Life’s a Polyp
@lifesapolyp.bsky.social
Rare Disease Advocate: Familial Adenomatous Polyposis & Short Bowel Syndrome
Children’s Book Author
Children’s Book Author
The Infusion Access Foundation is doing research to better understand needle fear and phobia.
It’s a quick survey and your participation is greatly appreciated!
Research Link: uwrf.co1.qualtrics.com/jfe/form/SV_...
It’s a quick survey and your participation is greatly appreciated!
Research Link: uwrf.co1.qualtrics.com/jfe/form/SV_...
November 15, 2025 at 1:00 AM
The Infusion Access Foundation is doing research to better understand needle fear and phobia.
It’s a quick survey and your participation is greatly appreciated!
Research Link: uwrf.co1.qualtrics.com/jfe/form/SV_...
It’s a quick survey and your participation is greatly appreciated!
Research Link: uwrf.co1.qualtrics.com/jfe/form/SV_...
Guess what we did today! 😁
Episode 3 will be coming soon for A Daughter’s Love Podcast!
#cancer #raredisease #alzheimer #podcast #grief #familialadenomatouspolyposis #familialpolyposis
Episode 3 will be coming soon for A Daughter’s Love Podcast!
#cancer #raredisease #alzheimer #podcast #grief #familialadenomatouspolyposis #familialpolyposis
November 9, 2025 at 10:02 PM
Guess what we did today! 😁
Episode 3 will be coming soon for A Daughter’s Love Podcast!
#cancer #raredisease #alzheimer #podcast #grief #familialadenomatouspolyposis #familialpolyposis
Episode 3 will be coming soon for A Daughter’s Love Podcast!
#cancer #raredisease #alzheimer #podcast #grief #familialadenomatouspolyposis #familialpolyposis
Research Fundraiser ends TONIGHT 10/25 11:59 pm PST! 3 sales away from being able to donate proceeds to FAP & Alzheimer’s Research. Get yours now: spreadgoodshop.com/products/fie...
October 25, 2025 at 6:34 PM
Research Fundraiser ends TONIGHT 10/25 11:59 pm PST! 3 sales away from being able to donate proceeds to FAP & Alzheimer’s Research. Get yours now: spreadgoodshop.com/products/fie...
Small bowel follow through day
I downed the first bottle in under a minute. My tech says “oh….wow, most people sip on it”. I explain, it’s one of the better tasting things I have to drink for tests 😂
” it can take up to 4 hours for the test “. My transit is 1.5 hours so we should be pretty quick. 😆
I downed the first bottle in under a minute. My tech says “oh….wow, most people sip on it”. I explain, it’s one of the better tasting things I have to drink for tests 😂
” it can take up to 4 hours for the test “. My transit is 1.5 hours so we should be pretty quick. 😆
October 1, 2025 at 2:52 PM
Small bowel follow through day
I downed the first bottle in under a minute. My tech says “oh….wow, most people sip on it”. I explain, it’s one of the better tasting things I have to drink for tests 😂
” it can take up to 4 hours for the test “. My transit is 1.5 hours so we should be pretty quick. 😆
I downed the first bottle in under a minute. My tech says “oh….wow, most people sip on it”. I explain, it’s one of the better tasting things I have to drink for tests 😂
” it can take up to 4 hours for the test “. My transit is 1.5 hours so we should be pretty quick. 😆
We had a great time recording our 1st episode of A Daughter’s Love Podcast!
Between recording, catching up, & lunch, we even made a couple TikToks!😆
Episodes will be available on podcast platform & YouTube 
Be sure to subscribe to
www.youtube.com/lifesapolyp 
TikTok: www.TikTok.com/@lifesapolyp
Between recording, catching up, & lunch, we even made a couple TikToks!😆
Episodes will be available on podcast platform & YouTube 
Be sure to subscribe to
www.youtube.com/lifesapolyp 
TikTok: www.TikTok.com/@lifesapolyp
August 30, 2025 at 10:20 PM
We had a great time recording our 1st episode of A Daughter’s Love Podcast!
Between recording, catching up, & lunch, we even made a couple TikToks!😆
Episodes will be available on podcast platform & YouTube 
Be sure to subscribe to
www.youtube.com/lifesapolyp 
TikTok: www.TikTok.com/@lifesapolyp
Between recording, catching up, & lunch, we even made a couple TikToks!😆
Episodes will be available on podcast platform & YouTube 
Be sure to subscribe to
www.youtube.com/lifesapolyp 
TikTok: www.TikTok.com/@lifesapolyp
In-Person/Virtual the Rare Disease Caucus Briefing about Regulatory Urgency & Therapeutic Opportunity for Rare Disease.
🗓️ Thursday, September 11
⏰2:00 p.m. - 3:00 p.m. ET
🏛️House Rayburn 2060, Washington, D.C. & livestream
💻Register
everylifefoundation.org/rare-advocat...
🗓️ Thursday, September 11
⏰2:00 p.m. - 3:00 p.m. ET
🏛️House Rayburn 2060, Washington, D.C. & livestream
💻Register
everylifefoundation.org/rare-advocat...
August 27, 2025 at 11:26 PM
In-Person/Virtual the Rare Disease Caucus Briefing about Regulatory Urgency & Therapeutic Opportunity for Rare Disease.
🗓️ Thursday, September 11
⏰2:00 p.m. - 3:00 p.m. ET
🏛️House Rayburn 2060, Washington, D.C. & livestream
💻Register
everylifefoundation.org/rare-advocat...
🗓️ Thursday, September 11
⏰2:00 p.m. - 3:00 p.m. ET
🏛️House Rayburn 2060, Washington, D.C. & livestream
💻Register
everylifefoundation.org/rare-advocat...
Get ready!
On August 24th, Dan will be sharing his AFAP journey with an expert panel at 2:30pm GMT.
Register at: www.path-scope.com
On August 24th, Dan will be sharing his AFAP journey with an expert panel at 2:30pm GMT.
Register at: www.path-scope.com
August 9, 2025 at 3:54 PM
Get ready!
On August 24th, Dan will be sharing his AFAP journey with an expert panel at 2:30pm GMT.
Register at: www.path-scope.com
On August 24th, Dan will be sharing his AFAP journey with an expert panel at 2:30pm GMT.
Register at: www.path-scope.com
Hereditary Live is a one-of-a-kind platform where clinicians present challenging cases and receive real-time feedback from
global experts.
When: August 14
6:00 p.m. ET | 3:00 p.m. PT
tinyurl.com/2ctkrxk5
global experts.
When: August 14
6:00 p.m. ET | 3:00 p.m. PT
tinyurl.com/2ctkrxk5
August 8, 2025 at 10:02 PM
Hereditary Live is a one-of-a-kind platform where clinicians present challenging cases and receive real-time feedback from
global experts.
When: August 14
6:00 p.m. ET | 3:00 p.m. PT
tinyurl.com/2ctkrxk5
global experts.
When: August 14
6:00 p.m. ET | 3:00 p.m. PT
tinyurl.com/2ctkrxk5
🧬 What is a Cancer Predisposition Syndrome?
Learn how genetic testing can help identify cancer risks early.
📅 August 13th, 2025 ⏰ 6pm ET
🔗 Register: us06web.zoom.us/webinar/regi...
Big thanks to Krishnan Family Foundation, International WAGR Syndrome Association & Illumina, Inc.
Learn how genetic testing can help identify cancer risks early.
📅 August 13th, 2025 ⏰ 6pm ET
🔗 Register: us06web.zoom.us/webinar/regi...
Big thanks to Krishnan Family Foundation, International WAGR Syndrome Association & Illumina, Inc.
July 31, 2025 at 12:05 AM
🧬 What is a Cancer Predisposition Syndrome?
Learn how genetic testing can help identify cancer risks early.
📅 August 13th, 2025 ⏰ 6pm ET
🔗 Register: us06web.zoom.us/webinar/regi...
Big thanks to Krishnan Family Foundation, International WAGR Syndrome Association & Illumina, Inc.
Learn how genetic testing can help identify cancer risks early.
📅 August 13th, 2025 ⏰ 6pm ET
🔗 Register: us06web.zoom.us/webinar/regi...
Big thanks to Krishnan Family Foundation, International WAGR Syndrome Association & Illumina, Inc.
🚨 CMS is trying to change ostomy supplies to be in the Competitive Bidding Program that would greatly decrease access and choice for ostomy supplies
Please submit your comments and any personal story to CMS to protect ostomate access to their medically necessary supplies
www.ostomy.org/take-action/
Please submit your comments and any personal story to CMS to protect ostomate access to their medically necessary supplies
www.ostomy.org/take-action/
July 25, 2025 at 6:27 PM
🚨 CMS is trying to change ostomy supplies to be in the Competitive Bidding Program that would greatly decrease access and choice for ostomy supplies
Please submit your comments and any personal story to CMS to protect ostomate access to their medically necessary supplies
www.ostomy.org/take-action/
Please submit your comments and any personal story to CMS to protect ostomate access to their medically necessary supplies
www.ostomy.org/take-action/
Join me in wishing the best daddy a girl could ask for a very happy birthday!
He’s forever steadfast for me and mama, always doing whatever needs to be done.
I love you so very much and wishing you a very happy birthday today 🫶
He’s forever steadfast for me and mama, always doing whatever needs to be done.
I love you so very much and wishing you a very happy birthday today 🫶
July 24, 2025 at 6:51 PM
Join me in wishing the best daddy a girl could ask for a very happy birthday!
He’s forever steadfast for me and mama, always doing whatever needs to be done.
I love you so very much and wishing you a very happy birthday today 🫶
He’s forever steadfast for me and mama, always doing whatever needs to be done.
I love you so very much and wishing you a very happy birthday today 🫶
Last night dad & I went to visit my cousin Amy & family ♥️
We’ve been cooking up something exciting! We’ll be launching our new podcast to share the life and cancer stories of our mothers as well as our own experiences, memories, and grief of losing our mothers less than a month apart.
Stay Tuned!
We’ve been cooking up something exciting! We’ll be launching our new podcast to share the life and cancer stories of our mothers as well as our own experiences, memories, and grief of losing our mothers less than a month apart.
Stay Tuned!
July 13, 2025 at 7:01 AM
Last night dad & I went to visit my cousin Amy & family ♥️
We’ve been cooking up something exciting! We’ll be launching our new podcast to share the life and cancer stories of our mothers as well as our own experiences, memories, and grief of losing our mothers less than a month apart.
Stay Tuned!
We’ve been cooking up something exciting! We’ll be launching our new podcast to share the life and cancer stories of our mothers as well as our own experiences, memories, and grief of losing our mothers less than a month apart.
Stay Tuned!
It’s my birthday! To help me celebrate, my biggest wish to share with you all is furthering FAP Awareness and Research as well as mama’s legacy and those of others lost by FAP whose loved ones carry on for them.
Together, we can make the world a better place for future generations.
Together, we can make the world a better place for future generations.
July 2, 2025 at 11:42 AM
It’s my birthday! To help me celebrate, my biggest wish to share with you all is furthering FAP Awareness and Research as well as mama’s legacy and those of others lost by FAP whose loved ones carry on for them.
Together, we can make the world a better place for future generations.
Together, we can make the world a better place for future generations.
This morning 30 yrs ago, my colon was removed due to my polyps from Familial Adenomatous Polyposis starting to turn cancerous.
It only seems fitting to share my latest magazine article about The Hardest Lesson I Learned As A Child With An Ostomy, published in Ostomy Canada Society
It only seems fitting to share my latest magazine article about The Hardest Lesson I Learned As A Child With An Ostomy, published in Ostomy Canada Society
June 30, 2025 at 3:31 PM
This morning 30 yrs ago, my colon was removed due to my polyps from Familial Adenomatous Polyposis starting to turn cancerous.
It only seems fitting to share my latest magazine article about The Hardest Lesson I Learned As A Child With An Ostomy, published in Ostomy Canada Society
It only seems fitting to share my latest magazine article about The Hardest Lesson I Learned As A Child With An Ostomy, published in Ostomy Canada Society
Oh. My. God. !!!!
I am beyond honored to have received a shout out from CGA-IGC! 🥰
Thrilled that dandrydock also received a shout out! He’s a beast with AFAP advocacy! 🔥
I am beyond honored to have received a shout out from CGA-IGC! 🥰
Thrilled that dandrydock also received a shout out! He’s a beast with AFAP advocacy! 🔥
June 22, 2025 at 1:58 AM
Oh. My. God. !!!!
I am beyond honored to have received a shout out from CGA-IGC! 🥰
Thrilled that dandrydock also received a shout out! He’s a beast with AFAP advocacy! 🔥
I am beyond honored to have received a shout out from CGA-IGC! 🥰
Thrilled that dandrydock also received a shout out! He’s a beast with AFAP advocacy! 🔥
Ahhh!! Fight CRC has joined in this year recognizing FAP Awareness Week with CGA-IGC!!
June 17, 2025 at 5:29 PM
Ahhh!! Fight CRC has joined in this year recognizing FAP Awareness Week with CGA-IGC!!
Today marks one year since losing mama. It’s all a weird feeling & thoughts when thinking about it. We spent time with mama, I curled up next to her and we listened to the cows, birds, & train. The lilies we planted when we interned her are blooming beautifully. We love you mama & miss you so much.
June 16, 2025 at 11:01 PM
Today marks one year since losing mama. It’s all a weird feeling & thoughts when thinking about it. We spent time with mama, I curled up next to her and we listened to the cows, birds, & train. The lilies we planted when we interned her are blooming beautifully. We love you mama & miss you so much.
Today is our 1st Father’s Day w/out mama. She died on Father’s Day last year, a gift she gave us to have 1 last 1 together & on the start of FAP Awareness Week
For many reasons, for many Father’s Day is a hard day. We recognize that.
May today fill you w/love & joy regardless of your situation.
For many reasons, for many Father’s Day is a hard day. We recognize that.
May today fill you w/love & joy regardless of your situation.
June 15, 2025 at 4:02 PM
Today is our 1st Father’s Day w/out mama. She died on Father’s Day last year, a gift she gave us to have 1 last 1 together & on the start of FAP Awareness Week
For many reasons, for many Father’s Day is a hard day. We recognize that.
May today fill you w/love & joy regardless of your situation.
For many reasons, for many Father’s Day is a hard day. We recognize that.
May today fill you w/love & joy regardless of your situation.
I love this story and appreciate the love behind the creation of “Shimmy the Shark and His Stoma”!
Stephen honored the dying wish of his brother in law, to write a book to help children adjust and accept to having an ostomy.
He’s also donating 50% of proceeds to colostomyuk!
a.co/d/7V556wS
Stephen honored the dying wish of his brother in law, to write a book to help children adjust and accept to having an ostomy.
He’s also donating 50% of proceeds to colostomyuk!
a.co/d/7V556wS
June 9, 2025 at 12:04 AM
I love this story and appreciate the love behind the creation of “Shimmy the Shark and His Stoma”!
Stephen honored the dying wish of his brother in law, to write a book to help children adjust and accept to having an ostomy.
He’s also donating 50% of proceeds to colostomyuk!
a.co/d/7V556wS
Stephen honored the dying wish of his brother in law, to write a book to help children adjust and accept to having an ostomy.
He’s also donating 50% of proceeds to colostomyuk!
a.co/d/7V556wS
We went today to see mama’s newly installed zoo brick and by accident discovered that my grandpa has a brick too!
Three generations of FAP ♥️
Three generations of FAP ♥️
June 8, 2025 at 7:55 PM
We went today to see mama’s newly installed zoo brick and by accident discovered that my grandpa has a brick too!
Three generations of FAP ♥️
Three generations of FAP ♥️
It’s official! Life’s a Polyp Shop is BACK!!!!
As before, all profits are donated to the NORD FAP Research Fund.
So what are you waiting for!? Get shoppin’ 😘
lifesapolyp.square.site
As before, all profits are donated to the NORD FAP Research Fund.
So what are you waiting for!? Get shoppin’ 😘
lifesapolyp.square.site
June 2, 2025 at 6:11 AM
It’s official! Life’s a Polyp Shop is BACK!!!!
As before, all profits are donated to the NORD FAP Research Fund.
So what are you waiting for!? Get shoppin’ 😘
lifesapolyp.square.site
As before, all profits are donated to the NORD FAP Research Fund.
So what are you waiting for!? Get shoppin’ 😘
lifesapolyp.square.site
I gifted Mike & his mom a professional family photo session that we completed w/all of Mike’s family.
1 thing I’ve been grateful for since losing mom is the 1 we did several years ago.
Mike’s family hasn’t done it for decades. It became important to me for their family to have what I have from ours
1 thing I’ve been grateful for since losing mom is the 1 we did several years ago.
Mike’s family hasn’t done it for decades. It became important to me for their family to have what I have from ours
May 25, 2025 at 10:55 PM
I gifted Mike & his mom a professional family photo session that we completed w/all of Mike’s family.
1 thing I’ve been grateful for since losing mom is the 1 we did several years ago.
Mike’s family hasn’t done it for decades. It became important to me for their family to have what I have from ours
1 thing I’ve been grateful for since losing mom is the 1 we did several years ago.
Mike’s family hasn’t done it for decades. It became important to me for their family to have what I have from ours
NEW on the blog!
In my latest article, I share what I learned in a training for using Cognitive Behavioral Therapy for Chronic Pain
www.lifesapolyp.com/2025/04/cogn...
In my latest article, I share what I learned in a training for using Cognitive Behavioral Therapy for Chronic Pain
www.lifesapolyp.com/2025/04/cogn...
May 22, 2025 at 11:35 PM
NEW on the blog!
In my latest article, I share what I learned in a training for using Cognitive Behavioral Therapy for Chronic Pain
www.lifesapolyp.com/2025/04/cogn...
In my latest article, I share what I learned in a training for using Cognitive Behavioral Therapy for Chronic Pain
www.lifesapolyp.com/2025/04/cogn...
Look what I found at dad’s today of all days! 🥰
This was an autograph dog that someone had given me during one of my hospitalizations that first year.
If I ever get a tattoo… 😍🥰
This was an autograph dog that someone had given me during one of my hospitalizations that first year.
If I ever get a tattoo… 😍🥰
May 11, 2025 at 8:03 PM
Look what I found at dad’s today of all days! 🥰
This was an autograph dog that someone had given me during one of my hospitalizations that first year.
If I ever get a tattoo… 😍🥰
This was an autograph dog that someone had given me during one of my hospitalizations that first year.
If I ever get a tattoo… 😍🥰
This month I finally started two of the paintings I’ve been planning and today I finished them!
April 28, 2025 at 10:38 PM
This month I finally started two of the paintings I’ve been planning and today I finished them!