Lipodystrophy United
@lipodystrophyunite.bsky.social
The ONLY lipodystrophy patient foundation in the United States. We strive to increase understanding of lipodystrophy among the patient community, medical professionals and stakeholders. Follow this account and visit our website to learn more!
Meet Miranda and Sydney Billington, an inspiring mother and daughter duo taking on FPLD2 together 💪❤️
Have a story to share? We’d love to feature you! Send your story and photo to info@lipodystrophyunited.org and help us continue showing the power of connection
#lipodystrophyunited #lipodystrophy
Have a story to share? We’d love to feature you! Send your story and photo to info@lipodystrophyunited.org and help us continue showing the power of connection
#lipodystrophyunited #lipodystrophy
November 12, 2025 at 12:32 AM
Meet Miranda and Sydney Billington, an inspiring mother and daughter duo taking on FPLD2 together 💪❤️
Have a story to share? We’d love to feature you! Send your story and photo to info@lipodystrophyunited.org and help us continue showing the power of connection
#lipodystrophyunited #lipodystrophy
Have a story to share? We’d love to feature you! Send your story and photo to info@lipodystrophyunited.org and help us continue showing the power of connection
#lipodystrophyunited #lipodystrophy
Thank you to everyone who made Community Day a fantastic success! Tears were shed, friendships were made, and hope filled the room; we are stronger together! Here are some awesome clips from the day
#lipodystrophy #lipodystrophyunited
#lipodystrophy #lipodystrophyunited
November 4, 2025 at 12:31 AM
Thank you to everyone who made Community Day a fantastic success! Tears were shed, friendships were made, and hope filled the room; we are stronger together! Here are some awesome clips from the day
#lipodystrophy #lipodystrophyunited
#lipodystrophy #lipodystrophyunited
“High LDL can be part of life with lipodystrophy — but knowledge is power 💪 #Lipodystrophy #RareDisease #Cholesterol #HeartHealth #LDL #LipodystrophyUnited”
October 29, 2025 at 9:02 PM
“High LDL can be part of life with lipodystrophy — but knowledge is power 💪 #Lipodystrophy #RareDisease #Cholesterol #HeartHealth #LDL #LipodystrophyUnited”
💡 Lipid lesson: Cholesterol vs Triglycerides 🧬
Both are fats in your body, but they’re not the same.
👉 Cholesterol = helps build cells & hormones.
👉 Triglycerides = store energy from food.
#Lipodystrophy #LipodystrophyUnited #RareDisease #Triglycerides #Cholesterol
Both are fats in your body, but they’re not the same.
👉 Cholesterol = helps build cells & hormones.
👉 Triglycerides = store energy from food.
#Lipodystrophy #LipodystrophyUnited #RareDisease #Triglycerides #Cholesterol
September 24, 2025 at 8:55 PM
💡 Lipid lesson: Cholesterol vs Triglycerides 🧬
Both are fats in your body, but they’re not the same.
👉 Cholesterol = helps build cells & hormones.
👉 Triglycerides = store energy from food.
#Lipodystrophy #LipodystrophyUnited #RareDisease #Triglycerides #Cholesterol
Both are fats in your body, but they’re not the same.
👉 Cholesterol = helps build cells & hormones.
👉 Triglycerides = store energy from food.
#Lipodystrophy #LipodystrophyUnited #RareDisease #Triglycerides #Cholesterol
More fun coming to Boston, October 25–26, 2025, for our Lipodystrophy United Community Day! Hear the latest updates in science from Dr. Fourman and her team. Enjoy a private dinner cruise on the Head of the Charles River while chatting with friends.
RSVP: forms.gle/CYVVStDDdpnd...
RSVP: forms.gle/CYVVStDDdpnd...
September 23, 2025 at 11:01 PM
More fun coming to Boston, October 25–26, 2025, for our Lipodystrophy United Community Day! Hear the latest updates in science from Dr. Fourman and her team. Enjoy a private dinner cruise on the Head of the Charles River while chatting with friends.
RSVP: forms.gle/CYVVStDDdpnd...
RSVP: forms.gle/CYVVStDDdpnd...