Lipodystrophy with Chavey Chavez
@lipodchaveychavez.bsky.social
Chavey Chavez
Nursing student • Rare disease warrior • Advocate
I’m not fat. My organs are. Living with FPLD3 lipodystrophy. I turn struggle into story, advocacy into action, and stigma into strength.
Nursing student • Rare disease warrior • Advocate
I’m not fat. My organs are. Living with FPLD3 lipodystrophy. I turn struggle into story, advocacy into action, and stigma into strength.
Thank you for sharing. I really related to it. In today’s world, ‘normal’ doesn’t really exist. But for some reason people still rush to judge by appearance. Advocacy is so important.
August 27, 2025 at 3:12 PM
Thank you for sharing. I really related to it. In today’s world, ‘normal’ doesn’t really exist. But for some reason people still rush to judge by appearance. Advocacy is so important.
Thank you for bringing this information to the floor. I have a rare disease and the foundation that represents my rare disease was there and had to go home. Not getting to attend that very same event.
April 5, 2025 at 2:08 AM
Thank you for bringing this information to the floor. I have a rare disease and the foundation that represents my rare disease was there and had to go home. Not getting to attend that very same event.