Liz Burlingame
@lizmeactga.bsky.social
Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Just completed a meeting with Lizzie N of Rep. Rich McCormick's office as part of @solveme.bsky.social Advocacy Week. We are counting on Congress to help support the estimated 9 million Americans suffering with #MECFS. #MEforward
June 26, 2025 at 7:26 PM
Just completed a meeting with Lizzie N of Rep. Rich McCormick's office as part of @solveme.bsky.social Advocacy Week. We are counting on Congress to help support the estimated 9 million Americans suffering with #MECFS. #MEforward
The CDC's website today, February 12.
February 12, 2025 at 4:00 PM
The CDC's website today, February 12.
Good morning America! For the third week in a row the CDC's website is still being "modified" to "comply"
The attack on science is intolerable. I will fight from my bed because what's the alternative? #MECFS #LongCOVID
The attack on science is intolerable. I will fight from my bed because what's the alternative? #MECFS #LongCOVID
February 10, 2025 at 4:33 PM
Good morning America! For the third week in a row the CDC's website is still being "modified" to "comply"
The attack on science is intolerable. I will fight from my bed because what's the alternative? #MECFS #LongCOVID
The attack on science is intolerable. I will fight from my bed because what's the alternative? #MECFS #LongCOVID
Screenshot of today's CDC website. No other president ever shut down the CDC for it to "modify" its website and "comply" with an Executive Order. This is an attack on science and public health... I'm confined to bed with #MECFS. This is unconscionable. @meactnet.bsky.social
February 5, 2025 at 5:33 PM
Screenshot of today's CDC website. No other president ever shut down the CDC for it to "modify" its website and "comply" with an Executive Order. This is an attack on science and public health... I'm confined to bed with #MECFS. This is unconscionable. @meactnet.bsky.social
I'm letting this speak for itself.
February 3, 2025 at 3:35 PM
I'm letting this speak for itself.
Attending the CDC's ME/CFS stakeholder engagement call today. The speaker is talking about POTS. He displayed this slide... The answer is, No. POTS patients are Not crazy. He would not say this if he was talking about cancer.
December 4, 2024 at 8:54 PM
Attending the CDC's ME/CFS stakeholder engagement call today. The speaker is talking about POTS. He displayed this slide... The answer is, No. POTS patients are Not crazy. He would not say this if he was talking about cancer.