVID isn’t left or right – Politics is hijacking a health crisis.” In the center, a stylized virus symbol is flanked by a blue arrow pointing left and a red arrow pointing right, symbolizing political division. The background is a muted gray-blue, with bold cream-colored text.
June 29, 2025 at 8:58 PM
longcovidjourney.bsky.social
Fatigue. Brain fog. Crashes.

Could reactivated Epstein-Barr Virus (EBV) be driving Long COVID symptoms?

For anyone seeking answers 👉
🔗 longcovidjourney.com/2025/04/25/e...

#LongCovid #EBV #ChronicIllness #LongCovidRecovery
Image with the copy: FAtigue, Brain Fog, Crashes. Could reactivated Epstein-Barr virus be driving Long Covid symptoms
June 28, 2025 at 4:16 PM
longcovidjourney.bsky.social
☀️ Barometric pressure
🌧️ Humidity shifts
🌬️ Windy days

Not just “in your head.” Many people with #LongCovid, #MECFS & other conditions feel the forecast before it hits.
👉https://longcovidjourney.com/2025/06/26/long-covid-and-weather-when-the-forecast-affects-your-function/

#Weather #Pacing
cartoon-style illustration showing a woman holding her head and stomach in discomfort. Above her are three weather icons: a sun with clouds labeled “Barometric pressure,” raindrops with clouds labeled “Humidity shifts,” and swirling wind with dark clouds labeled “Windy days.” The background is a warm yellow-orange.
June 27, 2025 at 7:57 PM
longcovidjourney.bsky.social
Anti-CHRM autoantibodies may be a factor in Long COVID symptoms like brain fog, fatigue & dysautonomia disrupting nervous system signalling.

Emerging research points to targeted immune treatments.

🔗 longcovidjourney.com/2025/06/22/a...

#LongCovid #Autoimmunity #AntiCHRM #Neuroimmune
Cartoon style with a boy touching his forehead and the copy” Long COVID can trigger autoantibodies that mess with nerve signals—causing brain fog, fatigue & dizziness.”
June 23, 2025 at 7:21 PM
longcovidjourney.bsky.social
Heat + Long COVID? Not just discomfort. it’s vascular.

Damaged vessels can’t regulate pressure. Blood pools, brain fogs, you wilt.

It’s not just the sun. It’s your endothelium.

#LongCovid #HeatSensitivity #POTS #VascularDamage #heatwave

Longcovidjourney.com
Cartoon illustration of a dizzy person standing in the sun, with spirals in their eyes, a sad expression, and red arrows pointing downward on their legs to show blood pooling. A speech bubble shows a brain with a warning sign and the words “LOW OXYGEN.” The sun looks smug, and a wilted flower beside the person reinforces the theme. Text at the bottom reads: “Not just the heat… It’s your endothelium
June 21, 2025 at 1:46 PM
longcovidjourney.bsky.social
🔥 Hot day? Autonomic nervous system throwing a tantrum again? 😅
When the heat hits and your BP dips, don’t sweat it sip smart.

📖 longcovidjourney.com/2024/11/26/homemade-electrolyte-drink-for-pots-relief

#POTS #Heatwave #ElectrolyteHack #LongCovid #Dysautonomia #ChronicIllness #HotWeatherTips
colourful cartoon-style poster with a burnt orange background shows a distressed person sweating under a large sun. Text at the top reads, “Hot day? Autonomic nervous system misbehave again?” In bold lettering below, it says, “Don’t sweat it — sip smart.” To the right, there’s a mason jar filled with a yellow electrolyte drink and a lemon slice, with a straw sticking out. The style is playful and eye-catching, aimed at raising awareness about hydration and POTS on hot days
June 19, 2025 at 1:18 PM
longcovidjourney.bsky.social
We’re all bored of COVID. But guess what? It’s not bored of us.
Long COVID is disabling millions. Ignoring it won’t make it vanish.
Read this if you think it’s “over.”
👉 longcovidjourney.com/2025/06/18/w...

#LongCOVID #MECFS #DisabilityTwitter #PostViral #CovidIsNotOver #ChronicIllness
Cartoon style image with a grumpy covid. It reads: we are all bored of Covid. It’s just bored of us. Read this if you think is over
June 18, 2025 at 3:32 PM
longcovidjourney.bsky.social
What can your fingernails reveal about Long COVID?
More than you think.

#Capillaroscopy shows tiny blood vessels and in Long COVID, they often look damaged, sluggish, or twisted.

Long COVID isn’t “just fatigue.” It’s in your blood flow.

Longcovidjourney.com

#LongCOVID #Microvascular #Chronic
humorous cartoon shows a doctor holding a magnifying glass over a patient’s fingernail. Inside the magnified view, red blood cells are screaming as they ride through chaotic, twisted capillaries like a roller coaster. The patient looks surprised, and the caption reads: “When Long COVID takes your capillaries on a wild ride.”
June 17, 2025 at 7:49 PM
longcovidjourney.bsky.social
Fitness update:
Ran a marathon today.
(Okay fine, I walked up the stairs.)

Me: just existing on the first floor
My lungs: “Is this… Everest?? We weren’t trained for this!”

longcovidjourney.com

#LongCOVID #TiredLungs #Breathless #chronicillness #covidsymptoms
A cartoon of a person standing breathless at the top of a staircase, sweating and holding onto the railing. Their lungs, drawn as tired, cartoonish characters with eyes and arms, are slumped over dramatically with one saying, “Is this Everest?!” A sarcastic caption reads, “Fitness update: climbed Mount Stairs.” Background includes an exaggerated “first floor” sign for humour
June 11, 2025 at 6:44 PM
longcovidjourney.bsky.social
More gym, more symptoms? For many with #LongCOVID, exercise hurts more than helps. Learn why pacing, not pushing is key to recovery. 🧠💥

🔗 longcovidjourney.com/2025/06/10/u...

#PostExertionalMalaise #ChronicIllness #longcovid #pem #microclots #medtwitter
cartoon-style illustration shows an exhausted person slumped on a bench, looking fatigued. Beside them, a cheerful exercise bike holds two signs that say “PACE YOURSELF!” A torn motivational poster in the background reads “NO PAIN NO GAIN?” The bottom of the image displays the text: “LONGCOVIDJOURNEY.COM”.
June 10, 2025 at 1:03 PM
longcovidjourney.bsky.social
Stomach issues that never went away after COVID? Nausea, IBS, food intolerance—Long COVID can hit the gut hard. It’s not “just stress”—it’s immune & microbiome chaos. How many are told it’s in their head when it’s actually in their gut? #LongCovid #GutHealth #Microbiome #IBS

Longcovidjourney.com
Cartoon-style illustration of a woman clutching her stomach in discomfort, surrounded by sad or angry cartoon organs (stomach, intestines, liver), virus icons, and distressed food items like bread, milk, and chicken. Speech bubbles say “Again?!” and “We were fine before COVID!” with the title “LONG COVID GUT DRAMA?” above
June 6, 2025 at 7:16 PM
longcovidjourney.bsky.social
Post-COVID may damage collagen & elastin, reducing elasticity in lungs, joints & skin causing stiffness, breathlessness & fatigue. Mask up!

🔗 longcovidjourney.com/2025/01/12/understanding-post-covid-elasticity-loss/
#LongCOVID #PostViral #Fatigue #Breathlessness #ConnectiveTissue #covid
Two-panel cartoon. Left panel: a happy child bounces energetically on a trampoline with the caption “My tissues before COVID.” Right panel: a stiff, grumpy wooden plank with arms and legs sits on a floral sofa, captioned “My tissues after COVID.”
June 6, 2025 at 5:41 PM
longcovidjourney.bsky.social
Caught COVID (again). Got symptoms (again).
But this time, it didn’t go away.

Breathless. Wired heart. Weird bloods.
APS+, fibrinogen ↑, D-dimer ↔️ still symptomatic.

It’s not “just anxiety.”
It’s Long COVID, and it’s messing with you

#microclots #clots
#LongCOVID #ChronicIllness #teamclots
Cartoon of an exhausted woman wrapped in red tape labeled “LONG COVID.” She has a thermometer in her mouth and a grey cloud above her listing symptoms: “Fatigue,” “Breathless,” “APS+,” and “Fibrinogen ↑.” Two people walk past her—one says, “You look fine!” and the other says, “Maybe it’s just stress?” The caption below reads, “Caught COVID (again).”
June 5, 2025 at 2:43 PM
longcovidjourney.bsky.social
COVID’s rising again.
No headlines. No masks. No tests.
Just vibes and vascular damage.

#CovidIsNotOver #LongCovid #MaskUp #PublicHealth

More on longcovidjourney.com
colourful cartoon shows a city street where a large red COVID-19 virus character wearing a hoodie sneaks past a “DO NOT ENTER” sign, grinning mischievously while holding a “JUST VIBES” sign. In the foreground, a man coughs violently as a couple shares an ice cream cone. A woman in a face mask stands nearby, glaring, while the woman licking the ice cream says, “SURE, IT’S OVER.”
June 3, 2025 at 8:05 PM
longcovidjourney.bsky.social
Feeling like you’re powered by salt, electrolytes, and sheer willpower? 🧂💧
If you’re navigating #LongCovid, #POTS, or #MCAS, hydration isn’t optional it’s survival.

longcovidjourney.com/2025/06/01/m...
#ChronicIllness #Dysautonomia #HistamineIntolerance #HydrationHack #LongCovid
A cartoon-style illustration shows a tired-looking person wrapped in a blanket, lounging on a couch with a small electric fan blowing nearby. They’re smirking and saying, “Living the dream, one salt packet at a time.” A water bottle beside them is labelled “Electrolyte Juice of Life.” A content grey cat sits beside them wearing a tag that reads, “Support Animal — Unpaid.” A packet labelled “SALT” lies on the coffee table in front of them. The overall tone is humorous and relatable, referencing the daily realities of managing chronic illness like POTS or Long COVID
June 3, 2025 at 10:31 AM
longcovidjourney.bsky.social
🧠 PEM vs PESE
Not just tired. Not lazy.
PEM = post-exertional malaise.
PESE = post-exertional symptom explosion.

Crash hours after activity. Lasts days.
Science backs it. Rest isn’t weak—it’s essential.

More on Longcovidjourney.com
#LongCovid #PESE #PEM #Pacing #LongCovidJourney #mecfs #ms #me
A cartoon-style illustration shows two versions of the same woman in a living room. On the left, her energetic past self jogs by with a laundry basket and feather duster, smiling and multitasking. On the right, her present self slumps exhausted on an orange sofa, holding a cup of tea, with droopy eyes, tangled hair, and a 5% battery icon above her head. Grey brain-fog clouds float around her. A speech bubble reads, “PEM says I pay for that walk… with interest.” A calendar marked “PACING” hangs on the wall behind them.
June 2, 2025 at 2:59 PM
longcovidjourney.bsky.social
✈️ Traveling with #LongCovid? Don’t wait for collapse—using a wheelchair can protect, not limit, your freedom. Plan smart, pace well. It’s not weakness, it’s strategy. ♿️💡
longcovidjourney.com/2025/01/20/t...

#LongCovid #DisabilityTravel #ChronicIllness #Pacing #InvisibleDisability #mecfs #travel
A cheerful cartoon-style illustration shows a woman in a wheelchair at an airport, confidently smiling behind a light blue face mask and wearing large black sunglasses. She’s dressed in a mustard-yellow top and jeans, holding the handles of two orange suitcases. A speech bubble above her reads, “Energy conserved. Style upgraded.” In the background, weary travellers shuffle along looking exhausted, contrasting with her composed and upbeat appearance.
June 1, 2025 at 1:56 PM
longcovidjourney.bsky.social
COVID-19 is surging again and it spreads through the air. Good ventilation and high-quality masks (FFP2/FFP3) matter more than handwashing. Protect yourself—think airborne.

longcovidjourney.com/2025/03/06/c...

#COVID19 #AirborneTransmission #Ventilation #MaskUp
Illustration highlighting that COVID-19 is airborne. It features a masked person speaking the words “COVID IS AIRBORNE,” an open window with air flowing through, a closed window with a curtain, a person coughing and releasing particles, and a portable air purifier emitting clean air. Small dots in the air suggest virus particles, reinforcing the airborne trasmission message
May 29, 2025 at 3:04 PM