Lin
@lin-22.bsky.social
Teacher, rare disease patient, C3G advocate.
I also have a very rare disease. It doesn’t look like there is a feed or community established yet - hopefully soon. I came across your post while looking for a feed. Take care.
November 19, 2024 at 5:19 AM
I also have a very rare disease. It doesn’t look like there is a feed or community established yet - hopefully soon. I came across your post while looking for a feed. Take care.
Congrats to you both. My husband had an extensive excision and reconstructive surgery followed by radiation for stage 3 cancer. I know it’s a tough road. Hope she recovers well and stays cancer free. We are almost to 18 months NED here and grateful.
November 19, 2024 at 3:02 AM
Congrats to you both. My husband had an extensive excision and reconstructive surgery followed by radiation for stage 3 cancer. I know it’s a tough road. Hope she recovers well and stays cancer free. We are almost to 18 months NED here and grateful.
Christmas tree storage bags?
November 16, 2024 at 9:11 PM
Christmas tree storage bags?
That’s rough. Take care of yourself and get some rest. I can only get one at a time, but the bright side is that I am probably more up to date than most.
November 13, 2024 at 3:14 AM
That’s rough. Take care of yourself and get some rest. I can only get one at a time, but the bright side is that I am probably more up to date than most.